delayed diagnosis

Pre-diagnosis limbo: “I knew something was wrong”

Conditions, Patient Experiences / By

Before you were diagnosed with your condition, how long did you live in “limbo” with your symptoms and what was that like? Living with the unknown is a common part of the patient experience — PatientsLikeMe data shows that people with a wide range of health conditions live with their symptoms for several months or […]

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Searching for a Diagnosis: An Interview with Lyme Disease Patient Pampe

8 Comments / Fibromyalgia, Patient Experiences, Rare Diseases / By

Getting the right diagnosis can take many years, or in the case of PatientsLikeMe patient Pampe, many decades.  After experiencing her first Lyme disease symptom in 1973, it was not until 2012 that she finally received a diagnosis that explained her many symptoms.  Discover what hindered the process and what’s she learned along the way

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