June 2011

Improving the Clinical Trial Process with Shared Data

“Today is a day of massive celebration of what health innovators have done,” said US Department of Health & Human Services’ Chief Technology Officer Todd Park this morning as he welcomed everyone to the 2nd Annual Health Data Initiative Forum (or “Health Data-Palooza,” as Park called it). The goal? To create “a self-propelled, open ‘ecosystem

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Being an Advocate for ALS

Last month, we had the opportunity to interview PatientsLikeMe member t1961, who attended ALS Advocacy Day, held May 8-10, 2011, in Washington, DC. What does it mean to advocate for your disease on Capitol Hill? How can you personally make a difference? Check out the interview below to learn why this ALS patient felt the need

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One for All: The Opportunity to Make Patients’ Lives Better

“Patients are giving us their data, and we need to honor that by doing something that advances their disease, their cause, their power in the world.” – Jamie Heywood This week marks the fourth and final installment of our latest video series, which explores what the recent changes at PatientsLikeMe mean for you as well

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PatientsLikeMe “Express Yourself” Video Contest: Voting Ends Tomorrow!

Have you voted yet? Tomorrow, June 3, is the last day for you to decide the winner of the first-ever PatientsLikeMe “Express Yourself” Video Contest. We asked, “How has PatientsLikeMe changed your life?” to our members, and they have responded with creative and amazing videos that the entire world can now see. Five winners will

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