CAMBRIDGE, Mass., December 14, 2017—PatientsLikeMe has named 13 members to its 2018 Team of Advisors, a patients-only group that collaborates with the company on new research and product development, advocates on behalf of patients, and provides real-world perspectives to industry and PatientsLikeMe partners.
“This is now our fourth Team of Advisors, and its members have consistently been some of our most vocal and important partners,” said Executive Vice President of Marketing and Operations Michael Evers. “Their insights on everything from product development to design and research, and their strong role as advocates, will be invaluable as we progress with our more advanced initiatives.”
Evers said those initiatives include DigitalMe, which will merge genetic, biological and experiential data from multiple sources to create a personalized, digital representation of health and disease, and give people actionable information to improve their health and health care. “More than half of the 2018 Team of Advisors are participating in DigitalMe. They will be a great resource as we adopt more advanced biological measures to find new signals about health, disease and aging.”
Nearly 1,000 PatientsLikeMe members submitted applications for this year’s team. The 2018 members include 10 women and three men representing a cross section of medical and professional backgrounds, ages and conditions, including: amyotrophic lateral sclerosis (ALS); bipolar disorder; breast cancer; epilepsy; fibromyalgia; lupus; major depressive disorder (MDD); multiple myeloma; multiple sclerosis (MS); Parkinson’s disease; and rheumatoid arthritis (RA). The members named to the team are: Elizabeth Asdorian; Kip Edwards; Marcia Holman; Melinda Lowery; Bernadette Mroz; LaKeisha Parnell; Rich Pollock; Christine Von Raesfeld; Rosie Stambaugh; Paul Tavano; Alysia Taylor; Susan Tomasic; and Jeanette Alston-Watkins.
Rosie Stambaugh joined PatientsLikeMe in 2010, and is living with MDD and fibromyalgia. “There’s an isolation when you’re chronically ill that can work against you. PatientsLikeMe gives you a lifeline to hold onto. You’re talking to people and sharing data and insights, so that everyone can help each other. As an advisor, I will be able to raise my impact by providing hope and answers to those getting diagnosed, today and in the future.”
The 2018 Team of Advisors recently kicked off its 12-month collaboration with PatientsLikeMe in Cambridge, Massachusetts, and will convene several times during the upcoming year.
PatientsLikeMe, the world’s largest personalized health network, helps people find new options for treatments, connect with others, and take action to improve their outcomes. The company has worked with every major pharmaceutical company and a range of government organizations to bring the patient voice to research, development and public policy. With more than 600,000 members, PatientsLikeMe is a trusted source for real-world disease information and a clinically robust resource that has published more than 100 research studies. Visit us at www.patientslikeme.com or follow us via our blog, Twitter or Facebook.
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