11 posts tagged “sleep”

Sleep and Daylight Saving: 3 ways to spring forward with confidence

Posted March 10th, 2017 by

Daylight Savings adjustment

Daylight Saving Time is here again. This Sunday, March 12th, clocks will move forward one hour from 2:00am to 3:00am. While the hour change may seem small, it can have a big impact on sleep and health.

Want to hit snooze? You might feel sleepier than usual Monday morning since the average person sleeps 40 minutes less the night following spring Daylight Saving Time than usual. From taking medication at the same time every day to finding the energy for an afternoon walk, many people rely on daily routines to manage their condition. For some, losing an hour of sleep can throw off more than just a sleep cycle.

Here are a few tips from the National Sleep Foundation to prepare yourself so you can stay on track and spring forward with confidence:

  1. Make sure you’re caught up on sleep. If you’re already sleep-deprived when Daylight Saving Time comes, it’s going to hit you harder than if you’ve been regularly getting seven to nine hours a night. So, in the week leading up to the time change, pay special attention to clocking the right amount of shut eye.
  2. Use light to your advantage. Light affects your sleep cycle. So, whenever possible, head outside early in the mornings and soak in some sunlight. At night, make sure you dim your lights when you want to signal to your body that it’s time to go to sleep and avoid staring at computer screens late in the day.
  3. Rethink your evening activities. Tweaks to your nighttime routine can help you drift off more easily—something that’s tough to do when you spring forward. A few important ones: Limit caffeine and alcohol intake in the hours leading up to bedtime and don’t schedule a nighttime workout.

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Sleep health: An interview with Dr. Lisa Shives from the National Sleep Foundation

Posted July 20th, 2016 by

 

How much do you know about sleep health? We’re digging deeper into how sleep relates to chronic illnesses in a new collaboration with the folks at the National Sleep Foundation (NSF), who are dedicated to improving health and well-being through sleep education.

To kick things off and share what NSF is all about, we sat down for a chat with board member Dr. Lisa Shives. Dr. Shives has extensive clinical experience treating sleep-related disorders like sleep apnea, insomnia, narcolepsy, restless legs syndrome, and circadian rhythm disorders. See what she says below about the role of sleep in medicine and how sleep quality affects other health conditions.

Tell us a little bit about what you do and how you became interested in the study of sleep.

I became interested in sleep disorders because I was so sleep deprived as a medical student and resident. That experience made me take sleep very seriously and deepened my empathy for patients with sleep problems.

What do you think is the biggest misconception about sleep disorders?

I think the biggest misconception is that people think that people with “sleep problems” (usually meaning insomnia) are just anxiety-ridden or Type A personality types. — that they just need to relax and get into some good bedtime habits and then they would sleep fine. For people who do not have sleep/wake problems, sleep is the easiest thing in the world. They can’t understand how elusive a good night’s sleep can be.

You’ve managed clinical research studies that focus on sleep disorders, the effects of diet and exercise on sleep, and metabolic and cardiovascular abnormalities associated with sleep disorders. What can you tell us about how sleep disorders affect other conditions?

We have known for years that sleep apnea increases the risk of cardiovascular disease, but now we have evidence that short or poor sleep for any reason also increases the risk of diabetes and weight gain due to the metabolic disturbances that are caused by poor sleep.

For you, what’s the most interesting part of your work? The most interesting discovery that’s come out of your work?

For me, the most interesting recent discovery is that poor sleep or even sleeping at the wrong time deregulates metabolic and hormonal processes. It’s a major contributing factor to the chronic conditions that make up the bulk of the disease burden in modern society: cardiovascular disease, hypertension, diabetes, and obesity.

What role is the study of sleep currently playing in medicine? And how do you see that evolving in the years to come?

I am happy to report that I see a growing awareness among my colleagues in the other fields that sleep is just as important as diet and exercise.

What’s your best piece of advice for patients living with sleep disorders alongside other chronic conditions?

Don’t accept that nothing can be done about your sleep problem. Just because it is common for people with your medical problem to have a sleep disorder does not mean that nothing can be done to improve your sleep/wake cycle and how you feel when you are awake.

Back in 2013, more than 5,000 PatientsLikeMe members participated in a survey about their sleeping habits, and we discovered that a bad night’s sleep is the norm for people with health conditions and that lack of sleep affects them far more than the general population. What are your thoughts on this?

As I said, just because sleep disorders are common among people with certain conditions, that does not mean that the sleep/wake cycle cannot be ameliorated. My advice is that patients should talk to their primary care physicians and sometimes seek out a trained sleep specialist to help them sleep better and feel more alive in the daytime.

