7 posts from April, 2016

Food for Thought: IBS Awareness Month edition

Posted April 6th, 2016 by

 

Did you know that 9% – 23% of the world’s population live with irritable bowel syndrome (IBS)1, including over 5,000 members on PatientsLikeMe? For IBS Awareness Month, we’re digging deeper into how people are coping with this condition that affects so many.

We asked IBS members for some insight — which foods help and which ones hurt? Here’s what they had to say about their diet do’s and don’ts:

I’ve tried all sorts of stuff and not long ago, I was experiencing much pain so here are the general guidelines:

  • No raw food
  • No legumes (e.g. lentils, beans, etc.)
  • No FODMAPs (Fermentable Oligosaccharides, Disaccharides, Monosaccharides And Polyols): that helps to sort all the types of fruit and vegetable (so basically very few fruits)
  • Be careful on milk, gluten and soy, depending on the sensibility
  • No high-sugar food that can be irritating
  • Be careful in the choice of nuts
  • No lacto-fermented products

I tend to blend a lot of my food but still make sure I chew! Well, this is kind of restrictive and it depends on the people and the periods of crisis or not. I’d love to hear from others!

–       PatientsLikeMe member

For me it’s boiled down to: Nothing raw, certain veggies cooked, no dairy. I can tolerate lacto fermented foods and certain legumes. No red meat. No shellfish. Nothing processed. I used to be the biggest salad lover. Now I love broth and bland foods.

 –       PatientsLikeMe member

More often than not, it’s down to stress. So, really I only have three categories that are always going to upset me:

  • Anything containing lactose. I sometimes *need* ice cream though and I’ll pop a Lactaid tablet. Ben & Jerry’s makes an excellent non-dairy ice cream, too.
  • Anything really greasy or fried. If there’s a lot of sugar, it’s a double-whammy. Very sweet by itself doesn’t bother me, it’s always when it’s in conjunction with greasy things. Pancakes and french toast are really terrible.
  • And lastly, there’s a certain local restaurant chain that never fails to give me fits. 

–       PatientsLikeMe member

Are you living with IBS? Which foods have you added or removed from your diet? Share your experience with the community in the forum.

 

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1http://www.aboutibs.org/site/living-with-ibs/ibs-awareness-month/


“Technology is the cure”: An update with member Steve Saling (SmoothS)

Posted April 5th, 2016 by

Recently, we paid a follow-up visit to ALS member Steve Saling (Smooth S) to see what he’s been up to and talk about future plans.

When we last spoke with him in 2012, Steve was using his expertise as an architect and his interest in technology to spearhead the ALS Residence Initiative (ALSRI), starting with the Steve Saling ALS Residence at the Chelsea Jewish Foundation’s Leonard Florence Center for Living in Chelsea, Mass.

The ALSRI has grown into a series of fully automated residences – now in multiple cities nationwide – that allow pALS the freedom of independent living alongside 24-hour care. And just this past Sunday, the Dapper McDonald ALS Residence officially opened as the second residence at the Leonard Florence Center for Living.

“Until medicine proves otherwise, technology is the cure,” Steve says.

Watch what else he has to say in this interview.

For more on Steve and footage of the ALS Residence, here’s the rest of his story!

 

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