Fatigue can be a big deal when you have lupus. About 43 percent of PatientsLikeMe members with systemic lupus erythematosus (SLE) who are tracking fatigue as a symptom say that it’s “severe.” A rough day can feel like “walking through knee-deep water,” notes one member. Here’s a roundup of energy-saving tips from a few different […]
3 energy-saving tips for people with lupus Read More »
In a quest to learn about the benefits of music for people with Parkinson’s disease, we met Pamela Quinn, a professional dancer in New York City who was diagnosed with young-onset PD more than 20 years ago. These days, she teaches thriving dance classes in Brooklyn and Manhattan for people with Parkinson’s (check out her
Parkinson’s podcast: Member Gary talks music and movement with dancer Pamela Quinn Read More »
Roughly 37 million US adults have chronic kidney disease (CKD). Kidney disease is a silent killer, ranking as the number one leading cause of death. Your kidneys are about the size of a computer mouse and filters all the blood in your body. Their primary role is to remove waste, toxins, and excess fluid. They also
44 Celebrities With Kidney Disease Read More »
Meet Alex Bromley, a PatientsLikeMe software engineer who’s living with gastroesophageal reflux disease (GERD) and whose mother has fibromyalgia. He recently shared some insight on his and his mom’s conditions, his experiences as both a PatientsLikeMe employee and member and what he enjoys outside of work. What first drew you to working at PatientsLikeMe? Can
What started as a simple chat between friends in the forum evolved into something much bigger. Members from the multiple myeloma community on PatientsLikeMe decided to take their friendship out of the forums and into real life. Marcia (marcia_holman), Dennis (DennisIvan), Paul (paulatsea) and Lee (Dapylil), along with spouses and grandchildren, got together and discussed
Multiple myeloma community members form “forever friends” by taking it offline Read More »
Brain injuries can happen to anyone, anywhere at any time. The important thing to know is that you’re not alone, which is the primary theme of Brain Injury Awareness Month organized by the Brain Injury Association of America (BIAA). At least 2.5 million children and adults sustain traumatic brain injuries (TBI) in the U.S. each
March is Brain Injury Awareness Month. Let’s learn more, together. Read More »
Meet LaurCT, an active 2015-2016 Team of Advisors alum living with idiopathic pulmonary fibrosis (IPF). She underwent a left lung transplant at Brigham and Women’s Hospital in Boston in January and recently shared her experience with us. How are you feeling these days? I am feeling great. I’ve had a couple bumps in the road
Back in January we introduced Cris, a member of the 2016-2017 PatientsLikeMe Team of Advisors living with ALS. She’s also a fierce patient advocate who’s participated in several clinical trials since her diagnosis. We recently caught up with her to learn about her experience with clinical trials and why access and awareness of clinical trials
The record on research: Catching up with TOA member Cris Read More »
Daylight Saving Time is here again. This Sunday, March 12th, clocks will move forward one hour from 2:00am to 3:00am. While the hour change may seem small, it can have a big impact on sleep and health. Want to hit snooze? You might feel sleepier than usual Monday morning since the average person sleeps 40
Sleep and Daylight Saving: 3 ways to spring forward with confidence Read More »
“This is the fastest enrolling trial in ALS history.” A brightly-colored blazer and the determination to make a difference for ALS patients are two of Dr. Rick Bedlack’s defining characteristics. Dr. Bedlack is a tenured associate professor of Medicine/Neurology at Duke University. He’s also the director of the Duke ALS Clinic that’s partnering with
ALS Reversal: A chat with Duke’s Dr. Rick Bedlack Read More »
