You raised your voice, we listened. Today we launch our newest community: Fibromyalgia. This is the first in our special blog series, Voices of Fibromyalgia.
The impact of the disease on people’s lives can be enormous. People often have difficulty completing even the easiest of tasks during the painful episodes, while the fatigue can also be debilitating. Many patients with fibromyalgia struggle with presenteeism at work which can lead to disciplinary action or worse.
It’s time to take a stand. We have decided to build this fibromyalgia community because we want to capture the realities of this disease and give patients a voice. We want to research it and understand how it affects people’s lives. We want to use this data and the community to create awareness about the disease and settle the “debate” about the validity of the condition.
Let your voice be heard. Join the PatientsLikeMe fibromyalgia community, share your experiences, and let’s work together to advance the knowledge of this disease.
Today, our new community for people with fibromyalgia goes live on our site. Spread the word! Let’s bring a new level of understanding to this disease in a way that nobody else can. Next week: a blog series regarding this new community and the people in it.