14 posts tagged “diabetes type 2”

Member JoeSixPack shares his experience with diabetes

Posted January 3rd, 2017 by

Say hello to Peter (JoeSixPack), a father of three and member of the diabetes community. He was first diagnosed with type 2 diabetes in 1998 when he was 34 years old. In a recent interview, he told us about his life-long struggle with his weight, managing treatment, and how he found the motivation to lose weight and quit smoking.

Check out what he had to say about life with diabetic neuropathy and coming to terms with the realization that he’s not invincible.

Peter before and after his weightloss

Tell us a little bit about who you are. What was life like before your diagnosis? How has life changed since your diagnosis?

I am a 62-year-old male that was married to the same lady for 40 years prior to her death in September 2013.  When I married my wife I weighed in at 335 pounds.  I was an executive with a financial company for the previous 12 years and eventually Peripheral Neuropathy had gotten so bad it finally put me off work in January 2015.  I was diagnosed Type 2 Diabetic in August of 1988 and struggled with my blood sugar levels for most of my adult life.  Like most 34-year-old men, I regarded myself invincible so prior to my diagnosis. I had taken life for granted and believed that I could continue along on a path to self-destruction until I took ill for about a year. No one seemed to be able to pinpoint exactly what the problem was.

When the diabetes chose to completely reveal itself it was in the way of uncontrollable thirst, numerous bathroom trips through the night and I was unable to get enough sleep through the night in order to properly function at work the next day. I was prescribed a drug for the time called Glyburide. It was because of the success of this drug that I went right back to my old habits of poor diet, lack of exercise and I was rapidly becoming a workaholic in a very high stress occupation.

After about 4 years on the drug and gaining another 15 pounds my illness broke through again and I was referred to an Endocrinologist for further direction. He changed up my Glyburide to a new drug called Metformin, sent me off to a Dietician. I was no stranger to dieting as I had been a fat guy my entire life. I joined Weight Watchers and promptly lost 75 pounds but by the time I met my wife I had reached a new high of 335 pounds. I knew I needed to lose some weight in order to stay active with the now 3 young kids in our life so I signed on to the Liquid Protein Diet. From August 1 that year until Nov 30 I was able to shed 130 pounds. It didn’t take me long to return to old habits and within 2 years I had regained the 130 pounds and was now tipping the scales around 360 pounds.

I was never really concerned about the diabetes and I went days where I would take my meds and other days I would not never realizing the damage that my obesity was doing.  I ate with reckless abandon, smoked 3 packs of cigarettes a day, and still I was taking my medication only when I was not feeling well and not as prescribed by my doctor. The more weight I put on the more meds I would be prescribed.  I went to see my family doctor and told him I was tired of taking pills.  He told me to go away and lose 60 pounds before he would even discuss a med change with me.  I left his office determined to do 2 things that year 1. Lose weight; and 2. Quit smoking.

So on July 31, 2000 I stopped cold turkey on the cigarettes changed up my diet and began to walk every day.  First day I went out my front door and I said to myself anyone can walk around the block. A block turned into 2 then 10 then a mile then 5+ miles daily.  The weight began falling off at a rapid pace and I felt so good I took myself of all my meds. I kept walking hoping my blood pressure would eventually respond. I was now down 108 pounds but found a lot of times I would have my walk cut short because of shortness of breath. As I lost more weight I was unable to complete any of my training. In November 2002 went under the knife for a triple bypass!  From 2002 until 2006 I worked out like a mad fool.

In 2006 I was promoted to the Regional Manager of the company I worked for and began ignoring my health in favor of my job.  I stopped going to the gym and stopped all forms of exercise and once again became a workaholic. I stayed around 330 pounds from 2007 until 2015 but I knew that the diabetes had taken a toll on my feet and hands as my feet were constantly burning.

I went in for a proper diagnosis and was told I had advanced Peripheral Neuropathy and was prescribed Lyrica to try and combat the nightly pain I was now feeling.  Seems the Lyrica was okay for the pain in my feet (100 mg 3 X’s daily) but now I began to notice the neuropathy in my hands and my doctor referred to this as focal neuropathy. In July of 2013 I noticed a tiny crack on the heel of my left foot.  This rapidly turned into a diabetic foot ulcer and I looked to the PatientsLikeMe forums to see how to go about healing this.

