Last month, some of our PatientsLikeMe team members journeyed from Boston to New York City for the National Psoriasis Foundation’s Walk to Cure event. Hundreds of people turned out to walk on a very crisp, but sunny day. Jim Murray is on the PatientsLikeMe marketing team and shared his experience with everyone at the office when he got back.
“It was an incredibly inspiring day. One woman told us that she never misses a walk, but it wasn’t always that way. A family member convinced her to attend one of the walks a few years back, even though she was suffering from severe psoriasis and didn’t want to leave the house. She finally decided to go, and said that it brought tears to her eyes to see and connect with others just like her. She hasn’t missed a walk since.
There was another woman who has a 26-year-old son with psoriasis. She said he was too embarrassed and depressed to come with her to the event, but she came anyway, to learn how others cope with the same emotions her son is experiencing.
Everyone who we spoke to said that connecting with others who understood what they were going through positively impacted their lives; that talking to someone who could truly relate was important. We also heard many saying that they wanted to get more involved in the healthcare process by sharing their experiences in research.”
If you’re living with psoriasis, find others just like you in our growing community of almost 4,000 psoriasis patients on PatientsLikeMe. Learn what they’re doing to manage their condition with symptom and treatment reports, and share your own experience with a personal health profile or in the community forum.
CAMBRIDGE, Mass.— June 6, 2013—PatientsLikeMe has named Marcia Nizzari Vice President of Engineering. In this role, Marcia creates the blueprint for future platform developments and oversees all engineering projects. A member of the management team, Marcia reports to Chief Operating Officer Sebastiaan Foppema.
“Marcia has joined the team at a time when we’re evolving our website to meet emerging patient needs and securing more partner projects,” said Foppema. “Her software expertise and technical management experience will be instrumental to ensuring we align our resources with the best interests of patients and partners.”
Marcia joined PatientsLikeMe from molecular diagnostics lab Good Start Genetics, where she was the Director of Bioinformatics and High Performance Computing/IT responsible for software engineering, informatics, and IT personnel. Before that, Marcia was Director of Informatics for the Program in Medical and Population Genetics at the Broad Institute of the Massachusetts Institute of Technology (MIT) and Harvard University. She has also held senior supervisory roles at Cambridge Research & Instrumentation (now part of PerkinElmer) and Thomson Financial. Marcia holds a Master of Science degree in Computer Science from Boston University and a Bachelor of Music degree in Performance from the New England Conservatory of Music.
PatientsLikeMe® (www.patientslikeme.com) is a patient network that improves lives and a real-time research platform that advances medicine. Through the network, patients connect with others who have the same disease or condition and track and share their own experiences. In the process, they generate data about the real-world nature of disease that help researchers, pharmaceutical companies, regulators, providers, and nonprofits develop more effective products, services and care. PatientsLikeMe is a trusted source for real-world disease information and a clinically robust resource that has published more than 30 peer-reviewed research studies. Visit us at www.patientslikeme.com or follow us via our blog, Twitter or Facebook.