Parkinson’s Awareness Month

“Seesawing Libidos”: A podcast for Parkinson’s Awareness Month

Parkinson's Disease, Patient Experiences / By

April is Parkinson’s Awareness Month, and this year we’re getting personal. “Seesawing libidos,” an episode of WBUR Boston’s Modern Love podcast, explores an unexpected side effect of a Parkinson’s medication: an overactive sex drive. The story comes from comedian Marc Jaffe, whose wife Karen was diagnosed with Parkinson’s 15 years into their marriage. Before Karen’s […]

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Making a difference for Parkinson’s disease in April

Parkinson's Disease, Patient Experiences / By

  After getting diagnosed with Parkinson’s disease (PD), PatientsLikeMe member Ed recalled “I needed to talk to people who had the disease, because only they knew what it was like…and could help me get through that initial shock… we can do much better fighting the disease as a group than we can as individuals.” And

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Interview with Jim Atwell, Author of “Wobbling Home: A Spiritual Walk with Parkinson’s”

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Continuing our coverage of Parkinson’s Awareness Month, we’d like to introduce you to Jim Atwell, a PatientsLikeMe member who has been living with Parkinson’s disease (PD) since 2007. A retired college professor, late-in-life farmer and weekly columnist for his rural newspaper, Jim recently published his second book, Wobbling Home:  A Spiritual Walk with Parkinson’s.  This

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Observing Parkinson’s Awareness Month

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Since 2010, April has been designated as Parkinson’s Awareness Month by the US Senate.  The goal is to shine a spotlight on the national impact of Parkinson’s disease (PD), which affects more than one million Americans.  A progressive disorder of the nervous system, PD is often marked by muscle tremors, muscle rigidity, decreased mobility, stooped

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Tell the World: Daddytom Shares His Experiences with Parkinson’s

Parkinson's Disease / By

To continue our series in honor of Parkinson’s Awareness Month, here’s another interview to bring you “the patient voice.”   We recently featured this interview with three-star member daddytom in the April edition of our Parkinson’s Community newsletter. Read on to learn what he has to say about finding courage, recognizing mentors and raising awareness about

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Tell The World: Parkinson’s Patients are “In Motion”

Parkinson's Disease / By

The PatientsLikeMeInMotion sponsorship program has been a tremendous success so far this year! Sponsorship requests from members participating in nonprofit events are flying in by the second from all over the country.  It’s exciting to see our members are as active offline as they are online about raising awareness of their condition.  The PatientsLikeMeInMotion program

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Tell the World: Parkinson’s Patients Unite Online and Off

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At PatientsLikeMe, thousands of patients are uniting online to share health data, find patients like them, and to learn from one another.  Since this is Parkinson’s Awareness Month, we wanted to highlight an off-line event that also represents unity – aptly named the Unity Walk.  The annual event, which takes place next weekend in New

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2010 Parkinson’s Awareness Month:
Interview with EnglishTutor

Parkinson's Disease, Patient Experiences / By

What better way to kick-off 2010 Parkinson’s Awareness Month than to bring you “the patient voice.”  At PatientsLikeMe, we believe in getting to know the person, not just the “patient.”  That’s why we interview patients each month in our newsletter to find out more about how they approach life.   We recently featured englishtutor, a

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