nonprofit partners

PatientsLikeMe and AKU Society to Develop World’s First Open Registry for Alkaptonuria Patients

Online Patient Network to Connect Patients With Rare Disease, Create Valuable Data for Research CAMBRIDGE, Mass. — January 9, 2013 — PatientsLikeMe and the AKU Society are working together to create the first open, global registry for patients with alkaptonuria (AKU), one of the world’s rarest diseases and the first genetic disease discovered. Nicknamed “black […]

PatientsLikeMe and AKU Society to Develop World’s First Open Registry for Alkaptonuria Patients Read More »

All Aboard! Bringing PatientsLikeMe to Transplant “Gamers”

www.flickr.com 2010 Transplant Games photoset As you may know from reading Molly’s post last week, a few of us from the PatientsLikeMe staff recently attended the National Kidney Foundation’s 2010 U.S. Transplant Games in Madison, WI. In addition to supporting some of our current nonprofit and industry partners, PatientsLikeMe was an exhibitor at this year’s

All Aboard! Bringing PatientsLikeMe to Transplant “Gamers” Read More »

Scroll to Top