March 2012

Love Your Scars: An Interview with Transplant Recipient Amy Tippins

After five years of dealing with undiagnosed multiple hepatic adenomas (hemorrhaging tumors), PatientsLikeMe member Amy Tippins underwent a liver transplant in 1993.  Two years ago, she received a ligament allograft using donor tissue.  How does she feel about it all today?  Check out our interview with this transplant activist to learn how these experiences led […]

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Today’s Photo: A Celebration of Solidarity

The weather is warming up, and calendars are filling up.  That means it’s time to starting thinking about spring walk/run events for your health condition! For inspiration, please meet multiple sclerosis patient NewLife (center), who led a PatientsLikeMeInMotion-sponsored team at Walk MS in St. Louis, Missouri.  Including a monetary donation from PatientsLikeMe, NewLife and her

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What Do You Know About Endometriosis?

March is Endometriosis Awareness Month, which means it’s a good time to brush up on this common women’s health problem.  For example, did you know that endometriosis gets its name from endometrium (en-doh-MEE-tree-um), the tissue that lines the uterus?  Or that this often painful condition occurs when that tissue begins to grow in other places,

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A Day in the Life of PatientsLikeMe Office Manager Alison Dutton

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features various employees from different departments.  So far, we’ve featured people like User Experience Engineer Cris Necochea and Research Assistant Shivani Bhargava.  Today, we share our interview with Office Manager

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Recognizing Multiple System Atrophy (MSA Parkinson)

In observing Rare Disease Day at the end of February, we talked how there are 7,000+ conditions that are categorized as rare diseases due to their lower prevalence (less than 200,000 people in the US).  Today we’d like to spotlight one of these lesser-known conditions:  multiple system atrophy (MSA), which affects 536 PatientsLikeMe members and

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Interview with Dr. Dee Kite, Author of “The Dumbest Things Smart People Say to Folks with MS” (Part II)

In Part I of our interview, we learned how Dee came to write The Dumbest Things Smart People Say to Folks with MS, how PatientsLikeMe’s MS Community was a critical part of her research and, most importantly, her “top three dumbest things” not to say. Today we find out more about Dee’s personal journey with

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Interview with Dr. Dee Kite, Author of “The Dumbest Things Smart People Say to Folks with MS” (Part I)

Continuing our observance of MS Awareness Week, we’d like to introduce you to longtime PatientsLikeMe member Dr. Dee Kite (“CoachDee”), who has been living with multiple sclerosis (MS) for over 23 years. A life coach who specializes in MS patients, Dee became interested in social awareness, or how best to talk and interact with a

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MS Awareness Week: Real-World Descriptions (and a Poem!) from Our MS Community

We kicked off MS Awareness Month by sharing some key facts we’ve learned from our MS community (26,000+ members and counting).  Now, we are digging a bit deeper in honor of MS Awareness Week.  You’ve already heard about common MS symptoms as well as frequent topics in our MS forum.  But what it is really like to

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Meet ALS “Treat Us Now” Steering Committee Member Tom Murphy

You may remember our interview with ALS advocate Debra Quinn from last fall.  Today, we’d like to introduce you to another ALS patient activist in our midst:  Tom Murphy, a PatientsLikeMe member since January 2011.  As part of the ALS Treat Us Now nonprofit group, Tom and several other ALS patients around the country have

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