14 posts from July, 2011

Remembering Jimmy V

Posted July 14th, 2011 by

the-v-foundation-for-cancer-research-the-v-foundation-for-cancer-researchIf you’re a longtime college basketball fan, you definitely know Jim Valvano (“Jimmy V”), the beloved former NC State basketball coach and award-winning broadcaster. Valvano’s battle with bone cancer galvanized the sports world, leading to the creation of the The V Foundation for Cancer Research by ESPN and Valvano in 1993. 18 years later, the foundation has raised more than $100 million for cancer research.

July 3rd through 13th marked “V Week,” when The V Foundation raises research funds each year in honor of Valvano with the ESPY Celebrity Golf Classic and an auction of signed sports memorabilia and one-of-a-kind sports experiences. If you listen to ESPN Radio, you may have heard them auctioning off these great sports items over the last 10 days.  The auction has now ended, but you can still make a donation at any time.

Finally, if you haven’t already seen it – or it’s been a while – this is also the perfect time to watch Valvano’s famously moving ESPY Awards speech, in which he announced his foundation and gave it his trademark mantra – “Don’t give up, don’t ever give up” – just eight weeks before his death. It’s a speech that will make you laugh, cry and think, all three things that Valvano argues make for a full day and a full life.

Media Roundup: PatientsLikeMe in the News

Posted July 12th, 2011 by

PatientsLikeMe was recently highlighted in three national media outlets: CBS News, BNET and The Washington Post. See below for an excerpt of what each said about us.

CBS News, "Health 2.0?  7 apps and sites that may save your life."

CBS News
Health 2.0? 7 apps and sites that may save your life.
“With information on more than 500 conditions, the crowdsourced research site [PatientsLikeMe] provides treatment and symptom reports, as well as a forum to help patients find social support. More than 100,000 people have created profiles on the site to connect with other patients.”

Want a strong digital strategy? Stop focusing on technology.
Digital Marketing Strategy #10: Gain customer insight. Drug maker UCB helped launch an online community for epileptics within PatientsLikeMe, in order to gather data about comparative effectiveness of different therapies, understand quality of life for patients, and measure drug safety and side effects.”

The Washington Post
The do-it-yourself healthcare revolution gets a boost.
“With PatientsLikeMe.com, patients now have an online social network for interacting with others who have similar symptoms, all of whom are seeking the same cure. The goal is to be able to crowdsource a cure by pooling together the data about their symptoms and sharing information about the side effects from treatments in an informal community.”

For all media coverage of PatientsLikeMe, visit our Press page. Or set up your own Google RSS feed for PatientsLikeMe.