How would you describe living with diabetic neuropathy to someone who’s never heard of it?

Living with diabetic neuropathy is somewhat perplexing in the fact when it first shows up it comes as a small tingle in the foot and toes.  As it progresses it started to resemble gout but the more I treated my feet for gout the worse the feet became.  Eventually I made an appointment with a Diabetic Foot Nurse and she was able to detect peripheral neuropathy in both large toes and both small toes and I was sent to report this to my endocrinologist.  Slowly as the neuropathy progressed the tingling in the feet began to get worse and even more so at night when I was laying in a prone position.  Now that I have had the disease for almost 5 years I have nights the tingling and pain go as high as above the knees and it has also moved into my hands.

It has also caused the muscle mass in my hands to deteriorate and it has become very noticeable as my hands are looking like those of an 80-year-old.  My doctor increased my dose at bedtime to 150 mg of Lyrica and 3 Oxycocet along with .05 to 1 mg of Clonazepam as needed for sleep.  This prescription has been working to date but somewhere along the line I have developed a loud ringing in my left ear that seems to get louder as the drugs wear off in my system. Eventually the lack of the ability to get a good night’s sleep put me off work and I have been unable to work for the past 2 years as the disease consumes your life.  Things you may have taken for granted you are no longer able to do alone any longer.  You cannot put on your own shoes nor tie them up, cannot button up your shirt or zip your coat.  Very hard to check the temperature of water so you need assistance with the shower or bath (very easy to burn yourself). A lot of daily chores you used to do you can no longer do.  And because this is a disease of the central nervous system, I have no idea what the disease is doing on the inside of me.

In the forums, you talk about the importance of good nutrition and diet. How has this helped you manage your diabetes?

Recently I have taken on a LCHF Program Lifestyle change (Low Carbs High Fat) and in the past 10 months I have lost 111 pounds following this lifestyle and it has allowed me to get off all of my Diabetes medication (20 Units 2 x’s a day of Levemir, 3,000 mg of Metformin daily, 240 mg of Diamicron Gliclazide daily and 100 mg of Januvia daily). Unfortunately, I have been unable to shake the effects and symptoms of the Neuropathy but I have my fingers crossed that I may have stopped it in its tracks.  If that is the case I may have just added a few more years to the end of my life.

You’re super active in the forums – what’s it been like connecting with others on PLM? What does it mean to you to donate your data?

I was so excited when I found the website PLM as I was finally able to connect with other people that were either suffering for the same issue. It gave me hope that someone may have found out something about the diseases I have that would maybe help me live a better life living with both Type 2 Diabetes and Peripheral Neuropathy.  One thing I never did through all this is give up. I always believed the more like-minds discussed their common issues, the better the chance someone somewhere might just stumble across something that actually works.

I feel that the LCHF Program has done wonders for me and had I found this information out about 10 years sooner I believe I would never had met the disease called Peripheral Neuropathy.  So I try to stay as active as possible on the site providing information that people might otherwise not be able to find on their own.

I currently volunteer for the Canadian Diabetes Diabetic Foot Program and they will not even allow me to tell fellow Diabetics how I lost my weight and how it has helped me. They won’t allow me to even discuss my hands in the program presentation.  They feel that since my LCHF program is such a fringe program it is not likely to work for anyone else the way it has worked for me and I am sorry but I do not agree with them. Effective Nov 18, 2017 I will be resigning from that program as I feel modern medicine does not care if we get better or not. Doctors have little concern for us being able to stop a disease like Diabetes or Neuropathy and especially using a High Fat Diet.  If I can turn just one person with Diabetes onto this way of eating and it stops their Diabetes and never develops into a secondary disease such as Peripheral Neuropathy, I will have done wonders to help my fellow PLM participants.

