4 posts tagged “Dr. William Polonsky”

Throwback Thursday: Diabetes and stress

Posted August 27th, 2015 by

Just about two years ago, nearly 600 members of the PatientsLikeMe community completed a survey called the Diabetes Distress Scale (DDS), a 17-item questionnaire which measures the amount and types of problems diabetes can cause in a person’s life. And today, we’re throwing it back to the summary of the results. Here’s what Dr. William Polonsky, the Founder and President of the Behavioral Diabetes Institute, and the co-creator of the DDS, had to say at the time about diabetes and stress:

“I believe it’s important to understand the physical, behavioral and emotional sides of illness. Diabetes, in particular, is so highly dependent on what people do every day.  It is, therefore, almost all about behavior− how do you talk yourself into taking on new tasks and making changes in your lifestyle, some of them which may seem not so pleasant or worthwhile, that you’d rather not do.”

You might recognize Dr. Polonsky from his subsequent blog podcast and additional research with the WHYSTOP scale. You can view the results of the DDS as a PDF, but check out some of the graphs below.

 

Have you had an A1C test done in the past year?

If you’re living with type 1 diabetes or type 2 diabetes, find others just like you in the growing communities on PatientsLikeMe. Almost 20,000 people with type 1 or type 2 are sharing their experiences to help others, for good.

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Patients as Partners: The WHYSTOP Scale questionnaire results

Posted April 4th, 2014 by

We’re really excited to launch a new series here on the blog called Patients as Partners. The series will highlight the results and feedback that PatientsLikeMe members give on questionnaires from our Open Research Exchange (ORE) platform.

What’s ORE all about again? PatientsLikeMe’s ORE platform gives patients the chance to not only check an answer box, but also share their feedback on each question in a researcher’s health measure. They can tell our research partners what makes sense, what doesn’t, and how relevant the overall tool is to their condition. It’s all about collaborating with patients as partners to create the most effective tools for measuring disease.

So to kick the series off, we have results from the WHYSTOP Scale, which measures how diabetes can impact appetite and how people decide when they’re done with a meal. Back in September, we launched this as one of the first-ever questionnaires on ORE with our research partner William Polonsky, Ph.D., CDE, from the Behavioral Diabetes Institute and University of California, San Diego. More than 700 type 2 diabetes community members added their voices, and all of the answers and feedback shaped and influenced the health measure to make it the best possible. (Shout out and thank you to all those that participated!) Check out the WHYSTOP survey results and keep an eye out for more ORE questionnaire results coming up as we continue our Patients as Partners series.

 

 

 


The Open Research Exchange- A talk with pilot researcher William Polonsky, Ph.D., CDE

Posted September 14th, 2013 by

You’ve probably seen some recent posts about PatientsLikeMe’s new Open Research Exchange. Medical researchers will be using our ORE website to pilot, deploy, share and validate new ways to measure diseases. And PatientsLikeMe members will have an opportunity to give feedback on their work, putting them – the patients – at the center of new medical research.

We wanted to take a quick second to introduce our blog followers to ORE pilot researcher Dr. William Polonsky and share his recent podcast interview with everyone. One of the first clinical health psychologists in the U.S., William has dedicated his career to helping patients with diabetes, conducting research to examine the disease’s critical psychological factors, and lecturing and training healthcare professionals so they can help patients help themselves. The scale he wants to develop on ORE is what he calls the WHY STOP scale. It’s an attempt to understand if you’re eating a meal, how do you decide you’re done?

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Most important, William wants to know how new diabetes medications seem to affect people’s satiety, or how full they feel when they eat. On ORE, William aims to create the first instrument to understand when and how these medications affect people, and how other patients can make better use of them.

We’ll be sending out invites next week, so if you’re living with type 2 diabetes and want to add your voice to William’s research, just create a PatientsLikeMe profile. Already a member? That’s great! Just be sure to sign into your profile this weekend and we’ll send an invite along.


Diabetes and stress- What the PatientsLikeMe diabetes community has to say

Posted August 6th, 2013 by

Here at PatientsLikeMe, we believe that sharing healthcare experiences is good. Why? Because when patients share real-world data, collaboration on a global scale becomes possible. So, we wanted to share back with everyone some results from a recent diabetes survey that nearly 600 PatientsLikeMe community members took part in. Our members entered their responses to the 17-item Diabetes Distress Scale (DDS), which measures the amount and types of problems diabetes can cause in a person’s life.

Have you had an A1C test done in the past year? 
Screen Shot 2013-08-06 at 10.00.59 AM

Download the PDF  to check out the results summary.

Dr. William Polonsky, Founder and President of the Behavioral Diabetes Institute, and the co-creator of the Diabetes Distress Scale, shared his thoughts about diabetes and stress with the PatientsLikeMe community.

“I believe it’s important to understand the physical, behavioral and emotional sides of illness. Diabetes, in particular, is so highly dependent on what people do every day.  It is, therefore, almost all about behavior− how do you talk yourself into taking on new tasks and making changes in your lifestyle, some of them which may seem not so pleasant or worthwhile, that you’d rather not do.”

Screen Shot 2013-08-05 at 9.26.49 AM

If you’re living with type 1 diabetes, or type 2 diabetes, find others just like you in our growing communities on PatientsLikeMe. Learn what others are doing to manage their condition with symptom and treatment reports, and share your own experience with a personal health profile or in the community forums.