Last week, PatientsLikeMe Co-Founder Jamie Heywood had the honor of speaking at the Personalized Medicine World Conference (PMWC), a two-day event held at the Computer History Museum in Silicon Valley. His presentation was entitled “Patient Driven Convergence of Clinical Discovery and Care.” In recognition of the conference’s venue as well as the role that technology plays in personalized medicine, we decided to share some of the “tweets” that Jamie’s talk generated on Twitter.
Ruby Gadelrab(@DivaBiotech) tweeted: “James Heywood, PatientsLikeMe, starts presentation with very poignant picture of his brother suffering from ALS.”
Ron Ribitzky, MD(@RonRibitzkyMD) tweeted: “James Heywood of PatientsLikeMe at PMWC: Industry develops systems that can impact if people live or die, but not giving it to them.”
Shirley Wu(@shwu) tweeted: “Heywood of PatientsLikeMe: At events like this, I often see tech searching 4 problems, not well-defined problems searching 4 solutions.”
Ribozyme(@ribozyme) tweeted: “JH PatientsLikeMe: If they (were to) add genotype data it would be a huge phenotype-genotype correlation study.”
Daniel Kraft, MD(@daniel_kraft) tweeted: “Talk from @PatientsLikeMe. Reduced ER visits by 18%. ‘Predict the future so we can change it.’”
Are you part of the Twitterverse too? Follow us @PatientsLikeMe today. We’re just 25 people shy of reaching 5,000 followers!
Despite some recent happenings in the news, we’re here to assure you that health 2.0 is still very much alive. Here’s our recent announcement about our new partnership with 23andMe.
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PatientsLikeMe, the first community-based personalized medicine platform for people with life-changing conditions, and 23andMe, the world’s leading personal genomics company, announce a partnership today to help people with Parkinson’s disease. PatientsLikeMe is teaming with 23andMe on its effort to recruit 10,000 people with Parkinson’s for a massive study of the disease, and give patients a way to learn more about their personal genetics.
“Today, technology is moving faster than the research establishment,” says James Heywood, co-founder and chairman of PatientsLikeMe. “We are excited to see what happens when you give patients the ability to see variations of their disease and compare it to their own, while enabling them to easily define their personal genomics.”
Back in November, Jamie Heywood and I attended the 19th International ALS/MND Symposium in Birmingham, UK. As part of an ongoing series of blog posts reporting from that conference, I have put together a narrated slideshow which is an abridged version of a platform presentation I was asked to give at the conference about the past, present, and future of the internet for patients with ALS/MND.
As you will see in the presentation, there has been a strong online presence in the ALS/MND world since the early 1990s. Over time, the proportion and representativeness of the patients participating has increased dramatically, to the point that we now have some 10% of the USA’s ALS/MND population registered on the site.
Next up in our series…a blog post looking at some of our recent improvements to PatientsLikeMe for people living with ALS/MND.
At PatientsLikeMe, people with every type of condition are coming together to share their health experiences, find patients like them and learn how to take control of their health. The result is improved care for patients as well as an acceleration of real-world medical research.
Stay tuned to our blog for the latest happenings with our company, our patients and our mission of opening up the healthcare system.
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Despite some recent happenings in the news, we’re here to assure you that health 2.0 is still very much alive. Here’s our recent announcement about our new partnership with 23andMe.
