November 2015

#ChatActChange: empowered to chat, act and make change – together

Conditions, Diabetes / By

On October 28, Sally Okun, our Vice President for Advocacy, Policy and Patient Safety, participated in a Twitter chat – using the hashtag #ChatActChange – aimed at empowering people living with chronic conditions to advocate for policy change. Hosted by Diabetes Social Media Advocacy (DSMA), other chat participants included policy expert Susan Dentzer, Diabetes Hands […]

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Compassion for all: Krista Nelson, MSW, LCSW, OSW-C – Schwartz Center NCCY Award finalist

Conditions, Patient Experiences / By

Today, we’re happy to introduce the fourth of six nominees for the National Compassionate Caregiver of the Year (NCCY) Award, presented by our friends at the Schwartz Center for Compassionate Healthcare. We’ve already featured Rick Boyte, MD, Melody J. Cunningham, MD and Cheryl D. Kane, MEd, BSN, RN.  Krista Nelson, MSW, LCSW, OSW-C Providence Cancer

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Compassion for all: Jayne O’Malley, BSN, RN, OCN – Schwartz Center NCCY Award finalist

Conditions / By

Tomorrow, the National Compassionate Caregiver of the Year (NCCY) Award, from our partners at the Schwartz Center for Compassionate Healthcare, will be presented to one of six nominees at the 20th Annual Kenneth B. Schwartz Compassionate Healthcare Dinner in Boston. So far, we’ve featured four of the six nominees here on the blog: Rick Boyte,

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World Diabetes Day: Act today to change tomorrow

1 Comment / Conditions, Diabetes, Patient Experiences / By

Diabetes affects almost 400 million adults[1] around the world and contributes to nearly 5 million annual deaths[2]. November is American Diabetes Month, but on November 14, the entire world joins together to unite their voices against this disease on World Diabetes Day (WDD). It was started back in 1991 by the International Diabetes Federation (IDF).

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Compassion for all: Cheryl D. Kane, MEd, BSN, RN – Schwartz Center NCCY Award finalist

1 Comment / Conditions / By

By now, you’re probably familiar with the National Compassionate Caregiver of the Year (NCCY) Award, presented by our partners at the Schwartz Center for Compassionate Healthcare. We’re featuring the six award nominees here on the blog, leading up to the 20th Annual Kenneth B. Schwartz Compassionate Healthcare Dinner in Boston on November 18. We’ve already

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Compassion for all: Melody J. Cunningham, MD – Schwartz Center NCCY Award finalist

Conditions, Patient Experiences / By

We’ve already introduced you to Rick Boyte, MD, one of the finalists for the National Compassionate Caregiver of the Year (NCCY) Award presented by our partners at the Schwartz Center for Compassionate Healthcare. Today, we’re happy to introduce you to another nominated healthcare provider who has displayed extraordinary devotion and compassion in caring for patients

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Joining the effort to find answers from brain diseases and injuries

Conditions, Patient Experiences / By

In honor of Veterans Day, we wanted to share two stories from our partner, One Mind. First, the story of retired Colonel Gregory Gadson, who was wounded during his military service and was living with post-traumatic stress (PTS). PTS affects more than 7.7 million Americans each year. The second video shares the story of Roxana

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Compassion for all: Rick Boyte, MD – Schwartz Center NCCY Award finalist

Conditions, Patient Experiences / By

Back in April, our partners at the Schwartz Center for Compassionate Healthcare called for nominations for their National Compassionate Caregiver of the Year (NCCY) Award, a national recognition program that honors outstanding healthcare providers who display extraordinary devotion and compassion in caring for patients and families. This year’s expansion of the award marks the award’s 16th

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The American College of Cardiology and PatientsLikeMe to Bring Patient Focus to Diabetes Research and Care

Conditions, Diabetes / By

Real-world, clinical insights and patient engagement central to improving health outcomes  WASHINGTON and CAMBRIDGE, MASS., November 9, 2015—The American College of Cardiology (ACC) and PatientsLikeMe have launched a partnership to explore innovative ways to make real-world patient feedback and experience more central to diabetes research and care. Focused on the ACC’s Diabetes Collaborative Registry®, the partnership

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Epilepsy Awareness Month: The value in helping others

Conditions, Epilepsy, Patient Experiences / By

It’s November, which means it’s Epilepsy Awareness Month. During our #NotAlone campaign, we shared how PatientsLikeMe member Letitia’s experience on the site helped her feel less alone in living with epilepsy. Letitia (Letitia81), a member of our 2014-2015 Team of Advisors, explains: “I enjoyed connecting with others suffering from seizures and exchanged ideas about diagnostic

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