9 posts tagged “week”

Schizophrenia: Living well and working towards a cure

Posted May 18th, 2015 by

Today marks the start of Schizophrenia Awareness Week, and what better way to begin than with the story of an inspiring woman who is living with schizophrenia and advocating for better treatments.

Dr. Elyn Saks was diagnosed with schizophrenia as a college student. At first she struggled with her diagnosis, and it took a while before she found treatments that worked for her. Ultimately she excelled in her studies and became the Chair Professor of Law at USC’s Gould School of Law. She even won a MacArthur Genius Grant for her work in mental health research and advocacy. Recently, she sat down with Brian Staglin of Brain Waves, a video program sponsored by the International Mental Health Research Organization (IMHRO). Dr. Saks talked about her experience with schizophrenia and her work for the empathic treatment of people with mental illness.

Dr. Saks’ story is just one of many. Schizophrenia affects 2.5 million adults in the United States alone, and thousands more have not been officially diagnosed.1 Schizophrenia can be difficult to recognize, as some of the symptoms, like mood swings, impulsive behavior and hallucinations (seeing or hearing things that aren’t there), are common in other mental health conditions. Schizophrenia may also be mistaken for depression, since some people with schizophrenia have a flat mood and slowed speech, or they withdraw from friends and family.2

Stay tuned for a special “In My Own Words” entry from a PatientsLikeMe member.  And if you’ve been diagnosed with schizophrenia, join more than 700 others in the online community.

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What do you know about getting enough sleep?

Posted March 2nd, 2015 by

That’s what the National Sleep Foundation (NSF) is asking during Sleep Awareness Week to help everyone better understand why sleep matters. And what you know probably depends on your own experiences. Are you living with insomnia or a chronic condition that impacts your sleep? Or do you just have a restless night every once in a while?

Back in 2013, more than 5,000 PatientsLikeMe members participated in a survey about their sleeping habits, and we shared what the community helped to uncover (get it!?) in a series of infographics on the blog. Nearly a third of respondents never (5%) or rarely (25%) got a good night’s sleep, and almost half (44%) frequently woke up during the night. Poor sleep is the norm for people living with life-changing health conditions, and it affects everything from driving to relationships and sex – view the infographics here.

To help launch Sleep Awareness Week, the NSF released their “Sleep in America” poll results today, including the 2015 Sleep and Pain survey, which looked to find if stress and poor health were related to shorter sleep durations and lower quality sleep. The poll found that:

  • Greater stress was associated with less sleep and worse sleep quality
  • Pain was related to greater sleep debt – the gap between how much people say they need and the amount they’re actually getting1

For everyone living with these sleep issues, you can help raise awareness this week on social media through the #SleepWeek hashtag. And if you’d like to share any PatientsLikeMe infographics or results, please use the #areyousleeping hashtag.

If you’ve been struggling with sleep, read what PatientsLikeMe members Lori (living with idiopathic pulmonary fibrosis) and Marcia (living with multiple sclerosis) had to say about their insomnia. And don’t forget to reach out to the community in the Sleep Issues forum on PatientsLikeMe – over 40,000 members are sharing about everything related to their sleep.

Share this post on Twitter and help spread the word for Sleep Awareness Week.


1 http://sleepfoundation.org/sleep-polls-data/2015-sleep-and-pain