Familial genetics in ALS Archives |

I Will Not Be Quiet: An Interview with ALS Advocate Debra Quinn

Debra Quinn’s father, sister, aunt, grandmother and great aunt all passed away from ALS, and in 2009, she was diagnosed with ALS herself. This hereditary form of the disease is called familial ALS (fALS). After the loss of her younger sister in 2007, Debra decided that she could no longer stay silent.Today, she is “the […]

PatientsLikeMe @ The 20th International ALS/MND Symposium in Berlin

ALS, Patient Experiences, Research / By patientslikeme

The 20th International Symposium on ALS/MND took place (December 8th-10th) in Berlin, Germany. This is the 4th ALS Symposium attended by PatientsLikeMe, and certainly the most exciting in terms of new findings. The annual symposium is a tremendous opportunity for researchers from around the world to meet and share new developments – it’s the big

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