 

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Throwback Thursday: Are you sleeping?

Posted July 9th, 2015 by

It’s time for another Throwback Thursday, and today, we’re rewinding back to the summer of 2013, when the staff at PatientsLikeMe shared about how they sleep. Sixty one employees helped kick off the “Are you sleeping?” campaign in a quick poll, answering questions about how long and how well they sleep each night. Check out the highlights below:

How well are you sleeping?
All in all, we found that the majority (89%) of our staffers were sleeping OK or better.

How well are you sleeping?

 

On average, how much sleep do you get every night?
Although our Zzzz’s were OK, 61% of respondents were only getting between 5-7 hours a night (and according the Center for Disease Control and Prevention, that’s way less than the recommended 7-8 hours for adults).

How many hours?

 

Do you have a problem…
For those who confessed to having sleep troubles, more people said it’s staying asleep that was the issue (77%).

sleep problems

 

What have you tried to help you fall asleep?
When it came to needing sleep aids to catch Zzzz’s, more of our employees turned to solutions like books (60%), lifestyle changes (50%), TV (31%), relaxation (31%) and sex (33%). Some tried over-the-counter interventions (22%), prescriptions (16%) and homeopathic techniques (14%). We also asked what was least helpful, and found ‘watching TV’ topped that list.

Tried to fall asleep

 

Since joining the PatientsLikeMe team, do you…
And last but not least, since joining the PatientsLikeMe team, only a handful had changes in their sleep, with 13 people saying they slept less (23%), and surprisingly, 5 (8%) actually slept more.

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If you’ve been struggling with sleep, read what PatientsLikeMe members Lori (living with idiopathic pulmonary fibrosis) and Marcia (living with multiple sclerosis) had to say about their insomnia. And don’t forget to reach out to the community in the Sleep Issues forum on PatientsLikeMe – over 40,000 members are sharing about everything related to their sleep.

Share this post on Twitter and help spread the word for sleep and insomnia.


Visualizing insomnia

Posted July 2nd, 2015 by

Jenna Martin is a photographer living with insomnia, and her sleeplessness is the inspiration behind much of her work. Much like the Seeing [MS] campaign, she tries to visualize her experiences through unique photographs that capture what it feels like to manage bouts of insomnia.

Her photographs were recently featured in the Huffington Post, and as she told the organization, “on average, I only get a few hours of sleep every three days or so. During a bad bout, I’ll go close to five days with no sleep. When that happens, reality and the dream world become switched in a way: reality is very hazy and hard to remember, and any sleep I do get has dreams that are incredibly vivid. Everything starts to blend together; I’ll begin seeing things from a third person perspective and it’s hard to tell if I’m awake or if I’m dreaming.”

Check out some of her pictures below, and see more of her work on her Facebook page.

Jenna Martin Photography

Jenna Martin Photography

Jenna Martin Photography

If you are living with insomnia, you’re not alone – over 2,200 people on PatientsLikeMe know what you’re going through. You can also visit the Sleep Issues forum to ask questions and learn more about sleep (or lack thereof).

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“We have become 24/7 creatures in a 24/7 society”: an interview on sleep with Fred W. Turek, Ph.D.

Posted May 20th, 2015 by

Dr. Fred Turek is Director of the Center for Sleep and Circadian Biology at Northwestern University. He holds a BS in biology from Michigan State University and a PhD in biology from Stanford University.

Dr.Turek’s current research focuses on the genetics of the circadian clock system, the effects of advanced age on behavioral and endocrine rhythms, the links between sleep, circadian rhythms and energy metabolism, and the role of melatonin in modulating sleep and circadian rhythms.

Said another way, he’s the expert on all things sleep-related.

Dr. Turek, during your lecture in Chicago about circadian rhythms and sleep, you talked about how modern life ‘battles’ ancient drives and Mother Nature. Could you explain more about that?
Yes, the ancient drives refer to the fact that we evolved on this planet for millions of years with one dominant feature of the environment: the relentless diurnal or 24-hour change in the light/ dark (LD) cycle, which is due to the rotation of the Earth on its axis.

This results in most of the Earth facing the sun and its light and warmth at one time of day, and later, that same part of the Earth is in dark and colder. Like all other living organisms, we evolved internal biological clocks, which have a period of “about” 24 hours (the internal clock has a circadian period that is about 23-25 hours in length). This internal clock is synchronized to the 24-hour external day night cycle, and until Edison came along about 125 years ago, the human internal clock was in lock step with the LD cycle. We were awake and active during the light/day and asleep and generally inactive during the dark/night.

