January 2011

Probiotic Users: Have You Experienced AccuFlora Side Effects?

At PatientsLikeMe, where more than 115,000 patients are sharing their experiences with prescription drugs, supplements and more, 20 patients report taking the probiotic AccuFlora while zero patients report experiencing AccuFlora side effects.  In addition, zero patients report discontinuing the supplement as a result of AccuFlora side effects.  The seven patients who have stopped taking AccuFlora […]

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Comparing Our Transplants Community to the UNOS/OPTN Databases

Last November (2010), PatientsLikeMe was fortunate to have the opportunity to showcase our research at the world’s largest gathering of kidney and kidney transplant professionals.  The American Society of Nephrology (ASN) annual meeting is the premiere event platform for debuting revolutionary treatments, cutting-edge technological breakthroughs and top research findings. PatientsLikeMe presented a poster about our

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Aligning Interests: A PatientsLikeMe Year in Review (Part VII – Business Development)

2010 was a strong year for business development at PatientsLikeMe.  Our goal was – and continues to be – to align patients’ needs with industry interests in order to maximize interaction between the two.  Here are a few of our successes and challenges over the year. Successes 1.  New Partnerships, New Communities In the first

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Rising Together: A PatientsLikeMe Year in Review (Part VI: Nonprofit Partnerships)

Why does it feel like “second nature” for PatientsLikeMe to create innovative partnerships with nonprofits?   Nonprofit organizations are dedicated and centered around putting patients first – a concept that’s near and dear to us too.  In 2010, we focused on refining our nonprofit partnerships to bring more events and programs to patients, both online and

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How Would You Rank Your Ability to Relate to Others?

Many patients say they feel alone and isolated due to their health conditions – while others report the ability to relate to others well.  We’ve also heard from a number of patients that being diagnosed with a serious illness has increased their compassion and understanding of others with health problems. At PatientsLikeMe, we believe the

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Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)

With every new member at PatientsLikeMe, there is more data generated for research, more dialogue about individual experiences, and a more expansive support network.  Additionally, with more patients we can become the world’s largest and loudest representative of the patient voice.  To that end, our job in marketing is to share your stories and tell

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Tech Talk: A PatientsLikeMe Year in Review (Part IV – Tech)

The PatientsLikeMe engineering team is excited to highlight some of the work that went on behind the scenes in 2010 to make this site what it is today.  We tend to write more specifically about our work on a separate blog (http://tech.patientslikeme.com), so feel free to follow our work there as well. In addition to

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Share and Compare: A PatientsLikeMe Year in Review (Part III – more R&D)

The research team is very proud of how our team has grown in 2010 and the impact we’ve made in the academic community.  In 2010 alone, PatientsLikeMe and our work were mentioned in scientific literature more than 133 times.  All of this is because of what you share with us. Yesterday, we highlighted some of

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Share and Compare: A PatientsLikeMe Year in Review (Part II – R&D)

The PatientsLikeMe research and development (R&D) team is excited about what we can all share and learn in 2011.  Here’s a look back at some of what patients like you shared with us, and what we then shared with the world, in 2010. The R&D team published and presented some unprecedented insights based on what

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One for All: A PatientsLikeMe Year in Review (Part 1)

Thanks everyone for a great 2010.  As we kick off the New Year, PatientsLikeMe would like to take a quick look back at the road we’ve traveled together this year.  We think of all these improvements as laying the groundwork for even more exciting changes to come in 2011. At the start of 2010, we

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