14 posts from July, 2011

Taking It to the Streets: The Spring PatientsLikeMeInMotion Report

Posted July 6th, 2011 by

PatientsLikeMeInMotion - Team Sponsorship Program for Disease-Related Run/Walk/Bike Events

Every year, PatientsLikeMe sponsors run/walk/bike teams around the country through PatientsLikeMeInMotion.

Led by a three-star member – someone with a complete health profile at PatientsLikeMe – each team receives bright blue PatientsLikeMe t-shirts, business cards and a donation towards their fundraising goal. Some of the events our members participate in include the Parkinson’s Unity Walk, the National Walk for Epilepsy (Epilepsy Foundation), the Walk to Defeat ALS (ALS Association) and Walk MS (National MS Society).

What’s happening this year?  2011 is off to a great start with 30 sponsored teams as of the end of June.  When you compare that to two years ago – when we sponsored around 40 teams for all of 2009 – you can see how the PatientsLikeMeInMotion program has grown.  Wondering whether any of these spring teams were raising awareness for your condition(s)?  Here’s the list of conditions represented for 2011 thus far:

We’re thrilled to support our members in this way, and we especially love seeing the positive connections that are forged when our members meet “offline” at these uplifting events.  That’s why we’ve asked PatientsLikeMeInMotion team members to submit their favorite photos from recent events.  Check out our Spring 2011 PatientsLikeMeInMotion Flickr Slideshow to see the enthusiasm firsthand:

We’ve also gotten some wonderful messages from team leaders this year that illustrate the impact of the program:

  • “Thanks so much for everything, I can’t wait to give the team their shirts and wear them with pride.  You all are awesome.”
  • “Thank you for sponsoring me in Walk MS! I am so grateful for your support, which brings me one step closer to achieving my fundraising goal. More importantly, it brings us one step closer toward a world free of multiple sclerosis.”
  • “Our team enjoyed the t-shirts and stood out in the crowd in the bright turquoise. We also enjoyed answering questions from those who asked about the t-shirts and the website, about which we gladly shared information!”

Organizing a run/walk/bike team for late summer or fall? Sign your team up for PatientsLikeMeInMotion sponsorship today. (Please allow 3-4 weeks lead time.)

PatientsLikeMe member mcotter


A Peek at Our June Newsletter for Members

Posted July 1st, 2011 by

What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our June edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to over the last few rather eventful months, and if you are member who’s not opted in to the newsletter, sign up today.

MONTHLY MUSINGS

How do you find a clinical trial that’s right for you?

There are currently more than 30,000 actively recruiting clinical trials in the US. How do you stay on top of which ones you might be A) interested in, B) eligible for and C) within driving distance of?

PatientsLikeMe's Advanced Search Options for Clinical Trials

It sounds like a tall order, but thanks to our new clinical trial search feature, it’s not. Now, you can search real-time listings on our Clinical Trials page (which pulls directly from ClinicalTrials.gov) and bookmark any trials of interest. Beyond parameters such as disease, age, gender and zip code, our search filters allow you to customize your search by keyword, trial phase, type of intervention and the distance to the nearest trial site.

Clinical Trials Link on Every Patient Profile

Too busy to do regular searches? No problem. We have added a new link on your profile that shows the number of actively recruiting trials you may be eligible for based on your profile data. That way, you’ll get a heads up any time you log on to your profile. Simply click through to see what they are, who else at PatientsLikeMe may be eligible, where the study locations are (in helpful map form) and how to enroll.

Sounds easy, doesn’t it? We thought that’s how it should be, which is why we’ve been working hard to make this feature to available to you. Turns out others think it’s a pretty great idea too. We were recently honored with the “Best in Show” award at the 2nd Annual Health Data Initiative Forum for this innovative service.

THIS MONTH’S SITE IMPROVEMENTS

We are constantly working to improve our site. In this section, we’ll keep you up-to-date on new tools and features designed to make your PatientsLikeMe experience even better.

Here are our top functionality enhancements for June:

New Alert Tools for Saved Patient Searches

Ever wonder if any new patients like you have joined the site? Now you can be alerted by email when there are new results to a saved patient search. Simply click the alert button (the bell icon) next to your saved search to receive notifications.

For instance, want to know when a new patient taking a particular treatment joins? Easy. Create a saved search for that treatment and click the alert button.

PatientsLikeMe "Checkup" Reminder Emails

The best way to see how your treatments, symptoms and conditions are affecting your overall health is to keep your profile up-to-date. Sign up today to receive reminder emails that make it quick and easy to keep your profile current. If you already receive these notifications, you’ll see we’ve updated them a bit.