When Jackie was diagnosed with multiple sclerosis after a long, exhausting process, she struggled with a fear of the unknown and had no idea what she would be facing. But then she connected with the thousands of MS members on PatientsLikeMe. Jackie shared with the community about how she felt her current medication was making matters worse instead of better, and others responded with how they had the same experience. They told her about a new medication that seemed to be working for some of them. Jackie’s doctor prescribed it after she mentioned what others had shared, and she’s been having good luck with it ever since. Watch the video to see more of her journey.
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- Filed Under: Multiple Sclerosis, Openness
- Tags: data, dataforgood, for, good, Jackie, multiple, multiple sclerosis, neurological, patient, patient voice, patient_interview, sclerosis, seizure, surgery, the, The Patient Voice, voice
What would you do if you were living with seizures from epilepsy since you were ten years old? And you weren’t even able to drive a car? Letitia turned others living with epilepsy on PatientsLikeMe and shared about her journey in a recent video. Watch above to see her inspiring story, and how she’s helping others through her own experiences and the data she’s donating on PatientsLikeMe.
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- Filed Under: Epilepsy
- Tags: data, dataforgood, Epilepsy, for, good, Leticia, patient, patient voice, patient_interview, seizure, surgery, the, The Patient Voice, voice