5 posts tagged “helpful tips”

Parkinson’s disease and hyperhidrosis: Sweat struggles + solutions

Posted 1 month ago by

PatientsLikeMe members with Parkinson’s disease (PD) have talked a lot about excessive sweating (aka hyperhidrosis) and heat intolerance with Parkinson’s disease. It can be a “stinker,” as one blogger who has PD recently shared in Parkinson’s News Today.

Can you relate? Read on for more information and some possible adjustments or life hacks that others have tried.

One study found that over 60% of patients with PD experience sweating disturbances like hyperhidrosis (over-secretion of sweat) or hypohydrosis (under-secretion of sweat, which is less common).

The Parkinson’s Foundation and Parkinson’s Victoria cover these issues in their guides to skin, scalp and sweat changes related to PD. In addition to hyperhidrosis, many people with PD experience an extra-oily scalp (or other parts of the body), drenching night sweats and general difficulty with temperature control.

Some of these problems may stem from PD itself, which affects some of the body’s automatic functions, such as blood pressure and temperature regulation.

Research has shown that hyperhidrosis also seems to occur along with “off” times in levodopa treatment and with dyskinesia (jerky movements without tremors).

Possible solutions and hacks

Maria De Leon, M.D., a neurologist with young onset PD, writes on her blog that she understands firsthand the impact that sweating (and related body odor) issues can have on people’s lives. A few things you can try? Dr. De Leon suggests:

  • Talking with your doctor about possible levodopa treatment adjustments and even other treatments that may help, such as propranolol (see what PatientsLikeMe members with PD report about propranolol)
  • Taking lukewarm showers or baths
  • Wearing lightweight cotton clothes
  • Drinking extra fluids, especially water
  • Using antibacterial soap to help prevent body odor, and thorough towel drying before getting dressed
  • Trying clinical or “industrial” strength antiperspirant/deodorants. Dr. De Leon says these “work best if you apply at night before bed time not after showering or will wash off; it takes 6 to 8 hours for antiperspirants to enter sweat ducts and properly clog pores plus the body is cooler at night. But do reapply at least once during the day.”

Elsewhere online, people with hyperhidrosis recommend wearing solid dark colors or clothes with prints to help camouflage sweat marks, using underarm sweat pads, wearing leather shoes to help stave off odor, and bringing a small towel and a spare shirt just in case. A New York Magazine writer with hyperhidrosis (but not PD) rounded up his favorite products for over-perspiration.

Talk with your doctor about any skin- or sweat-related issues you’re experiencing. Dr. De Leon says that anxiety, thyroid problems or other health conditions can also cause or add to excessive sweating.

Join PatientsLikeMe to see what the community says about excessive sweating and heat intolerance with PD, or add a comment below based on your own experiences.

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Discussing your health condition with kids? 5 handy resources

Posted 2 months ago by

With Father’s Day coming up this weekend, parenting is on our minds. Do you talk about your health with your kids, and how do you go about it? Read on to see where to get pointers as a parent living with cancer, a mental health condition or chronic illness.

5 sites or articles to bookmark

Every situation and child is different, but the following resources may come in handy before your heart-to-heart.

  • Wonders & Worries’ Illness Discussion Tips – “Honesty is your best asset,” explains Wonders & Worries, an organization that provides support to children whose parents are facing chronic or serious illnesses. Their detailed guide recommends providing “accurate information that is appropriate for your child’s developmental level related to the illness and its treatment.” For example, say the name of your disease when talking with your child (who’s likely to overhear it eventually) and keep kids (and their school) informed about your current medical status and what it’ll mean for your routine, such as: “Nana will pick you up from school this week.”
  • Michigan Health’s “What Kids of Different Ages Understand” – This article is specifically geared toward parents with cancer, but it has some tips that can be helpful for people with various health conditions. The “Children’s perspectives” section explains what children typically understand at different ages. Babies and toddlers may not comprehend a serious illness like cancer, but can pick up on worries or sadness and changes in routine. School-age children (5-11 years) may have heard untrue information (like “cancer is contagious”) or experience “magical thinking” (e.g. – “Mom’s cancer is because of something I did.”). Tweens and teens may be tempted to turn to “Dr. Google” and get misinformation if you don’t fill them in.
  • Dana-Farber Cancer Institute’s “Talking with Children About Cancer” – This guide offers more information about sharing a cancer diagnosis with your kids. Some of the main takeaways? Take a bit of time to prepare yourself for the discussion but don’t wait too long or follow a script. It’s healthy to acknowledge your own feelings, like: “This is all new to me, too, and I feel worried and sad right now. But we will get through this together, and I will feel better sometime soon.” Also, don’t expect perfection. “There is no ‘perfect’ way to have this conversation. You may burst into tears before saying a word, or snap at your partner for telling your kids to ‘behave,’ or cringe when your son makes light of the whole conversation. Forgive quickly. This is a tough time for everyone.”
  • AACAP’s “Talking to Kids About Mental Illnesses” – The American Academy of Child and Adolescent Psychiatry says that parents (with or without mental health conditions) can help prevent stigma and stereotypes by discussing these conditions. “When explaining to a child about how a mental illness affects a person, it may be helpful to make a comparison to a physical illness. For example, many people get sick with a cold or the flu, but only a few get really sick with something serious like pneumonia. People who have a cold are usually able to do their normal activities. However, if they get pneumonia, they will have to take medicine and may have to go to the hospital. Similarly, feelings of sadness, anxiety, worry, irritability, or sleep problems are common for most people. However, when these feelings get very strong, last for a long period of time, and begin to interfere with school, work, and relationships, it may be a sign of a mental illness that requires treatment.” PsychCentral and The Mighty also have helpful ideas for informing and supporting kids.
  • PBS Parents’ Kid-Friendly Medical Dictionary – This glossary covers only some health-related lingo (mostly related to illnesses kids might encounter themselves). But it gives a sense of how to explain complex terms to curious kids. “Kids think about their bodies in very visual, literal ways. Therefore, experts recommend parents answer medical questions using age-appropriate, simple, easy-to-visualize terms. Be brief and only tell your child what she needs to know, as too much information may overwhelm her. At the same time, respect your child’s intelligence and try not to dumb ideas down. It is useful to explain both what a condition or illness is and how it’s treated.” You can also look for children’s books that can help explain cancermental health conditions, the human body and more.

On PatientsLikeMe, nearly 17,000 members include “parenting” as an interest on their profile. Join the community today to connect with fellow moms and dads, and log in to explore thousands of forum posts about parenting and topics tagged with “parenting.”

Have you talked about your diagnosis or condition with your kid(s) (or grandkids)? Any pointers or resources to add? Make a comment below or in the forum discussion!

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