7 posts from December, 2008

Introducing: Voices of Fibromyalgia

Posted December 8th, 2008 by

You raised your voice, we listened.  Today we launch our newest community:  Fibromyalgia.  This is the first in our special blog series, Voices of Fibromyalgia.

picture-1.pngThe impact of the disease on people’s lives can be enormous.  People often have difficulty completing even the easiest of tasks during the painful episodes, while the fatigue can also be debilitating.  Many patients with fibromyalgia struggle with presenteeism at work which can lead to disciplinary action or worse.

It’s time to take a stand.  We have decided to build this fibromyalgia community because we want to capture the realities of this disease and give patients a voice.  We want to research it and understand how it affects people’s lives.  We want to use this data and the community to create awareness about the disease and settle the “debate” about the validity of the condition.

Let your voice be heard.  Join the PatientsLikeMe fibromyalgia community, share your experiences, and let’s work together to advance the knowledge of this disease.

PatientsLikeMe member dwilliams

CBS Evening News, BusinessWeek, Fibromyalgia: Oh, Just Your Typical Friday

Posted December 5th, 2008 by

It’s exciting times for PatientsLikeMe!

fibronew.pngToday, our new community for people with fibromyalgia goes live on our site.  Spread the word!  Let’s bring a new level of understanding to this disease in a way that nobody else can.  Next week: a blog series regarding this new community and the people in it.

bw_255x541.gifIf you haven’t checked out the most recent issue of BusinessWeek yet, you’re in for a treat. Senior writer Catherine Arnst takes an in-depth look at how PatientsLikeMe is “changing the nature of drug research and the practice of medicine” in her article –  “Health 2.0:  Patients As Partners.”

picture-5.pngFinally, turn your channel to CBS Evening News with Katie Couric tonight to see PatientsLikeMe featured in a segment with medical correspondent Dr. Sanjay Gupta.  Part of a week-long series about patients finding medical information online, our piece will include interviews with a patient member, as well as our founders.

We have lots happening, and lots more to come!  Stay tuned…literally.

PatientsLikeMe member lscanlon