18 posts tagged “sally okun”

We the Patients: New PatientsLikeMe poll finds a unified voice on a U.S. health care plan

Posted June 14th, 2017 by

Repeal? Replace? Revise? While politicians have spent months debating the details of a U.S. health care plan, a recent poll of 2,755 PatientsLikeMe members has found that patients are largely aligned about components of a strong plan for the country.

 

“Despite the partisan divide in Congress about what should be included in a health care plan there is a singular voice in patients, who are agreed across party lines on the essential foundation for any plan.”

— Sally Okun, PatientsLikeMe’s vice president of Advocacy, Policy and Patient Safety

 

Patients with a variety of conditions and from all 50 states (plus the District of Columbia) participated in the poll May 4-9. The poll launched on the same day that the U.S. House of Representatives voted (217 to 213) to narrowly pass the American Health Care Act (AHCA, sometimes nicknamed “Trumpcare” or “Ryancare”), which would repeal much of the Affordable Care Act (ACA, or “Obamacare”). The AHCA bill is now with the Senate for deliberation, revisions and possibly a vote in the coming days.

Here are some highlights from the poll’s findings and the latest trends in patients’ opinions.

PatientsLikeMe ACA patient poll

The new (May) poll was a follow-up to a January 2017 poll where PatientsLikeMe members weighed in on the ACA/Obamacare. Comparing the responses of those who took both the January and May polls, patients are increasingly in favor of modifying rather than replacing the ACA/Obamacare. Fewer patients believe the ACA “needs a major overhaul” or should be “totally eliminated.”

The 7 must-haves

Patients speak out on health care law

Patients are united — 95% or more of respondents agree that these elements should be included in a national health care plan to “provide essential help to the most people.”

Should states have a choice?

Nearly half (48%) disagree that states should be able to “opt out” of parts of a national health care plan while more than one-third (35%) agree with it. But only 22% agree that their own state should opt out.

Patients speak out on health care law

The strongest opinions about opting out were split along party lines, with more Democrats than Republicans believing states should not be allowed to opt out.

Take action: How to raise the patient voice in 3 steps

Want to share the patient voice with your members of Congress? Click here to go to a “Take Action” page with 3 simple steps to spread the word about the poll results and add your own perspective.

 

“Our hope is that by amplifying the voice of those with the most experience with our health system, we will influence the Senate to construct the best plan for all Americans.”

— Sally Okun

Share this post on Twitter and help spread the word.


What’s your experience with accessing your electronic medical records?

Posted May 17th, 2016 by

Hi everyone! I’m Sally Okun, Vice President for Advocacy, Policy and Patient Safety at PatientsLikeMe. Most of you probably already know me, but just in case you don’t, I really focus on bringing the patient voice to affect better treatment, services and care, and to be sure that the needs of patients are at the front of healthcare discussions. I’m also the link between PatientsLikeMe and government and regulatory agencies.

And that’s what brings me to the blog today. The Government Accountability Office (GAO) is working on a new research study and they want to hear directly from patients like you about your experiences with your electronic medical records. Specifically the team at GAO is interested to learn about your experience accessing your health information electronically for viewing it yourself, downloading it to a computer or other device and/or sending it to someone else of your choosing.

Find out more below about the GAO, this new research project and who to contact if you’d like to participate.

The Government Accountability Office (GAO), an agency that evaluates federal programs for Congress, is conducting research to examine patients’ experiences with electronically viewing, downloading, or transmitting their health information, which will be incorporated into a publicly available report. GAO would like to hear directly from consumers to learn about any relevant experiences they may have had in this regard (e.g., viewing health information in an online patient portal, downloading health information into a personal health record app, sending/receiving health information to/from a physician).

If you would like to volunteer to discuss your experiences with GAO, whether positive or negative, please send an email with your first name directly to GAO at HealthInfoAccess@gao.gov by June 7, 2016. GAO will contact you to schedule a short, anonymous telephone interview at your convenience to discuss your experiences.

GAO will NOT collect any personal information during the interview, such as your full name or other identifying information. In addition, GAO will only ask questions about your experiences electronically accessing your health information, not any questions about the nature of your health information itself. Any information GAO collects from consumers will be published in a manner that protects your confidentiality and anonymity.

Let your voice be heard!

 

Share this post on Twitter and help spread the word.