However, over the last century, we have become 24/7 creatures in a 24/7 society, and we are often not paying attention to signals from our internal clock. Indeed, we are doing battle, if you will, with our internal 24-hour biological nature.

You’ve mentioned it was discovered that the daily rhythm of melatonin could influence other rhythms in animals. How has the research evolved since then?
I would say that research into the role of melatonin in regulating circadian rhythms, particularly in mammals, was slow, but has picked up speed over the last decade. While we still do not understand the overall function of the robust 24-hour melatonin rhythm (melatonin levels are low during the day and high during the night in all species, including humans), it appears to act as a mild hypnotic, at least in humans. Perhaps more importantly, it appears to act as a circadian organizer that links other 24-hour physiological and behavioral rhythms to one another.

In that Chicago lecture, you said, “When the clock stops ticking, metabolic syndrome explodes.” Can you share more about that?
That clever title came from Dr. Bart Staels in a short opinion piece he wrote for Nature soon after we published a paper in Science (2005). The paper demonstrated that animals carrying two copies of a mutated core molecular circadian gene (called Clock) can lead to the loss of all circadian rhythms, as well as increased weight and signs of the human metabolic syndrome: increased visceral obesity, insulin resistance and hypertension.

You make the point that, while the master circadian clock is located in the hypothalamus of the brain, 10-30% of the genes throughout the entire body are under circadian control. What does that mean in terms of how the “clock” affects health and disease?
Let me preface the answer to that question with a little background: Up until 10-15 years ago, researchers in the field thought a master circadian clock regulating all of our 24-hour rhythms was located in the hypothalamus, and that few other areas of the brain or peripheral tissues were capable of generating their own circadian rhythms.

With the discovery of many of the genes and their protein products that make up the molecular 24-hour clock came the surprising discovery that the molecular clock machinery was actually in all the cells, tissues and organs of the body. Equally surprising were recent discoveries indicating that this cellular circadian clock is regulating the timing over 24 hours of somewhere between 10-30% (and perhaps up to 50%) of all the expressed genes in a particular tissue or organ.

We call these genes “clock controlled genes.” What happens if that clock machinery breaks down, say in a disease state or with advanced age, in a particular tissue or organ? That is a question that we and many other laboratories are trying to answer right now. Humans, as in all animals, are not only spatially organized, we are also “temporally organized,” and a breakdown of that temporal organization, maybe only in a particular organ (lung, liver or pancreas, for example), could lead to disease in that particular tissue, even if all the other parts of the body have clocks running normally.

At one point in your lecture you went as far as to say, “I think insomnia is causing depression.” Could you elaborate on that?
I used such a direct statement since for years the importance of insomnia for causing or contributing to depression has been on the back burner of thinking in the field – with the dominant thinking being that depression causes insomnia. When I first wrote that statement, I was trying to be provocative, but in reality I believe it is likely that insomnia may be a contributing cause to at least some forms of depression, as well as perhaps increasing the severity of the symptoms of depression.

Many PatientsLikeMe members are living with conditions that may be impacted by sleep problems. Or on the flip side, their conditions might be impacting their sleep, right?
Absolutely: It is a two-way street. It is now clear that many, many mental and physical disorders are associated with poor sleep. Of course, there is the cause and effect or rather the chicken or the egg question: Which came first? In one sense, I am less interested in the answer to that question than I am in the question: If I treat poor sleep or insomnia in someone with a given condition, will I have a positive benefit for the treatment, prevention or even cure for the condition?

So, then, do you see a connection between the sleep we get and the conditions we live with?
Yes, PatientsLikeMe members should treat obtaining adequate sleep as a top priority in their lives – do not “cheat” on sleep. And if you are having trouble sleeping, perhaps due to your condition, tell your doctor about your sleep problem, and seek ways to remove that problem from your life.

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What do you know about getting enough sleep?

Posted March 2nd, 2015 by

That’s what the National Sleep Foundation (NSF) is asking during Sleep Awareness Week to help everyone better understand why sleep matters. And what you know probably depends on your own experiences. Are you living with insomnia or a chronic condition that impacts your sleep? Or do you just have a restless night every once in a while?

