4 posts tagged “safety”

5 Earth-friendly ideas for patients

Posted 4 months ago by

As Earth Month winds down, explore some environmental pointers, including how to donate (gently used) wheelchairs, what to do with empty pill bottles (earbud/jewelry case, anyone?) and where to dispose of unused meds (April 28, 2018, happens to be National Prescription Drug Takeback Day at 5,000+ sites across the U.S… read on!).

1. Donate unused medical supplies. Before adding unused supplies or gently used equipment to your trash heap, see if they’re on the wishlist of organizations that accept medical surplus, such as InterVolMedshare and Project C.U.R.E. (click to see lists of what they’ll take).

InterVol’s general rules of thumb for donations?

  • Would you want the item/supplies used on you?
  • Does it have one year left before the expiration date, if it goes in the body?
  • Does the equipment function as intended (no broken or missing parts)?
  • Is the equipment in good shape (no rust, rips, tears, etc.)?

2. (Properly) hand over unused medications. Few organizations accept prescription drug donations from individuals, and drug donation and redistribution laws vary by state. Look into the regulations where you live and comment below if you know of any organizations that accept donated medications (such as Insulin for Life, which collects some insulin and diabetes supplies).

Note: This Saturday is National Prescription Drug Takeback Day (April 28, 2018, from 10 a.m. to 2 p.m.), sponsored by the U.S. Drug Enforcement Administration twice a year so that people can bring unused or expired medications to a local collection site for safe disposal (search for a site near you). In the last Takeback Day in October 2017, people dropped off 456 tons of drugs.

3. Safely dispose of unused drugs and medical waste on your own. Cancer.net offers these pointers for medication disposal: “If you decide to take the matter into your own hands, you should always follow the disposal instructions found on the drug label or the patient information leaflet that comes with the prescription. Do not flush medicines down the toilet or sink unless this information specifically tells you to.”

The U.S. Food and Drug Administration lists the few medications that should be flushed— but check with your local water treatment and/or sanitation department about any rules or regulations.

The U.S. Environmental Protection Agency offers this info on proper disposal of discarded needles, sharps and other medical waste. Wondering what to do with old oxygen tanks? See this guide.

4. Find new uses for empty pill bottles. An Indianapolis-based charity called The Malawi Project organized a hugely successful pill bottle collection drive to send the ubiquitous orange containers to the African country hit hard by HIV (where people were carrying their pills loose or wrapped in paper). After a million pill bottles quickly poured in, the organization stopped accepting donations — but they still encourage people look into other organizations still collecting them, or contact local animal shelters to see if they need them.

Recycle Nation says that few communities accept the orange (#5 plastic) pill bottles in their recycling programs, but a company called Preserve collects them at natural food stores across the country (check out this map) to use in their recycled plastic products. CVS Pharmacy is reportedly working on pill bottle recycling programs.

People have come up with lots of other creative ways to reuse or upcycle pill bottles — just a few neat ideas include:

  • “Hide-a-key” container (with a rock glued on top)
  • Earbud/headphone holder
  • Jewelry case
  • Mini sewing kit
  • Child-proof storage for quarters (for parking or laundry), pins, nails/screws, medical sharps or other small items

5. Go paperless with your insurance company and doctor’s office. Opt for electronic communication, if you’re comfortable with it. Many providers now offer email and/or text reminders rather than snail mail postcards or phone calls. Also, hospital gowns can be a drag for patients, and the paper ones contribute to medical waste. Depending on the medical setting and type of visit, ask your healthcare provider if it’s necessary to fully undress and wear a gown or use other (optional) disposable items for your visit.

Happy Earth Month!

Have any favorites from this list, or any “green” tips of your own to add? Join PatientsLikeMe to talk about topics like this and swap ideas with others.

Share this post on Twitter and help spread the word.


Sally Okun explains the new research collaboration with the FDA

Posted June 16th, 2015 by

Yesterday, we announced a new research collaboration with the U.S. Food and Drug Administration (FDA) that will explore how patient-reported data can lead to new insights about drug safety. It’s the first time the FDA will analyze patient-generated data for pharmacovigilence (aka drug safety).

But we’re no strangers to drug safety. Check out some of the previous work the community has helped to drive:

To learn more about this new (and unprecedented) collaboration, we talked to our very own Sally Okun, Vice President of Advocacy, Policy and Patient Safety.

What will this collaboration do?
Patients’ lives and well-being often depend upon medical products approved and regulated by the FDA. But most of the information we see on safety labels comes from clinical trials, which aren’t typically representative of the actual populations of patients who will take the medication. Working with us, the FDA will be able to see the real-world impact of taking medications over time, which can help identify benefits and risks earlier. The FDA isn’t just talking about patient-centricity; they are partnering with us to work directly with patients, and give them a collective voice as part of the FDA’s surveillance system.

How does the FDA normally hear about side effects?
Right now the FDA uses a voluntary reporting system consisting of individual case safety reports, the majority of which are submitted by healthcare professionals and patients to drug product manufacturers, who then are required to report them to the FDA. Our data are different in that the information is generated by patients themselves, and provide real-time insights about what its like to use medical products over time, like tolerability of the drug and factors that may influence taking the drug as prescribed.

When did PatientsLikeMe’s start gathering information about side effects and adverse events?
We’ve actually been collecting information about patients’ experiences with treatments, including patient-attributed side effects, since we launched the website in 2006. In 2008 we took steps to formalize adverse event reporting by developing a customized version of the FDA’s MedWatch tool for use in a pilot project with our MS community. The pilot set us on a path to develop our future drug safety functionality. By 2009 we had created a fully integrated, standards-based drug safety platform, the first on social media. It enabled industry partners to meet their regulatory obligations.

What’s the future?
It’s pretty exciting! The patient experience can more deeply inform the way medications are regulated. And patient-reported data can ultimately have a greater impact on the way that drugs are developed. This collaboration can lead to all of that.

Share this post on Twitter and help spread the word.