12 posts tagged “award”

PatientsLikeMe Co-Founders Jamie and Ben Heywood Win International Alliance of ALS/MND Associations 2016 Humanitarian Award

Posted December 8th, 2016 by

DUBLIN—December 8, 2016—A decade after their work sparked a revolution in patient empowerment and patient-centered medicine, PatientsLikeMe co-founders Jamie and Ben Heywood were awarded the 2016 Humanitarian Award by the International Alliance of ALS/MND Associations.

Inaugurated in 2000, the Humanitarian Award recognizes and encourages contributions to the fight against Amyotrophic Lateral Sclerosis/Motor Neurone Disease (ALS/MND) and is awarded to those whose work is of international significance for people affected by ALS/MND.

In presenting the award, the Alliance’s citation acknowledged the founding of both the patient network PatientsLikeMe and the ALS Therapy Development Institute (ALS TDI), the world’s first non-profit biotechnology company. “When their brother was diagnosed with ALS at the age of 29, James Allen Heywood and Benjamin Heywood were devastated at his prognosis and at the lack of effective treatments for the disease. They saw firsthand how isolating ALS/MND can be. They took up these challenges as a family and, with family and friends, founded two organizations: ALS TDI, tasked with finding effective treatments for the condition, and PatientsLikeMe, to tackle social isolation and to collect data on what other drugs, interventions or supplements might make a difference to those with ALS/MND.”

Jamie Heywood thanked the association on behalf of his family and PatientsLikeMe members and staff and said the company is ready to lead the next decade of advancements in research and medicine, with and for patients. “We changed the rules by helping patients digitize and share their experience so they could make more informed decisions about how to live with and treat their condition. Now we’re embarking on the next stage of the journey by piloting biomarker discovery in ALS and other conditions. We hope many more patients will join us as we work together to find new answers.”

More information about how to be part of PatientsLikeMe’s upcoming research in ALS/MND is available at www.patientslikeme.com/advanceals.

About PatientsLikeMe
PatientsLikeMe is a patient network that improves lives and a real-time research platform that advances medicine. Through the network, patients connect with others who have the same disease or condition and track and share their own experiences. In the process, they generate data about the real-world nature of disease that help researchers, pharmaceutical companies, regulators, providers, and nonprofits develop more effective products, services, and care. With more than 400,000 members, PatientsLikeMe is a trusted source for real-world disease information and a clinically robust resource that has published more than 85 research studies. Visit us at www.patientslikeme.com or follow us via our blog, Twitter or Facebook.

Contact                                                                                                                Margot Carlson Delogne
PatientsLikeMe
781.492.1039
mcdelogne@patientslikeme.com

 


Compassion for all: Terry Yoas, CNA – Schwartz Center NCCY Award finalist

Posted November 18th, 2015 by

Tonight, the recipient of the National Compassionate Caregiver of the Year (NCCY) Award, from our partners at the Schwartz Center for Compassionate Healthcare, will be presented to one of six nominees at the 20th Annual Kenneth B. Schwartz Compassionate Healthcare Dinner in Boston. 

Today we’re highlighting the sixth and final nominee for the NCCY Award. We’ve already introduced five of the nominees, including Rick Boyte, MD, Melody J. Cunningham, MD, Cheryl D. Kane, MEd, BSN, RN, Krista Nelson, MSW, LCSW, OSW-C and Jayne O’Malley, BSN, RN, OCN.

Terry Yoas, CNA
Santa Rosa Memorial Hospital (Santa Rosa, California)

“He ensures the dignity of our patients by going the extra step to make a connection with each person at an individual level.” – A colleague

Terry Yoas is well known for his cheerful Hawaiian shirts that have become his trademark and working uniform as a care partner at Santa Rosa Memorial Hospital’s oncology unit. For the past 16 years, Terry has created and continues to establish a welcoming, safe and caring second home for cancer patients and their families. Although becoming a certified nursing assistant was something Terry pursued later in life, it seems he was always destined to find his own home at Santa Rosa Memorial Hospital, where he was born.

“I feel like I didn’t choose oncology, oncology chose me,” says Terry, who believes that every encounter with a person is a chance to make a positive difference in that person’s life. “If you’re doing it right, you’re going to get just as much out of caring for that person as that person is going to get from you.”

For Terry, this isn’t just his job—caring for others is something he loves to do. He finds ways to connect with every patient, learning their personal story and listening attentively to their needs.

“Terry made it possible for me to start to step out of my depression. He gave me hope,” says a patient.

Terry also has a knack for remembering the small details that can make a big difference, like determining how a patient likes her coffee and having it ready each day. During his time off, Terry often comes to sit with patients who are having a rough day or at the end of life, or stops by the ICU to comfort patients and families who have been in his care and whose condition may have worsened.

“He instills hope through his gentleness, humility and the ever-present joy and pride with which he performs his work,” says a colleague. “Terry treats each person for whom he cares like a member of his own family.”

Over the years, Terry has formed many bonds with his patients and families. One poignant example of compassion was the time Terry came in on his day off to fashion a customized wheelchair with his own tools for one of his patients who had become increasingly dependent on IV medications, which made it a challenge to leave the room. After some teamwork and ingenuity, Terry and his patient rigged together a wheelchair that could carry all of the necessary medical equipment. Together, they wheeled to the healing garden and creek to enjoy the outdoors. Terry will never forget the big smile on this patient’s face, because to Terry, “compassionate care is the only kind of care.”
Stay tuned for the winner of the NCCY Award, which we’ll share on the blog tomorrow.

 

Let’s celebrate compassionate care, together.

Share this post on Twitter and help spread the word.