“We’re just getting started on a long road to really impact your individual disease and your quality of life…” Each week this month, we’ll be posting a video interview with a member of the PatientsLikeMe executive team. You’ll hear from Ben Heywood, Jamie Heywood, David S. Williams and Paul Wicks, Ph.D. about what the recent […]
One for All (Video): The Road Ahead at PatientsLikeMe Read More »
“I think we can see there are a lot of ways where openness can be powerful. What’s necessary is to help facilitate openness and reduce the barriers to sharing medical information.” – Ben Heywood PatientsLikeMe Co-Founder Ben Heywood has blogged previously about openness and sharing – and how important they are for patients. In this
PatientsLikeMeOnCall™: “A Look Ahead” at Openness in Healthcare (Episode 4) Read More »
PatientsLikeMeOnCall™ is proud to present a new podcast series called “A Look Ahead.” Through these dynamic podcasts, we will be diving into the major shifts PatientsLikeMe sees ahead for patients, patient care and patient/industry collaboration. At the end of 2010, PatientsLikeMeOnCall released an episode called “The Patient Rules.” In this group podcast, we sat down with
Look Ahead with PatientsLikeMeOnCall™ Read More »
We recently sat down with our executive team here at PatientsLikeMe in our first-ever roundtable-format podcast. In this PatientsLikeMeOnCallTM interview, we ask Co-founders Ben and Jamie Heywood, Chief Marketing Officer David S. Williams III, and R&D Director Paul Wicks PhD to discuss why our recent series themes are so important to the history and future
The Patient Rules. A Discussion with the PatientsLikeMe Executives Read More »
Last month, I spoke once again at the Health 2.0 conference in San Francisco. The video of my presentation is now online. Here’s a snapshot of what I covered in the 6-minute talk: The wealth of data shared in a PatientsLikeMe treatment reports (e.g., what fibromyalgia patients are sharing about Cymbalta and Lyrica) A suite
PatientsLikeMe at Health 2.0: Paths to Insight Read More »
In response to the Wall Street Journal article published last week, we’ve had a lot of great discussions about the role of honesty and transparency. Transparency is about you – members of the PatientsLikeMe community – knowing how we make money and what we do with the data you’ve entrusted to each other and PatientsLikeMe.
What Data Do We Sell? A Continued Discussion about “Data Scraping” Read More »
Journalist Julia Angwin of the Wall Street Journal just published an article describing how a major media monitoring company, Nielsen BuzzMetrics, scraped our forum last Spring. (See my previous blog post on the incident – “Transparency, Openness and Privacy”) Julia’s piece includes details regarding how this incident happened, how we (and you) responded and more.
PatientsLikeMe in Wall Street Journal: Transparency, Openness and Privacy (cont’d) Read More »
The following message was sent this morning to all members of PatientsLikeMe. Please read what we have to say about openness, sharing and its privacy implications and join the conversation. **** Dear PatientsLikeMe Members, What are the privacy implications of sharing in this open, online community? We talk a lot about this and, as a
Transparency, Openness and Privacy Read More »
The PatientsLikeMe team has been traveling around the globe recently talking about the power of real-world patient data in changing healthcare. You may have heard about our executives at industry conferences, government hearings, or even on TV. Highlights below. Last month, PatientsLikeMe Co-founder and President Ben Heywood was on Fox Business News talking about how
PatientsLikeMe – Out & About and OnCall Read More »
It’s been an exciting few months for PatientsLikeMe. Here’s a quick recap… Today, Fast Company released its annual ranking of the 50 Most Innovative Companies in the World. PatientsLikeMe made #23 on the list alongside big league companies like Facebook, Disney, Novartis and Amazon. PatientsLikeMe was also named the second most innovative company in healthcare,
Who’s #2 in Healthcare Innovation?
You guessed it – PatientsLikeMe Read More »
