5 posts tagged “HHS”

$70,000 at Stake in the “Reporting Safety Events Challenge”

Posted August 22nd, 2012 by

How serious is the U.S. Department of Health and Human Services’ Office of the National Coordinator for Health Information Technology (ONC) about increasing patient safety?   So serious that they are running a contest challenging the best and brightest developers to create a platform that makes it easier to report a patient safety event electronically.

Learn More About the "Reporting Safety Events Challenge" for Developers Here

The Reporting Patient Safety Events Challenge is offering $70,000 worth of prizes, with $50,000 (and a demo opportunity) awarded to the first place winner, $15,000 to the second place winner and $5,000 to third place winner.  The submission deadline is August 31, 2012.  Learn more about the contest guidelines and 30+ participating developer teams here.

“Ideally, we would live in a world of optimal care delivery,” says the ONC.  “Physicians, nurses and care delivery organizations across the country are continuously working to minimize and eliminate errors.  But, until this ideal world exists, we need to invest in infrastructure that helps enable better care quality, risk management and shared learning – all to ensure better care for patients.”

PatientsLikeMe fully supports this goal, which is why we introduced our first-of-its-kind adverse event reporting platform in 2009.  As part of a two-year pilot program, our members with multiple sclerosis (MS) were able to submit adverse events related to a medication, medical product or medical device directly to the U.S. Food and Drug Administration’s MedWatch program through PatientsLikeMe.  Our system automatically pulled relevant data from the patient’s profile into a FDA 3500 form, dramatically reducing completion time.

Since then, we’ve also developed an integrated and comprehensive drug safety reporting platform that monitors patient data for potential adverse events when we are collaborating with a sponsoring partner in designated disease areas. These data are then clinically triaged and curated using the Medical Dictionary for Regulatory Activities (MedDRA), an industry standard terminology. Adverse events are submitted to our partners electronically in FDA 3500A format to meet regulatory timelines and reporting criteria.  Of note, PatientsLikeMe is the only online health data platform in social media that has successfully passed multiple drug safety audits conducted by our partners’ pharmacovigilance and drug safety experts.

What’s the difference between patient safety and drug safety?  And what do we see ahead in this critical area of healthcare?  Tune in to a podcast with PatientsLikeMe Chairman and Co-Founder Jamie Heywood on this very topic.


What’s in Your Health Record?

Posted July 30th, 2012 by

What's in Your Health Record?  Get the Full Contest Guidelines and Details Here.

If you’re living in an Internet-enabled household, chances are you have all or most of your banking information at your fingertips.  Can you say the same for your health information?  For many, these important records are locked away in filing cabinets or kept at your doctor’s offices.

Despite the fact that patients have a legal right to see and get copies of their medical records, the statistics on access are fairly surprising.

  • 41 percent of the public have never asked their doctor for copies of their records
  • 81 percent say they’ve never asked to receive their records electronically

That’s why the Department of Health and Human Service’s Office of the National Coordinator for Health Information Technology (ONC) is sponsoring the “What’s in Your Health Record?” Video Contest.  The goal is to encourage more patients to ask for copies of their health information and look at new ways to view and track it online.  Simply share your story on video (2 minutes or less) – including what you learned from taking a closer look at your records – and you could win one of several cash prizes ranging from $250 to $3,000!  All submissions are due by August 20, 2012.

Did You Know You Have the Legal Right to See and Get Copies of Your Medical Records?

Maybe you’ll find a critical omission in your records, such as a medication allergy.  Maybe you’ll find something curious or unexpected that prompts you to ask questions at your next appointment or do research.  Or maybe you’ll simply confirm that you’re up to speed on your health status.  In any event, having your full health information on hand empowers you and also ensures that your loved ones have all the details they need to help you receive the best care possible.

Ask for your records today and see what you find!  And if you’re a PatientsLikeMe member, don’t forget that you can input and monitor hundreds of different lab results – from cholesterol to Vitamin D to PSA levels – on your profile.


Wear Red Tomorrow for Women’s Heart Health

Posted February 2nd, 2012 by

Friday, February 3, 2012, Is National Wear Red Day

Did you know that heart disease kills more women than all cancers combined?  And that it’s largely preventable?

Now you do – and there’s something you can do about it.  Participate in National Wear Red Day® tomorrow, February 3, 2012.  Better yet, get your friends and co-workers to dig into their closets as well.  Together, you can make a vibrant, high-impact statement with your sea of red.

Another easy way to show your support is to “Like” the Go Red for Women page on Facebook.  Everyone who becomes a fan will receive a free red dress pin to wear every year for this important event.  Want to get inspired to do more?  Watch comedic actress Elizabeth Banks in the short film “Just a Little Heart Attack” below.

