18 posts tagged “Heywood”

The Theory of Everything

Posted November 6th, 2014 by

Between the Ice Bucket Challenge and movies like “You’re Not You” (about a classical pianist who is diagnosed with ALS), there has been a ton of awareness going on for ALS, with many efforts focused on the personal stories of people living with the neurological condition. And this month, ALS is being spotlighted again in a biographical movie coming out very soon.

“The Theory of Everything” is about the life of renowned physicist Stephen Hawking, who has been living with ALS since the 1960s. Despite being given a grim diagnosis, he defied all odds and became one of the leading experts on theoretical physics and cosmology. Stephen Hawking’s story reminds us of the reality of ALS, but is also an inspiration to all who are living with motor neuron disease.

The movie premieres on November 7th in the U.S. – check out the trailer below.

 

As many out there might already now, movies like “You’re Not You” and “The Theory of Everything” hit close to home for the PatientsLikeMe family. In 1998, Stephen Heywood, the brother of our co-founders Ben and Jamie, was diagnosed with ALS. Their experiences – as a patient, as caregivers, and as a family led to the beginning of the online community patientslikeme.com.

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You’re Not You

Posted October 10th, 2014 by

There’s a greater sense of awareness around ALS lately. The IceBucketChallenge really shined a spotlight on a condition that many have heard of, but maybe not that many really understand. (If you missed it, see everyone here at PatientsLikeMe taking on the challenge, and what Steve, an ALS community member, thinks about it.

So it seems fitting that today there’s a new film coming out about what life with ALS is like. It’s called You’re Not You, and is based on the novel by Michelle Wildgen. Hilary Swank plays a successful classical pianist diagnosed with ALS. Emmy Rossum is also in the film as Bec, a directionless and brash young woman who becomes Kate’s full-time caregiver. This unlikely pair forms an intimate friendship and life-changing bond inspiring each other to live life to the fullest, while being brought together by the most challenging of circumstances. Through their unwavering support for one another, both women are moved to let go of who they were and discover who they are truly meant to be.

 

A special shout out and thank you to Hilary Swank, Emmy Rossum and Josh Duhamel for taking on the IceBucketChallenge, too!

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