August 2018

“Breaking up” with a doctor after 14 years — Bernadette’s journey to better care

1 Comment / Conditions, Parkinson's Disease / By

PatientsLikeMe member Bernadette (yellsea), who’s on the 2018 Team of Advisors, has been living with Parkinson’s disease (PD) since 2002. She recently filled us in about switching specialists after more than a decade with the same neurologist, and advocating for herself after enough “red flags” popped up in her interactions with that physician. Out with the […]

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“This’ll make you feel better!î About Depression Advice from people who don’t have depression

1 Comment / Conditions, Depression / By

Martha Mills, a writer for The Guardian, candidly wrote a piece called “’Just go for a run’: testing everyday advice for depression,” where she reviews tips that people unfamiliar with depression have offered her to “keep the blues away.” Check out her assessment of different kinds of advice, plus hear what the PatientsLikeMe community has said about mental health–related tips

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“Not tonight”: How health conditions can affect your sex life + relationships

1 Comment / Conditions, Patient Experiences / By

Personal (but important) question: How’s your sex life? Explore how your diagnosis (and symptoms and treatments) can impact your romantic relationships, see what members are saying about the topic on PatientsLikeMe — and learn what you can possibly do about love-life struggles. Intimacy, interrupted According to sexologists, people with a variety of health conditions can

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MS constipation blues? See 12+ treatment options

Conditions, Multiple Sclerosis, Patient Experiences / By

Feeling “irregular” on the regular? Constipation is a common issue for people living with multiple sclerosis (MS), affecting as many as 40% of patients. Over 15,000 MS members on PatientsLikeMe report experiencing bowel problems and of those, about 47% have reported it as “moderate” or “severe” – take a look here. With help from our team of

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Parkisnon's Speech

Let’s talk: Parkinson’s disease, speech changes + communication issues

Conditions, Parkinson's Disease, Patient Experiences / By

Parkinson’s disease can cause your voice to become raspy, quiet or unsteady, and motor symptoms can make writing and typing more difficult. Have you experienced communication issues like these? See what others have tried — from Lee Silverman Voice Treatment and voice-activated “smart” devices to (drumroll please…) singing classes. How PD can impact communication Parkinson’s

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lupus research

What’s New In Lupus Research & Treatments?

2 Comments / Conditions, Lupus / By

Keeping tabs on the latest info about lupus research is no easy task. So we’ve boiled down some highlights and trends in the world of lupus research and drug development — take a peek. Rising areas of research Stem cells – Initial studies have shown that mesenchymal stem cells (MSC) — a type of stem cell that lives in bone marrow, umbilical

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