Learn more about the risks of heart disease in women here.  And if you’ve already been diagnosed with a cardiovascular condition – such as cardiomyopathy, coronary artery disease or valvular heart disease – don’t go it alone.  Join PatientsLikeMe to share and learn with others like you.

National Wear Red Day® is a registered trademark of the American Heart Association and the US Department of Health and Human Services (HHS).


Enter the Healthy New Year Video Challenge

Posted January 20th, 2012 by

Did you make a health-related New Year’s resolution?  And are you using technology—such as a smartphone app or website—to achieve your goal?  Create a short video about it, and you could win prizes ranging from $250 to $2,000 if your video is selected as one of the best!

Learn More About the Healthy New Year Video Challenge

Sponsored by the US Department of Health and Human Services (HHS) and conducted via Challenge.gov, the Healthy New Year Video Challenge invites you to create a compelling video (2 minutes or less) about a New Year’s resolution for improving your health or that of a loved one, and how you will use technology to achieve your resolution.

“In order to empower individuals to be more active partners in their health, they need access to their information and tools they can use,” said Farzad Mostashari, M.D., Sc.M., national coordinator for health information technology.  “We are excited to harness the creativity of ordinary Americans to help promote the positive impact of the myriad health information technology tools and services on health and health care.”

For PatientsLikeMe members, you’re already using technology (meaning, our online health community!) to monitor and improve your health.  Here are some sample resolutions involving PatientsLikeMe that might make for a great video submission:

  • Enter my complete health data at PatientsLikeMe so that I can spot correlations and patterns on my profile charts.
  • Find out what PatientsLikeMe members with the same condition(s) are doing about a symptom that’s frustrating me.
  • Chart my daily moods using PatientsLikeMe’s InstantMe survey to see what factors are affecting my mental health.
  • Add my Lab and Test results at PatientsLikeMe so that I – and others like me – can learn from them.

How Do Health and Technology Intersect in Your 2012 New Year's Resolutions?

All video submissions are due on Friday, February 16th, at 5:00 p.m. EST, so start brainstorming.  The idea is to inspire, motivate and educate others in a unique way, as all winning videos will be featured at HeathIT.gov.  For more details and contest guidelines, visit the contest website.

New to Health 2.0? Join the 125,000+ others at PatientsLikeMe to find information and support from those just like you – and begin monitoring your health with a host of tools and measurements. Cheers to health and technology in 2012!


Our Pledge to You, the Patient

Posted September 12th, 2011 by

“We founded PatientsLikeMe on the concept that sharing health data could lead to a more empowered patient and better overall healthcare system. It’s an exciting and giant step forward for us as an industry as we unite around making health data more accessible to those that matter most – the patients.”

Ben Heywood, PatientsLikeMe Co-Founder, President

Today the first-ever Consumer Health IT Summit is taking place in Washington, DC. Sponsored by a division of the US Department of Health and Human Services (HHS), this new initiative is designed to empower individuals to be more engaged in their health through the use of health information technology (IT).

During the summit, both government health agencies and private sector organizations like PatientsLikeMe will be highlighting the ways they plan to support your access to electronic health data. For example, HHS Secretary Kathleen Sebelius unveiled new proposed rules that would expand the rights of patients to access their health information as well as a model privacy notice template that can be used in the process. In addition, HealthIT.gov, a new resource for consumer health empowerment, was announced.

Visit HealthIT.gov today to learn more about your right to access your own health information

PatientsLikeMe is participating in this important initiative by making our own pledge to you, which we are committed to completing by spring 2012.

“We pledge to make it easier for individuals and their caregivers to have timely access to their health information in a convenient, useable format through our website.  As we continue to encourage and enable them to use this information to improve their health and their care, we pledge to:

1) improve patients’ accessibility to their personal health information by making our Doctor Visit Sheet (a document detailing an individual’s health data and experience) downloadable through multiple formats, including electronically readable formats like PDFs and the “Blue Button” ASCII text standard format;

2) encourage patients to dialogue with their peers and providers about the benefits of accessing and understanding their health data;

3) continue “Putting Patients First” by building a website that helps them to share, access and learn from their health information online.”

What’s a Blue Button, you ask? An open government initiative, Blue Button represents a collaboration between the Veteran’s Administration and HHS to develop an online feature that would enable Veterans and Medicare beneficiaries to easily read, use and share their personal health information with providers and others they trust. The ASCII text file format was selected for its ease of use by individuals, while allowing computers to easily “read” the information.