2 posts tagged “rheumatoid patient foundation”

Rheumatoid Awareness Day: 7 things you might not know about RA

Posted February 2nd, 2016 by

Today is Rheumatoid Awareness Day, and we’re spreading the word about the condition that affects over 9,000 PatientsLikeMe members. Rheumatoid disease can manifest in many different ways – fatigue, joint pain, stiffness and fever, to name a few — so it can be hard to understand the full scope of this condition. To show the world what living with #TheRealRD is like, the Rheumatoid Patient Foundation has shared these seven interesting facts:

1.Rheumatoid disease is not a type of arthritis; arthritis is just one symptom.

Rheumatoid disease (RD) is a systemic disease related to immune function that can affect any part of the body including the heart, lungs, eyes, skin or joints.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

2. Available treatments are not adequate for many people with moderate to severe rheumatoid disease.

About 1/3 of patients don’t respond to available biological disease modifying drugs. 

3. Rheumatoid disease is different in each person — and even in the same person over time.

Some people experience constant pain, and some have a series of “flares” and periods of lower disease activity. Symptoms can vary greatly from day to day

4. RA research is severely underfunded in the U.S.

RD is funded at about 1/12th the per-patient rate of similar diseases with comparable impact.

5. Rheumatoid disease is often an invisible illness.

Just because someone with RD looks good doesn’t mean he or she feels good.

6. Early, aggressive disease treatment has been shown to provide the best outcomes.

Those whose disease has been treated early have the best chance at achieving remission or low disease activity.

7. Remission is rare. Pain is not.

Remission rates have been reported as low as 6% in the average clinical environment. Most people with RD experience pain every day.

Share this post on Twitter and help spread the word.


First-Ever Rheumatoid Awareness Day

Posted February 2nd, 2013 by

In an ongoing effort to raise awareness, the Rheumatoid Patient Foundation (RPF) has now established February 2nd as Rheumatoid Awareness Day. This is the first time ever that a day has been designated for rheumatoid disease and it will give a voice to the millions who are living with this condition.

rheumatoid-awareness-day

Rheumatoid disease (also known as rheumatoid arthritis) affects nearly 2 million people in the U.S. and one percent of people worldwide. It’s a progressive inflammatory disease causing joint and organ damage that can lead to severe pain and joint disabilities. Studies have also shown that rheumatoid disease has an impact on the heart causing higher incidence of stroke for patients.

Want to get involved? The RPF is hosting several social media events and is asking everyone to share educational materials via social sites and blogs to raise awareness.

You can also connect with other rheumatoid arthritis (RA) patients just like you on PatientsLikeMe. Nearly 5,000 RA patients are tracking their health and learning from each other’s shared experiences every day. Add your voice to this growing community.


Mayo Clinic. 2011. Mayo Clinic Determines Lifetime Risk of Adult Rheumatoid Arthritis. http://www.mayoclinic.org/news2011-rst/6137.html?rss-feedid=1

Jesper, L et al. British Medical Journal. Risk of atrial fibrillation and stroke in rheumatoid arthritis: Danish nationwide cohort study. http://www.bmj.com/content/344/bmj.e1257