November 2012

Working Together for an AIDS-Free Generation

Saturday, December 1st, is World AIDS Day (hashtag #WAD2012), a time for re-upping your vigilance and awareness levels about HIV/AIDS.  The global AIDS crisis is not over until an AIDS-free society is achieved, and unfortunately, we’re not there yet.  That’s why the US theme for World AIDS Day 2012 is “Working Together for an AIDS-Free […]

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PatientsLikeMe at the 2nd Annual White Coat Affair for ALS TDI

On Friday, November 2nd, several PatientsLikeMe team members donned their finest to attend the 2nd Annual White Coat Affair, a charity gala benefiting the ALS Therapy Development Institute (ALS TDI).  Founded by PatientsLikeMe Co-Founder and Chairman Jamie Heywood in 1999, ALS TDI is the world’s most advanced research laboratory dedicated to ALS, also known as Lou Gehrig’s

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Honoring Family Caregivers Everywhere

Is there a caregiver in your family?  For example, someone who looks out for an elderly parent or grandparent – or who cares for a child or spouse with a debilitating illness? November is National Family Caregivers Month, a time for recognizing the important role of family caregivers in our society as well as the

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What’s Positive About Disease?

It may seem counterintuitive, but according to some of our members, there are actually some good things that can come out of being diagnosed with a serious illness.  In the spirit of Thanksgiving – a time when many people are reminded of all the things they have to be grateful for – we thought we

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Up Your Awareness of GERD Before Chowing Down This Thanksgiving

GERD Awareness Week, now in its 14th year, takes place November 18-24, 2012.  Yes, the week of Thanksgiving. Given that many Americans celebrate this holiday with big meals (followed by seconds and thirds!), it’s the perfect time to spread the word about gastroesophageal reflux disease (GERD), which can cause chronic heartburn and acid regurgitation as well

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Join the “Now I Know” Video Campaign for National Epilepsy Awareness Month

“Today [my son] Jake is living a wonderful life, an extraordinary life, and now I know that’s possible.  When Jake was first diagnosed, we didn’t know that.  Now I know that…and that we’re not alone.” – Actor Greg Grunberg, father of a 16-year-old with epilepsy When it comes to epilepsy, what do you know now

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PatientsLikeMe’s Paul Wicks Is a TED2013 Fellow

We are thrilled to announce that PatientsLikeMe Research & Development Director Dr. Paul Wicks, PhD, has been named a TED2013 Fellow.  He is one of 20 individuals to be selected from more than 1,200 candidates to attend the TED2013 conference in Long Beach, California, participate in a preconference bootcamp and receive mentoring from the TED

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PatientsLikeMe Inducted into the Healthcare Internet Hall of Fame

Perhaps you’ve heard of the Basketball Hall of Fame.  Or the Rock and Roll Hall of Fame.  But did you know there’s a Healthcare Internet Hall of Fame? Formed in 2011, the Healthcare Internet Hall of Fame was established “to honor individuals and organizations that have made outstanding, long-lasting contributions to the healthcare Internet industry”

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Searching for a Diagnosis: An Interview with Lyme Disease Patient Pampe

Getting the right diagnosis can take many years, or in the case of PatientsLikeMe patient Pampe, many decades.  After experiencing her first Lyme disease symptom in 1973, it was not until 2012 that she finally received a diagnosis that explained her many symptoms.  Discover what hindered the process and what’s she learned along the way

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What We’re Reading at PatientsLikeMe

Here are some of the media items that grabbed our attention recently. Four Things I Learned from Living with a Chronic Illness Wise advice from a teenager who had to give up competitive gymnastics and find a new perspective on life after being diagnosed with a disease that causes chronic pain. Access to Doctors’ Notes

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