Four years ago this Spring, PatientsLikeMe launched the ALS community with very specific goals in mind – to help patients like you take control of your disease, share and learn from one another, have a voice in real-world research and inform the companies that make your drugs and can improve your care. Together, we have […]
ALS Awareness 2010: A Four Year Journey With Our PALS Read More »
The following message was sent this morning to all members of PatientsLikeMe. Please read what we have to say about openness, sharing and its privacy implications and join the conversation. **** Dear PatientsLikeMe Members, What are the privacy implications of sharing in this open, online community? We talk a lot about this and, as a
Transparency, Openness and Privacy Read More »
Did you know there are more than 4,500 patients in the PatientsLikeMe ALS community sharing and learning from each other every day? Outside of our community, patients are also teaming up to raise awareness and money for ALS research. Here is a highlights video of ALS members who have participated in our PatientsLikeMeInMotionTM program, stepping
ALS Awareness Month: ALS Patients Are “In Motion” Read More »
We are proud to announce a new partnership between PatientsLikeMe and the National Kidney Foundation serving New England. In the beginning stages of developing the PatientsLikeMe Transplant Community, we worked together with the National Kidney Foundation serving New England to give interested patients an opportunity to share their transplant journey and help shape this new
PatientsLikeMe Teams Up With The National Kidney Foundation Serving New England Read More »
It’s ALS Awareness Month! Did you know there are more than 4,500 patients with ALS (PALS) in PatientsLikeMe’s flagship community? We’ll be updating you all month on what is being learned by and from our PALS, so stay tuned. To kick us off, here is an interview with one of our long-time, three-star members –
An Interview with DannyD to Kick-Off ALS Awareness Month Read More »
