July 2017

From “What happened to you?” to “You’re so inspirational”: 5 ways Anne navigates stigma as a wheelchair user

Member Anne Thomas (AnneBT), a civil rights attorney turned professional storyteller, has shared her stories with everyone from elementary schoolers and medical students to corporate leaders and World Bank officials. Anne sustained a spinal cord injury in a car accident at age 18. Her wheelchair is often the first thing people notice about her, so […]

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Working with a condition: Your rights and options for sharing with your employer and taking leave

Have you ever struggled with managing your health condition(s) while holding down a job? Or worried about missing too much work because of your unpredictable symptoms? Team of Advisors member Hetlena (TheLupusLiar) is living with lupus and is very interested in the topic of balancing work with a chronic health condition. She helped us develop

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“I promise not to look upon myself with the scornful eyes of my past” – PatientsLikeMe’s Becca shares her promise

Becca Getto is an Associate Product Manager at PatientsLikeMe, and is recovering from an eating disorder. During her time in Monte Nedo Laurel Hill treatment program, she wrote a poetic and moving promise to herself, and in it she shares her past struggles and hopes for the future. Becca is more than her condition: she’s

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10 hot weather and sun-safety pointers for people with lung cancer

On PatientsLikeMe, nearly 7,000 members are sharing their experiences with lung cancer. The dog days of summer have arrived, so we’ve rounded up some tips for handling the weather’s impact on breathing troubles and the side effects of chemo, radiation and surgery. Hot weather tips for people with breathing issues The American Lung Association reminds

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“Everyone needs a “Me too!” moment” – Member Shannon on exposing her truth

“With every part of me that becomes less than what it used to be, a different part of me usually becomes more than what it used to be. In fact, maybe that’s the point, but it doesn’t make it any less difficult.” Shannon (Sna2164) is a wife, mother, animal lover and writer, living in southern California. She was officially

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Team of Advisors member Kimberly’s care team fell apart and she was left with 10 days to build a new one

  Kimberly (firefly84) is part of the PatientsLikeMe 2016-2017 Team of Advisors. She’s living with autonomic neuropathy, a rare disease that  prematurely ended her career as a registered nurse. In her time as an RN, she was often charged with navigating the ins and outs of insurance companies on behalf of her patients, something she

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#MoreThan multiple sclerosis: Guest blogger Cathy Chester’s journey as a writer, mom, advocate and optimist

As part of our ongoing #MoreThan series, we’re continuing to highlight patients’ stories of all the ways they’re more than their diagnoses. Here, Cathy Chester – blogger, wife, mother and advocate – shares her diagnosis story and how she’s much more than MS. When I was in my 20s I was thrilled to work for

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