Back in 2013, more than 5,000 PatientsLikeMe members participated in a survey about their sleeping habits, and we shared what the community helped to uncover (get it!?) in a series of infographics on the blog. Nearly a third of respondents never (5%) or rarely (25%) got a good night’s sleep, and almost half (44%) frequently woke up during the night. Poor sleep is the norm for people living with life-changing health conditions, and it affects everything from driving to relationships and sex – view the infographics here.

To help launch Sleep Awareness Week, the NSF released their “Sleep in America” poll results today, including the 2015 Sleep and Pain survey, which looked to find if stress and poor health were related to shorter sleep durations and lower quality sleep. The poll found that:

  • Greater stress was associated with less sleep and worse sleep quality
  • Pain was related to greater sleep debt – the gap between how much people say they need and the amount they’re actually getting1

For everyone living with these sleep issues, you can help raise awareness this week on social media through the #SleepWeek hashtag. And if you’d like to share any PatientsLikeMe infographics or results, please use the #areyousleeping hashtag.

If you’ve been struggling with sleep, read what PatientsLikeMe members Lori (living with idiopathic pulmonary fibrosis) and Marcia (living with multiple sclerosis) had to say about their insomnia. And don’t forget to reach out to the community in the Sleep Issues forum on PatientsLikeMe – over 40,000 members are sharing about everything related to their sleep.

Share this post on Twitter and help spread the word for Sleep Awareness Week.


1 http://sleepfoundation.org/sleep-polls-data/2015-sleep-and-pain


Stress and sleep- PatientsLikeMe co-founder Jamie Heywood’s interview on the TEDMED blog

Posted November 6th, 2013 by

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Our co-founder Jamie Heywood was just interviewed for the TEDMED blog. Check it out! He talks more about the recent PatientsLikeMe sleep survey and some new results that show how stress can impact our sleeping habits.

 

 

 

Here’s what’s posted up on the TEDMED blog…

A new survey suggests patients’ sleep problems often go untreated

Most people with a health condition have a hard time sleeping well.  And one of the overwhelming reasons why sleep is difficult?  They’re stressed.

So say the results of a recent survey of more than 5,200 patients by the online network PatientsLikeMe. The findings make sense, right?  Yet the issue of sleep deprivation can be hard to spot and quantify among patients already suffering from other ills. Its causes are complex and varied, including factors like anxiety, pain and depression. And our specialty-centric medical system makes it difficult to design a comprehensive treatment.

PatientsLikeMe has been studying sleep issues for more than five years now, amassing patient-specific sleep data representing the experiences of 65,000 patients.  The recent survey revealed that most respondents – 64% – say they think they have a sleep problem, with over half saying they’d suffered for a year or more.

“While a common factor among the chronically ill, sleep problems are not generally on the clinical visit menu, even in questions where sleep is really critical like epilepsy,”  says Jamie Heywood, PatientsLikeMe’s co-founder and chairman and a TEDMED 2009 speaker. “There are a lot of things we think we know in medicine, but they aren’t measured in any way that allows you to do comparisons.”

Looking at multifaceted factors among a large population is one of the biggest challenges in medicine, he adds.

“Medicine stores data in largely a storytelling or narrative format, so when you talk to an endocrinologist, for example, and you ask them if their patients have sleep problems, they say a lot of them do. But they would not be able to say quantitatively how many do, or if there are treatments that are more or less effective for that population.

“We built PatientsLikeMe to advance understanding of the many variables of health across conditions” Heywood says. “Because we run these cross-condition studies, we can create much greater value than the current silo-based model creates.”

 

Stress Contributes to Sleep Problems, Makes Normal Functions Difficult

Stress was reported as one of the biggest sleep loss factors – again, a likely outcome but one with a surprising impact.  Of survey respondents who reported sleep problems of at least mild severity, 89% of women and 84% of men said their sleeping problems are caused by stress or anxiety.  And those with stress-induced sleeping problems reported that it had a significant impact on their ability to work.  (Click here for the data.)

The study aimed to measure sleep quality against the holistic backdrop of a patient’s life environment, such as work and living conditions. Going forward, PatientsLikeMe also plans to look more closely at data relating insomnia to chronic fatigue, depression, pain, and diet, and to delve into nuances such as a patient’s feelings of empowerment and how it may relate to his or her symptoms.

“These are important variables about how people live with disease,” Heywood says.  “Every one of these is a complicated sub-domain where understanding the compounding factors and context is extremely important. For us to move into this next generation of personalized medicine, we first have to understand mathematically what the human condition is.”

PatientsLikeMe also launched the Open Research Exchange this summer, an online platform to help researchers design, test and share new ways to measure diseases and health issues, and to open the research process to patient input, including developing and critiquing questions.

