Posted by admin | November 7, 2012
Here are some of the media items that grabbed our attention recently.
Four Things I Learned from Living with a Chronic Illness
Wise advice from a teenager who had to give up competitive gymnastics and find a new perspective on life after being diagnosed with a disease that causes chronic pain.
Access to Doctors’ Notes Aids Patients’ Treatment
A new study finds that patients better understand their condition and feel more in control when they can read their doctors’ notes (something you’re legally entitled to access).
Why We Need Ecological Medicine
Do we need exposure to a diversity of bacteria and germs for optimal immune health? A thought-provoking essay about the “germ theory,” “hygiene hypothesis” and more.

Coming Next: Using an App as Prescribed
A New York Times piece about whether healthcare apps – now regulated by the FDA – could reduce costs and change the way we monitor health.
Help with ALS via Twitter
An article about our partner ALS Untangled and how they are applying scientific rigor to the investigation of alternative therapies in ALS, having reviewed 45 to date.
Mining the Internet for Speedier Alerts on Drugs
The Wall Street Journal examines the results of a study showing that Internet search algorithms can detect adverse events for certain drugs ahead of FDA warnings.
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Categories:
ALS, Chronic Fatigue Syndrome/ME, Conditions, Drug Safety, Epilepsy, Fibromyalgia, HIV/AIDS, Media Coverage, Mood Conditions, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Rare Diseases, Research
Tags: | Tagged: adverse events, ALS Untangled, chronic pain, doctors' notes, ecological medicine, germ theory, health apps, hygiene hypothesis, What We're Reading at PatientsLikeMe
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Posted by admin | July 2, 2012
Here are some of the media items that grabbed our attention recently.
What Air Traffic Can Teach Us About Kidney Transplants
Air traffic rules balance fairness and efficiency. Can organ waitlists do the same?
Open Access Is Not for Scientists. It’s for Patients.
A guest blog post by our R&D Director, Paul Wicks, for the Public Library of Science.

Snake Oil? Scientific Evidence for Health Supplements
A very cool health data visualization from Information Is Beautiful.
Facebook Urges Readers to Add Organ Donor Status
Are you going to add your organ donor status?
Glenn Close: Let’s End the Stigma Around Mental Illness
A great look at how we discuss mental illness – and the impact our words can have.
What are you reading? Share your recommendations in the comments section.
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Categories:
Media Coverage, Mood Conditions, Openness, Organ Transplants
Tags: | Tagged: Glenn Close, health supplements, mental illness, Open Access, organ donor status, organ waitlists, paul wicks, What We're Reading at PatientsLikeMe
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