kidney

Getting “Patients Included” right Part II: Planning a patient-centric event

Conditions, Patient Experiences / By

You may remember Part I of this blog that focused on the experiences of two PatientsLikeMe members who attended the Kidney Health Initiative’s (KHI) workshop, “Understanding patients’ preferences: Stimulating medical device development in kidney disease,” back in August. KHI is a partnership between the U.S. Food and Drug Administration (FDA) and the American Society of […]

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Getting “Patients Included” right Part I: Two members attend a Kidney Health Initiative workshop

Patient Experiences / By

Back in August, the Kidney Health Initiative (KHI), a partnership between the U.S. Food and Drug Administration (FDA) and the American Society of Nephrology (ASN), held a workshop called “Understanding patients’ preferences: Stimulating medical device development in kidney disease.” But this was more than a workshop – it was an event centered around the idea

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ORE Researcher Series: Tamara Kear is listening to kidney patients

Patient Experiences, Research / By

Over the next few months, you’ll meet a few Open Research Exchange (ORE) researchers, and first up is Tamara Kear, PhD., R.N., CNS, CNN. She has over 20 years’ practice as a nurse caring for patients with kidney disease. Her research is focused on hypertension, one of the factors that can lead to a person

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PatientsLikeMe launches “24 Days of Giving” to encourage sharing of health data for good

Patient Experiences / By

Napkin Notes Dad Garth Callaghan Joins Campaign Calling on People to Donate Health Data Starting on Giving Tuesday CAMBRIDGE, Mass. (November 17, 2014) – On December 2, PatientsLikeMe will launch a new campaign that will extend through the month and ask people to rethink their giving this year. PatientsLikeMe is calling on patients who are living with a chronic

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