Your home is your sanctuary, but if you’ve recently been diagnosed with amyotrophic lateral sclerosis (ALS), it may feel like that sanctuary isn’t as safe as it used to be. As the illness progresses, it can become harder to move around your home and do the daily tasks you used to do. Because ALS is a […]
How to Adapt Your Living Space and Daily Activities for ALS Read More »
One day, you’re relaxing on the couch and notice your hand is shaking. Has it always done that, or is it new? But when you go to pick something up, you notice the shaking stops. You may have noticed other minor changes like your movement is slowing down or your limbs feel unusually stiff. You could pass all of
Early Signs of Parkinson’s Disease Read More »
At some point in your life, you’ve engaged in some kind of physical activity. Maybe you were an athlete as a child, take your dog for regular walks, or enjoy the serenity of a yoga class. Then you were hit with the diagnosis and progression of your chronic illness, causing you to slow down exercise
5 Tips for Exercising with Chronic Illness Read More »
After months or even years of experiencing symptoms like extreme fatigue, skin rashes, pain, or swelling in the joints, you finally got a diagnosis. It’s lupus. Because symptoms differ from person to person, can come and go, vary in intensity, and mimic symptoms of various other diseases, lupus can be difficult to diagnose. Lupus is a
7 Things You Need to Know About Living with Lupus Read More »
The Center of Disease Control reports that six in ten adults in the United States have a chronic illness, like multiple sclerosis, ALS, diabetes, kidney disease, and major depressive disorder. Because chronic illness is so common, it’s likely you have a friend, parent, co-worker, or maybe even you, have one. Chronic illnesses can be tricky
10 Things Not to Say to Someone with Chronic Illness Read More »
The pandemic forced many people to spend more time indoors and engaged in technology. Since the start of the pandemic, the average American spent 90 percent of their time indoors. With all this time indoors, Americans spent 7 hours and 50 minutes per day consuming media alone. Now think about how much time you spend on
Health Benefits of Being In Nature Read More »
Living with irritable bowel syndrome (IBS) is a constant battle that leaves many feeling frustrated, exhausted, and emotionally drained. There are days when symptoms are so strong, it prevents you from the daily tasks you want, and need to be doing. While it’s completely normal to feel this way, it is important to learn to
5 Tips for Managing Irritable Bowel Syndrome (IBS) Read More »
In case you missed it or you’re not on Instagram, on World Lupus Day (May 10), PatientsLikeMe member Christine took over our Instagram to share her experiences and help raise awareness of lupus (May is Lupus Awareness Month). Christine is a native Californian, a social butterfly, an advocate and a member of our 2018 Team of Advisors (check
Member Christine’s Instagram takeover for World Lupus Day Read More »
Pain, fatigue and other symptoms can make spring cleaning and household chores… stink! We’ve rounded up some tips, tricks and life hacks for cleaning and doing laundry when you have a health condition. 1. Make a plan. Write out your cleaning to-do list (or find a free printable one online) and tackle your top priorities first.
13 Spring Clean Laundry Hacks when you have a Health Condition Read More »
Say hello to Cyrena, another member of your 2015-2016 Team of Advisors. Cyrena is living with bipolar II and lupus, and currently a PhD candidate in pharmacology. Cyrena describes some days with her conditions as “swimming through a vat of molasses” — which makes managing her intensive student workload along with her health a
Meet Cyrena from the PatientsLikeMe Team of Advisors Read More »
