4 posts tagged “chronic pain”

Connect about pain: The new Chronic Pain forum is live on PatientsLikeMe

Posted June 22nd, 2018 by

Our members have been asking us for years for a place to discuss chronic pain on PatientsLikeMe. We heard you.

The new Chronic Pain forum is here, and it’s a place for members with any health condition(s) to connect on the topic of pain – from your treatment experiences to day-to-day living with recurring or long-lasting pain.

Here’s a little background about why we’ve created this new forum:

  • Pain is common among patients, and it’s one of the “core symptoms” that PatientsLikeMe asks members about.
  • In looking at how pain affects members of the PatientsLikeMe community, more than half of all patients who’ve reported the severity of their pain have rated it as “moderate or severe” (learn more about members’ experiences with pain here).
  • In the U.S., an estimated 25.3 million adults (11.2 percent) experience chronic pain, according to a 2015 National Institutes of Health report (which defines chronic pain as “pain every day for the preceding 3 months”).

Looking to discuss your experiences with chronic pain? Join PatientsLikeMe today.

Already a PatientsLikeMe member? If you login and the Chronic Pain forum doesn’t already appear in your forums dropdown menu and you’d like to join the community, head to the “Manage my forums” page, scroll down to “Other forums,” find “Chronic Pain” and click the “Join” button.

We hope you’ll join the conversation!

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PatientsLikeMe member Tam builds first-ever ‘by patients, for patients’ health measure on the Open Research Exchange

Posted January 21st, 2015 by

Back in March last year, we shared on the blog about a new grant from the Robert Wood Johnson Foundation that would help support two patient-led projects on our Open Research Exchange (ORE) , a platform that brings patients and researchers together to develop the most effective tools for measuring disease. We were overwhelmed by the response from the community, and we’re excited to share that one of those projects is very close to being completed.

Tam is living with multiple sclerosis (MS), and she’s been a PatientsLikeMe member for more than 4 years. After her diagnosis and experiences with her doctors not “getting” what pain means to her, Tam decided to create a new tool for anyone who might be experiencing chronic pain. Her idea is to build a measure that can help doctors better understand and communicate with patients about pain.

Watch her video above to learn about her journey and listen to her explain her inspiration behind the new ORE project.

Share this post on Twitter and help spread the word for MS and chronic pain.