June 2012

Learning Your Personal Genetics: An Interview with PGen Study Participant PF Anderson

5 Comments / Research / By

Recently, PatientsLikeMe sent a message to our members about an opportunity to participate in the Impact of Personal Genomics (PGen) Study, led by researchers at Harvard and the University of Michigan.  Each of the 1,000 study participants receives personal genomic testing services at a significantly subsidized discount.  Using a series of surveys, the investigators will […]

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PatientsLikeMe Adds Three New Executives to Its Leadership Team

Patient Experiences / By

New Appointments Cap Active Year, Solidify Team for Strategic Growth CAMBRIDGE, Mass. — Jun 27, 2012 — PatientsLikeMe, the leading health data-sharing website, announces the appointment of three new executives to its leadership team.  The company, which recently expanded its website to invite patients with any disease, makes this move to focus on expanding the collection and use

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Quote of the Day: Jamie Heywood

1 Comment / Patient Experiences / By

“People often think of PatientsLikeMe as a social network, and I think what they miss is the fundamental part of our invention. What we’re really building is the first medical record designed to answer questions directly for patients. Not to do billing, not to do some other component of the healthcare system. To actually answer questions for patients. Paul Wicks,

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A Peek at the June Newsletter for Members

1 Comment / ALS, Fibromyalgia, Parkinson's Disease, Patient Experiences / By

What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our June edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to

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A Day in the Life of PatientsLikeMe Product Manager Maureen Oakes

Mental Health, Patient Experiences / By

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments.  So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava, Office Manager Alison Dutton,  Research Scientist Timothy Vaughan and Biz Dev’er Arianne Graham.  Today

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Today’s Photo: Raising Epilepsy Awareness on the National Mall

1 Comment / Epilepsy, Patient Experiences / By

Summer is here, and that means there are disease-related walk/run events happening all around the country! For inspiration, please meet epilepsy patient Monica (second from right), who led a PatientsLikeMeInMotion-sponsored team at the National Walk for Epilepsy in Washington, DC.  Held on March 31, 2012, the two-mile walk occurred between Madison and Jefferson Drives on

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