2 posts tagged “parent caregivers”

Honoring Family Caregivers Everywhere

Posted November 26th, 2012 by

Is there a caregiver in your family?  For example, someone who looks out for an elderly parent or grandparent – or who cares for a child or spouse with a debilitating illness?

November Is National Family Caregivers Month

November is National Family Caregivers Month, a time for recognizing the important role of family caregivers in our society as well as the challenges they face on a daily basis.  Currently more than 65 million Americans (or approximately 29% of the US population) are serving in a caregiver role in any given year, averaging 20 hours per week.  Approximately 66% are women. The value of services these caregivers provide for “free” when caring for older adults is estimated to be $375 billion per year.

Yet what many people may not think about is the economic and health impact on the family caregiver.  Financially, caregiving families have median incomes that are 15% lower than non-caregiving families, and women caregivers are 2.5 times more likely to live in poverty than non-caregivers.  In terms of health and well-being, approximately 40 to 70% of caregivers report clinically significant symptoms of depression, according to one study, while 55% say they skip doctor appointments for themselves.  Read other eye-opening caregiver statistics here.

PatientsLikeMe strives to support and involve caregivers with our “CareTeam” concept, which was developed to include everyone who participates in the care of our patient members.  That could be a spouse/partner, parent, child, doctor, therapist, home health worker, sibling, relative or friend.  Patients can invite caregivers to join PatientsLikeMe, and once they are members, send them a CareTeam invite to link together their profiles.  That way, both the patient and caregiver can stay abreast of how the other is doing physically, emotionally and socially.

ALS patient Persevering’s CareTeam members (his wife and his sister, respectively) are displayed in the “About Me” section of his profile.

Currently, there are more than 7,000 caregivers registered with PatientsLikeMe, many of whom are active users of our forums, who chart their own symptoms and treatments and who are seeking information, guidance and support directly from patients or other caregivers.  Browse their profiles – even if they have no specific health issues, caregivers can monitor their well-being with tools like our InstantMe and Quality of Life surveys – and find out what their life is like today.


A Day in the Life of PatientsLikeMe Web Developer Adam Darowski

Posted October 19th, 2012 by

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features PatientsLikeMe employees from different departments.  Today we’d like to introduce you to Adam Darowski, a father of three who joined the technology team as a web developer exactly three years ago.  Find out why he had a crush on the company long before he came to work here and more in our interview.

PatientsLikeMe Web Developer Adam Darowski with Each of His Kids

1.  What led you to join PatientsLikeMe in 2009?

I had been a big fan of PatientsLikeMe since late 2006 when I originally met Co-Founders Ben Heywood and Jeff Cole. Over time, it became more and more clear to me that my next position would be with PatientsLikeMe. First the company hired Kate Brigham (who I had known for quite a while), then I met people like Cris Necochea and Rich Thornett. I knew it was a special place with special people.

What ultimately led me here in 2009 was the opportunity to do some things that were very important to me. I want to make PatientsLikeMe an incredible resource not just for patients living chronic conditions, but also for parent caregivers of children with developmental and chromosomal disorders. We’ve made some progress on that front but still have a lot of work to do.

2.  Give us a slice of life as a web developer.  What are you working on currently?

We just finished Wow Week, which is pretty much my favorite thing in the world. [Occurring every six weeks, Wow Week is a week of unstructured time in which the PatientsLikeMe technology team can work on and present their own ideas.]

I worked on some concepts for what PatientsLikeMe could look like if it was focused exclusively on parent caregivers. So, this involved some user research (not a ton, since it was only a concept and I only had a week), user interface design, and a lot of visual design. Since I also love to get in the code, I then worked with Michael Berkowitz to start building it out some of the features. My main focus there was on the home page, building a design that would work well whether you looked at it on a phone or a 24-inch monitor.

During more typical weeks, my time is spent building and improving site features. I’m a “front end” guy, which means I don’t really do any hardcore software engineering. Rather, I build the part that you actually see and interact with. I also like to chip in on the design side of things, whether it is on new features or just adapting an existing design for new requirements or different scenarios.

3.  What would you tell someone who’s considering joining the technology team?

I would tell them that this is a very passionate, bright, motivated and diverse team, and I’m honored to be a part of it. PatientsLikeMe isn’t a place to go if you have a big ego. We work together, we collaborate, we give and receive constructive criticism, we strive to make each other better, and we strive to give our members the best user experience possible. If you want a genuine, honest-to-goodness chance to build something that has a chance to change the world, this is where you want to be.

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Interested in making a difference in patients’ lives?  Check out our Careers page to see our current job openings.  Headquartered in Cambridge, Massachusetts, PatientsLikeMe is looking to hire a Senior Ruby on Rails / Web Application Developer, Business Development Manager, Graphic Designer and more at the moment.