chronic fatigue syndrome

7 Things You Need to Know About Living with Lupus

After months or even years of experiencing symptoms like extreme fatigue, skin rashes, pain, or swelling in the joints, you finally got a diagnosis. It’s lupus. Because symptoms differ from person to person, can come and go, vary in intensity, and mimic symptoms of various other diseases, lupus can be difficult to diagnose. Lupus is a […]

7 Things You Need to Know About Living with Lupus Read More »

Shout out to The Golden Girls: Shows and movies that “get” chronic illness

‘Tis the season for binge-watching — but the media often flops in its portrayal of people with health conditions. So we’ve gathered patient perspectives on Hollywood depictions of illness and who’s gotten it right (thanks, Bea Arthur). When doctors doubted Dorothy A writer for The Mighty who has multiple health condition recently praised The Golden Girls for it’s portrayal

Shout out to The Golden Girls: Shows and movies that “get” chronic illness Read More »

“In my own words” – PatientsLikeMe member Tam writes about (your) life with MS

If you were living with multiple sclerosis (MS) and someone said to you, “Well I get tired too, but I don’t go lay down in bed all day,” how would you respond? Invisible symptoms like pain and fatigue are hard to describe to someone who doesn’t get it or isn’t living with MS. But to

“In my own words” – PatientsLikeMe member Tam writes about (your) life with MS Read More »

Canary in a Coal Mine- Raising awareness for myalgic encephalomyelitis

Everyday on PatientsLikeMe, people just like you are sharing their experiences, contributing to real-time research and raising awareness, together. Jen is part of your patient community and is living with myalgic encephalomyelitis (ME), sometimes called chronic fatigue syndrome. She’s working on a new project called Canary in a Coal Mine to help shed light on this largely

Canary in a Coal Mine- Raising awareness for myalgic encephalomyelitis Read More »

May 12th, International Awareness Day for Chronic Immunological & Neurological Diseases

Did you know that May 12th was chosen for International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) because it’s also Florence Nightingale’s birthday? She was a statistician, social reformer and is credited as the founder of modern nursing. It’s also believed that she suffered from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). That’s just one

May 12th, International Awareness Day for Chronic Immunological & Neurological Diseases Read More »

Bringing PatientsLikeMe into the Doctor’s Office: An Interview with Pediatrician Dr. Jim King

You may recall that in July we shared a video about Doctors 2.0 and You, a conference focused on how physicians are using web 2.0 technology.  Today we’d like to present a real-life example of this concept: Dr. Jim King, MSc, MD, FRCPC.  A pediatrician at the Children’s Hospital of Eastern Ontario (CHEO) in Ottawa,

Bringing PatientsLikeMe into the Doctor’s Office: An Interview with Pediatrician Dr. Jim King Read More »

A Year in Review: PatientsLikeMe in 2009

As 2009 comes to an end, we want to take this opportunity to thank all of our members, partners and general fans for another great year.   Here’s a recap of some of the exciting happenings at PatientsLikeMe these past 12 months.  Wishing you all a Happy New Year! Community Milestones This year, the 15+ disease

A Year in Review: PatientsLikeMe in 2009 Read More »

PatientsLikeMe Adds Online Community for People With Chronic Fatigue Syndrome

PatientsLikeMe made the following announcement last night at the TEDMED conference.  For more on Jamie Heywood’s presentation, check out what people are saying on Twitter. – – – – – – – PATIENTSLIKEME ADDS ONLINE COMMUNITY FOR PEOPLE WITH CHRONIC FATIGUE SYNDROME Researchers Use Open Medical Network to Measure Real-World Impact of XMRV Virus Cambridge,

PatientsLikeMe Adds Online Community for People With Chronic Fatigue Syndrome Read More »

Scroll to Top