July 2012

Marcia Hirst: Don’t Let Multiple Sclerosis Take the Joy Out of Your Life

“The benefit of sharing on PatientsLikeMe is the support.  For me, it doesn’t matter what I’m going through, there are people there that understand.  They’re not judgmental.  They get it.  They’re there too.  I get lots of emotional moral support.” – Multiple Sclerosis Patient Marcia Back in June, we shared with you a video interview

Marcia Hirst: Don’t Let Multiple Sclerosis Take the Joy Out of Your Life Read More »

PatientsLikeMe in the News: A Roundup

Check out some of the media outlets that have highlighted health social networks recently – including PatientsLikeMe and our members. Social Media a Godsend for Patients with Rare Diseases PatientsLikeMe is highlighted as a good example in this Chicago Tribune article. Medical Innovation Needs Silicon Valley Speed, Stat Fast Company cites us for providing “unprecedented

PatientsLikeMe in the News: A Roundup Read More »

PatientsLikeMe Researchers Score a Hat Trick

The term “hat trick” originated in 1858 after English cricketer HH Stephenson successfully bowled out three batsmen with consecutive bowls and he was presented with a hat to commemorate his feat. In June, PatientsLikeMe’s research team scored a hat trick of our own by publishing three new studies in scientific journals in just four days,

PatientsLikeMe Researchers Score a Hat Trick Read More »

The Importance of Open Access: An Interview with Patient Advocate Graham Steel

A native of Glasgow, Scotland, Graham Steel is a longtime “Guest Researcher Member” of PatientsLikeMe.  Following the death of his brother Richard at the age of 33 from a rare condition known as variant Creutzfeldt-Jakob Disease (vCJD), Graham became involved in patient advocacy work, and most recently, in lobbying for open access to published scientific

The Importance of Open Access: An Interview with Patient Advocate Graham Steel Read More »

Scroll to Top