A traditional research model with a principal investigator collecting subjects and restricting access leads to conditions without good outcome measures, particularly those for rare diseases, Heywood says. Instead, Open Research Exchange uses crowd-sourcing concepts to help researchers develop new health outcome measures and more fully understand diseases in a patient-centered way.

“Look at the BECK Depression Inventory – that was developed in just over a week.  The idea that our whole understanding of depression is based on something that was developed in a week without patient input, and hasn’t evolved since, is just wrong. We have patients tell us all the time how to make our scales better, and now we’re going to give them the ability to do it,” Heywood says.

Jamie Heywood will be a participant at this week’s live online Google+ Hangout, discussing the causes and effects of sleep deprivation. It’s tomorrow at 2PM Eastern. Click here for more information and to register.


Trying to put insomnia to rest – An interview on sleep with insomnia patient and PatientsLikeMe member Marcia

Posted October 23rd, 2013 by

Marcia

As part of our “Are You Sleeping?” initiative, we’re talking with different patients to learn what it’s like to live with a lack of sleep and how that impacts their health. Recently, we caught up with Marcia, a PatientsLikeMe MS community member (some of you might know her as gamma) and happy grandmother of 3 who has had her fair share of experience with insomnia. Marcia talked about her initial diagnosis, her treatment with Zolpidem and general advice regarding insomnia – scroll down to see what Marcia had to say!

 

When did you first start experiencing symptoms of insomnia? Were you ever officially diagnosed?

It has been a while, I think it was early in 2009, so I would have been 49 years old. The problem began with a feeling of bugs crawling all over my skin, and the resulting itch was insane and kept me awake. I did eventually get the itchy bugs under control but the inability to sleep persisted. My primary care provider diagnosed insomnia and prescribed a sleep aid.

I noticed on your health profile that you have been taking Zolpidem since March 2009. How often do you use a prescription drug to treat your insomnia? Has it worked for you?

I did indeed take Zolpidem every night for about 3 1/2 years, and I still was not sleeping as well as I would have liked, but if I skipped a night, I couldn’t get any sleep at all. About a year ago, I noticed that the Zolpidem was no longer working, and I made the decision to wean myself from the drug. I do still have a bottle of Zolpidem sitting on my nightstand, and on those occasional nights that I am desperate and can find no other way to fall asleep I will take one.

How does insomnia impact your MS? On the flip side, how does MS affect how you sleep? 

Hmmm….that is a good question. When I don’t sleep well I find the symptoms of MS much more bothersome. When I am tired I have less patience, and it is more difficult to maintain a positive attitude. The fatigue is amplified and I have less energy to deal with even the small stuff. On the flip side, it is often the symptoms of MS that cause my inability to sleep or stay asleep. Sometimes it is pain, sometimes it is the sensation of bugs crawling on the skin. When this happens, even if I manage to reign in the symptoms, I often spend the remainder of the night awake wishing I was asleep. It becomes a vicious circle; sleep deprivation amplifies symptoms, and symptoms increase the inability to sleep.

How has connecting with others on PatientsLikeMe who live with insomnia positively impacted you?

Connecting with others has many benefits. First, it helps me remember that I am not alone with this challenge. There are others that truly understand because they too are dealing with the same thing. Also, when sharing with others, I can glean ideas from them, including coping strategies that I might not have thought of on my own. And as an added bonus, I get to forge new friendships!

If you could give one tip to people who are living with insomnia, what would it be? 

Find someone to connect with! Either face-to-face or on the web. When there is someone who truly understands and is willing to be there when you need support, it will help keep you grounded and help to keep you from going crazy. It is so easy to lose your perspective when you are so tired that you can’t focus.


Are you sleeping? – Quick poll

Posted July 8th, 2013 by

We all know that sleep impacts our daily lives and overall well-being. Here at PatientsLikeMe, we want to learn more about how sleep affects your health, and how health affects your sleep. It’s all part of our ongoing “Are You Sleeping?” initiative, so take just a second to click the quick poll below and see how you compare to others.

How well are you sleeping?

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Don’t forget to update your symptoms, including insomnia, on your PatientsLikeMe profile. And check out what some of your fellow community members are saying on the “How the PatientsLikeMe Team sleeps” forum thread.

