November 2016

Ryan and Emma’s stories: Make-A-Wish® Massachusetts and Rhode Island

Patient Experiences / By

Last December, patients like you came together to donate more than 476,000 health data points, including nearly 30,000 treatment reports and close to 120,000 symptom reports. The data that everyone selflessly donated has a heartbeat that will keep on giving – helping other patients like you and accelerating research. And because you helped us reach […]

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PatientsLikeMe Kicks off 3rd Annual “24 Days of Giving”

Patient Experiences / By

People Living With Chronic Conditions Encouraged to Donate Health Data for 24 Days November 29, 2016 – CAMBRIDGE, Mass. – Beginning today on #GivingTuesday, PatientsLikeMe is kicking off its third-annual #24DaysofGiving to celebrate “the tradition of generosity.” Over the next 24 days, PatientsLikeMe is asking members to rally together, rethink what it means to give

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“Hope makes us strong.” Cathy opens up for National Family Caregivers Month

ALS, Patient Experiences / By

Are you a caregiver or do you know someone who cares for a loved one? For National Family Caregivers Month, we caught up with Cathy (Catrin), who became a caregiver for her husband after he was diagnosed with bulbar onset ALS in January of 2015. As she learns to manage the dual roles of wife

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Lung Cancer Awareness Month: An interview with member Clare

Conditions, Patient Experiences / By

November is Lung Cancer Awareness Month, and to share some insight into what it’s like to live with this condition, we talked to member Clare (Riverdale). When she was diagnosed with non small-cell lung cancer, her husband was already living with prostate cancer. While supporting each other through chemotherapy and radiation, the couple has made

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Patient Advocacy: An interview with artist and activist Regina Holliday

Patient Experiences / By

Regina Holliday wears many hats. She’s an artist, activist, speaker and author, and she’s painted hundreds of patient stories on the backs of jackets in an ongoing art project called The Walking Gallery. Through her art, Regina promotes better care, treatment and transparency in healthcare. She’s been an advocate of PatientsLikeMe for quite some time (two

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Food for thought: What GERD means for digging in on Thanksgiving

Patient Experiences / By

It’s GERD Awareness Week — and it’s also Thanksgiving week. To a lot of folks, this means a holiday feast with all the trimmings: turkey, stuffing, mashed potatoes, pies and other rich foods. But for people living with gastroesophageal reflux disease — over 4,650 here at PatientsLikeMe — it might mean something different. The most common symptom

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PatientsLikeMe Adds Patient Reviews of Medications to Walgreens.com

Patient Experiences / By

Real-World Reports on Use, Effectiveness and Alternative Medications Now Available for Thousands of Brand Name and Generic Drugs CAMBRIDGE, MA., November 17, 2016—PatientsLikeMe has expanded the scope of patient-reported information it offers through Walgreens.com to help more people better understand how certain prescription medications may affect them. The new information, which is updated daily and

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In her own words: Letitia shares about her new brain for Epilepsy Awareness Month

9 Comments / Epilepsy / By

Have you met Letitia (Letitia81) from the epilepsy community? Four years ago, her research on PatientsLikeMe led her to the brain surgery that forever changed her life — she’s now seizure-free after three decades. Things are much different now for Letitia, and she’s written all about her before and after in a recent article for

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Barry shares his story for National Diabetes Month

Patient Experiences / By

November is National Diabetes Month, and this year, we caught up with Barry (bjf2000): history lover, grandfather and member of the diabetes community. Below, see what Barry says about his journey to diagnosis (“a flipping mess”), what it’s like to manage multiple conditions and becoming his own advocate. Tell us a little about yourself. What

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PatientsLikeMe Welcomes Next Patient Team of Advisors

ALS, Bipolar disorder, Conditions, Epilepsy, Fibromyalgia, Idiopathic Pulmonary Fibrosis, Multiple Sclerosis, Parkinson's Disease, Patient Experiences, Pulmonary fibrosis / By

  CAMBRIDGE, Mass, November 14, 2016—PatientsLikeMe has named 11 members to its patients-only 2016–2017 Team of Advisors, which this year will focus on elevating the patient voice. Team members will share their stories, participate in community initiatives, and give real world perspectives to our industry and research partners. “Each year, our Team of Advisors has proven

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