2 posts tagged “chronic disease”

Connect about pain: The new Chronic Pain forum is live on PatientsLikeMe

Posted June 22nd, 2018 by

Our members have been asking us for years for a place to discuss chronic pain on PatientsLikeMe. We heard you.

The new Chronic Pain forum is here, and it’s a place for members with any health condition(s) to connect on the topic of pain – from your treatment experiences to day-to-day living with recurring or long-lasting pain.

Here’s a little background about why we’ve created this new forum:

  • Pain is common among patients, and it’s one of the “core symptoms” that PatientsLikeMe asks members about.
  • In looking at how pain affects members of the PatientsLikeMe community, more than half of all patients who’ve reported the severity of their pain have rated it as “moderate or severe” (learn more about members’ experiences with pain here).
  • In the U.S., an estimated 25.3 million adults (11.2 percent) experience chronic pain, according to a 2015 National Institutes of Health report (which defines chronic pain as “pain every day for the preceding 3 months”).

Looking to discuss your experiences with chronic pain? Join PatientsLikeMe today.

Already a PatientsLikeMe member? If you login and the Chronic Pain forum doesn’t already appear in your forums dropdown menu and you’d like to join the community, head to the “Manage my forums” page, scroll down to “Other forums,” find “Chronic Pain” and click the “Join” button.

We hope you’ll join the conversation!

Share this post on Twitter and help spread the word.


Putting Psoriasis on the Map for World Psoriasis Day

Posted October 29th, 2012 by

Today, October 29th, is World Psoriasis Day, sponsored by the International Federation of Psoriasis Associations.  Here in the US, the National Psoriasis Foundation has created a special website – WorldofPsoriasis.com – for the occasion that illustrates the global nature of this chronic autoimmune disease, which affects 125 million people worldwide or nearly three percent of the world’s population.

WorldofPsoriasis.com's Interactive Map of Psoriasis Patients Around the Globe.  Click Each Red Pin to Find Stories, Photos and Videos.

Now those living with psoriasis and psoriatic arthritis can “get on the map” by adding a clickable pin for their location that shares their personal stories and photos.  The goal is to get psoriasis patients everywhere to proclaim “I have psoriasis” while also learning about others like them around the globe, such as Arvin O. Ravalo from the Phillipines, Saraswati Gautham from Nepal and Dr. Andres Felipe Jiminez Morales from Columbia.

What are the physical and emotional challenges of psoriasis?  Earlier this year, PatientsLikeMe interviewed four members who are blogging about life with psoriasis in order to shed light on this highly visible and often misunderstood disease, which affects as many as 7.5 million Americans and is the most common autoimmune condition in the US.  Check out our insightful interviews with:

  • Lissa of “Psoriasis Girl’s Point of View”
  • Alisha of “Being Me in My Own Skin”
  • Jessica of “Jessica and Psoriasis”
  • Joni of “Just a Girl with Spots”

Common Psoriasis Symptoms Reported by PatientsLikeMe Members.  (Click Through to See the Full PatientsLikeMe Condition Report.)

These four brave ladies are just the tip of the iceberg, however.  2,470+ patients are sharing their experiences with psoriasis at PatientsLikeMe – including how it affects their quality of life and what percentage of their body is affected – while 840+ patients are sharing about their psoriatic arthritis as well.  Get to know our growing psoriasis community and check out the results of our recent psoriasis patient survey about the impact of summer weather.  Also, don’t miss our upcoming blog post about the five different types of psoriasis!