Not a PatientsLikeMe member? Not a problem. Start your own profile for free and tell us… are you sleeping?

join-now-button

 


The “Are You Sleeping?” campaign kick off. How the PatientsLikeMe Team sleeps

Posted June 30th, 2013 by

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Sleep and its impact on our lives is one of the hottest topics on PatientsLikeMe. It’s one reason why, over the next several months, PatientsLikeMe is going to be taking a deeper look at your sleep experiences and how they affect your overall health. So, we want to know – Are you sleeping? Keep an eye out for conversations about sleep in the forums, insomnia topics in the newsletter and research surveys that will help uncover more about sleep (or lack thereof). We’ll take a look at everything you’re sharing over the next few months and tell you more about what we’re seeing (stay tuned!) There are many things that can impact our sleep, so let’s get the conversation going and start catching some more Zzzzz’s.

To kick off our “Are You Sleeping?” campaign, we recently went ‘under the covers’ with this PatientsLikeMe staff quick poll. Sixty one of us completed it and below are highlights of what we found about our teams’ own sleep. How do we compare to your experiences?

How well are you sleeping?
All in all, we found that the majority (89%) of our staffers are sleeping OK or better.

How well are you sleeping?

 

On average, how much sleep do you get every night?
Although our Zzzz’s are OK, 61% of us are only getting between 5-7 hours a night. (And according the Center for Disease Control and Prevention that’s way less than the recommended 7-9 hours for adults.)

How many hours?

 

Do you have a problem…
For those who fessed up to having sleep troubles, more people said it’s staying asleep that’s the issue (77%).  (While we didn’t do hard research on this, we can anecdotally share that many people around the office have toddlers and infants at home, so that could be a contributing factor.)

sleep problems

 

What have you tried to help you fall asleep?
When it comes to needing sleep aids to catch those Zzzz’s, you’ll see more of our employees turning to solutions like books (60%), lifestyle changes (50%), TV (31%), relaxation (31%) and sex (33%). Some of us try over-the-counter interventions (22%), prescriptions (16%) and homeopathic techniques (14%). (We also asked what’s least helpful and found ‘watching TV’ tops that list.)

Tried to fall asleep

 

Since joining the PatientsLikeMe team, do you…
And last but not least, since joining the PatientsLikeMe team, only a handful have had changes in their sleep with 13 people saying they sleep less (23%) and, surprisingly, 5 (8%)  now sleep more. (Obviously, those 5 people just don’t have enough to do. We’ll fix that.)

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How does your sleep compare to ours? Update your symptoms, including insomnia, on your PatientsLikeMe profile. And here’s a glance at what some of your fellow community members are saying on the “How the PatientsLikeMe Team sleeps” forum thread.

  • “My sleep is practically non existent, if I get a full hour of unbroken sleep I count that as a good sleep.”
  • “I sleep maybe 3-4 hours a night. I get up & read a little & then go back to sleep for about another 3-4 hours. Very rarely do I sleep 5 hours at a time.”
  • “My problem is I am extremely tired all day long.  I do sleep like 5-6 hours in bed sometimes, wake up, and go sit in the recliner.”

Not a PatientsLikeMe member? Not a problem. Start your own profile for free and tell us… are you sleeping?

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Mental Health Awareness: What do you know about Mood Conditions?

Posted October 15th, 2010 by

In honor of this month’s Mental Illness Awareness Week, here’s a snapshot of what’s happening in our PatientsLikeMe Mood community. Launched in 2008, the community now has more than 18,000 patients. Below are some interesting facts about the community, so please read and share on!

DID YOU ALSO KNOW…screen-shot-2010-10-15-at-33639-pm1

  • You can search for patients under 15+ diagnosis categories, including depression, bipolar, obsessive-compulsive disorder (OCD), post-traumatic stress disorder (PTSD), anxiety, addiction to tobacco, addiction to alcohol, eating disorder and more.
  • In a PatientsLikeMe research study recently published in the Journal of Medical Internet Research, we revealed:
    • 26% of responding mood community members agreed or strongly agreed that using the site had reduced thoughts about self harm
    • 23% agreed they had decided to start therapy or counseling after interacting with others on the site
    • 22% agreed they needed less inpatient care as a result of using PatientsLikeMe.  (See our “Patient Voice” report, video and member interview on inpatient therapy).
  • Members’ experiences on the treatment Amitriptyline was used in an award-winning paper presented at Medicine 2.0 last year.

How are our members treating their condition?

What are their major symptoms?

What are they talking about?

  • Some of the top topics “tagged” in our forum discussions to date include specific treatments (like Lamictal, Lithium, Wellbutrin and Seroqul), as well as borderline personality disorder, coping, anger and journaling.