 

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Member Susan shares about life with type 2 diabetes

Posted December 20th, 2016 by

Meet Susan (sugarpolicewoman) from Montgomery, Alabama. She loves birds, flowers and kittens and was diagnosed with type 2 diabetes over 40 years ago.

Check out her story to learn more about how she manages her condition while living in an assisted living facility.

Can you tell us a little about yourself? What are your passions?

I caught diabetes from my dad, who had diabetes, type 1.  I have type 2. I grew up in a Methodist preacher’s homes. We moved around an average of every four years, although my dad was a District Superintendent for six years once.  I had to switch schools quite a bit due to moving, therefore I never did develop close friendships, only casual acquaintances. We lived in several towns and cities in the state of South Carolina. When I was 14 years old, I caught chicken pox from my younger sister. The case was bad, probably because I had the pox later in life instead of during my younger years. When I had mumps, doctors still visited and treated sick people in the home. In front of me, my doctor told my mother I could have all the Coca-Cola I wanted. Unconsciously perhaps, that might have been the start of my diabetes.

I did not really discover diabetes until I was approximately 25 years old. Mercifully, I did not get sick during my college years. I have had my tonsils taken out, and also my spleen taken out because it was eating up my white blood vessels. I donated blood to the Red Cross one time, but that stopped when it was evident I had diabetes. I have loved books ever since they were read to me as a child, so quite naturally, I chose to be a librarian after college graduation where I majored in Library Science and minored in English. At first, I worked in a school library for one year, but working around teenagers just wasn’t for me. I worked a total of 40 years and 12 days as a federal employee in government libraries.

A favorite thing to do in junior high school and high school was reading books. One favorite time when I was a college student, I was playing softball during gym when my gym teacher had to play with us because there was not enough of us for 2 teams. I played left field, and caught her fly ball! I will never forget that! Now, during my “golden years,” I never seem to get enough time to be on my computer. I live in an assisted living facility, so the television is very welcome company! The computer is my main source for communication.

You were diagnosed over 40 years ago. Are there aspects of your condition that you still find challenging?

Diabetes can be a tricky disease. Management of my blood sugar levels has been very frustrating at times. Most the time, I know by hindsight what causes my sugar level to rise, but by then, my sugar has already risen. There is no easy way to manage blood sugar levels. You have to work hard. Other times, my sugar levels will bounce up and down like a yoyo. Once or twice, my sugar dropped low enough that I wound up in the emergency room. When the sugar level gets too low, you pass out. I was trying the wrong way to regulate my blood sugar level. The most recent challenge has been my fatigue. I feel really tired to the point that I just sit and watch television instead of doing my main daily job of putting clean clothes away. The fatigue is caused by high blood sugar. I recently discovered my dry mouth is also a symptom of high blood sugar. Thank goodness, I can solve this by drinking some cold ice water! Thinking about my husband’s declining health contributes and just adds to all the challenges.

In the forums you talk about managing your sugar in an assisted living facility where you have a restricted choice of food. Do you have any advice for others who might be in a similar situation?

The assisted living facility where I live has 24 residents in my building. There are four buildings or cottages on the campus. Meals are cooked and served to us in the dining room inside my cottage.  Meals are where the main challenge of managing my blood sugar levels becomes hard. I have very little choice of what to eat. We residents must choose if some of the foods on our plates are not diabetes friendly. Sometimes I have no choice but to eat pasta, bread, white rice or white potatoes if the menu is limited to very few items. My advice to other PatientsLikeMe members would be to do what I am trying to do. I try not to eat what I can do without. For example, if I can skip it, I avoid eating white rice or white potatoes because when these two foods get inside the body, they turn into sugar. Sugar is the diabetic’s enemy. Of course, I’d be forced to eat white rice if the cook mixes the rice with something else and creates a casserole for either lunch or dinner.

Has PatientsLikeMe has helped you manage your condition? What does it mean to you to donate your data?

When I post descriptive sentences about my condition or test results, this reminds me I must do something to improve the status of my condition. PatientsLikeMe helps me treat myself! If by donating this information about myself helps someone else, that would be wonderful!

 

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