15 posts tagged “anxiety”

“It started tearing me down early”: Illustrator and writer Howie Noel shares about his upcoming graphic memoir on life with generalized anxiety disorder

Posted October 10th, 2017 by

Today is World Mental Health day, a day for education, awareness and advocacy, and that’s where Howie Noel’s story comes in. There are more than 30,000 members living with Generalized Anxiety Disorder on PatientsLikeMe, and it’s for people like these, people like him, that Noel wrote his semi-autobiographic illustrated memoir, Float. We recently sat down with him to talk about his book and how it came to be.

When art imitates life

Float is told from the perspective of three characters who act as symbols for Noel’s personality. The book follows the story of main character, David, and his experience living with generalized anxiety disorder. David has lost jobs and lovers, but the one constant in his life has always been Anxiety, and when his wife leaves him, he asks Anxiety to take over.

Graphic memoir about anxiety

Noel, a comic illustrator based in New Jersey, wrote and illustrated the book and draws material from his own experience living with generalized anxiety disorder. “In Float, anxiety begins as an inner voice that offers advice. That advice is not helpful but it’s comforting because it’s coming from my mind. Unfortunately, a lot of anxiety’s ideas are harmful and dangerous.” Noel says that throughout the book, one of the main struggles is to fight the urge to give in to anxiety’s most harmful suggestions. “Dealing with anxiety, you have to recognize that these thoughts are bad ideas and often irrational. Anxiety deals in fear and uses your mind as a weapon. You have to stay strong and fight back using your willpower.”

So, how does an illustrator with anxiety draw it as a character? We’ve often seen the condition depicted as a dark scribble or a monster, but Noel took a different approach. Anxiety is played by an alluring and charismatic rock star who is fighting for David’s undivided attention. “Anxiety wants to be the only friend you have,” Noel says of the character, “It’s an abusive and dangerous relationship because anxiety really wants me to be alone.”

Reflecting through words

The process of creating Float was more than just work, Noel says. “While working on Float I discovered a lot about my history with anxiety,” he said. “Creating the book urged me to reflect on moments in my past where anxiety caused me pain. It helped me discover how I let it control me and how I’d give in when I should’ve been fighting back.” Noel shared one of his earliest memories of experiencing anxiety, one that he didn’t even realized was anxiety-related until undertaking this endeavor. “One of the things that stands out most to me is discovering that my first anxiety attack occurred in first grade. I was being tested for the gifted class and according to the test-giver I started hyperventilating. As a result, I couldn’t finish the test. Looking back, I now realize this was an anxiety attack caused by the fear of the test and the time limit I was under. Unfortunately, the test-giver wasn’t able to recognize what was happening and, since then, we’ve all learned more about mental health and generalized anxiety disorder.”

Pairing language with music

For this creative project, Noel collaborated with friend and musician Victor Guest, who recorded a sound track to accompany the book. “With Float, I wanted to create a true art project that would give the viewer a special experience,” Noel said. “I’ve been friends with Victor for a long time and I’ve always been a fan of his music. I knew that he could help bring Float’s message to a new level by using music to express its story. It’s a way to help further spread the message about a battle with anxiety.”

Understanding life with anxiety

While Noel wrote this book for himself and those living with anxiety, he also wrote it for those who aren’t, who have no understanding of life with the condition and the challenges that come with it. His vibrant illustrations and descriptions offer some insight into what people with generalized anxiety disorder experience daily. “Many sadly believe that people who suffer from it are weak when, in fact, it’s the opposite. It takes true strength to continue on once you learn you can’t trust your own thoughts.”

Noel will be debuting the book at New York Comic Con and plans to release it on World Mental Health Day, October 10th. By speaking publicly about his diagnosis, he hopes to raise awareness and fight back against the stigma so often attached with the condition. “We have to talk about it and share lessons. We need to acknowledge that anxiety doesn’t have to drown us. We can float.”

To find out more about Howie Noel and Floatcheck out his interactive website, where you can also find links to social media to connect with Howie Noel directly.

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Women’s Health Week: Ginny reflects on motherhood and “the perfect storm” of epilepsy and mental health conditions

Posted May 19th, 2017 by

In honor of National Women’s Health Week, Team of Advisors member Ginny (Mrslinkgetter) shares what it’s like to live with multiple health conditions – including major depressive disorder (MDD), generalized anxiety disorder and epilepsy – as well as grief following the death of her son (who also had epilepsy and major depression). On PatientsLikeMe, hundreds of members report living with epilepsy along with depression and/or anxiety.

“I’ve had anxiety from my earliest memories,” she says. In her early 30s, she also began experiencing MDD. She was dealing with a move, very active children, and worsening migraines, pain and other symptoms.

“It was the perfect storm,” she says. Read on for more of her story, plus her tips for women dealing with multiple health conditions in their family.

My name is Ginny. I had 12 years of misdiagnosis, until I was appropriately diagnosed with epilepsy, psoriatic arthritis, major depression and anxiety.

In the middle of dealing with my own health issues, my son was diagnosed with epilepsy. I felt overwhelmed – extreme exhaustion beyond the norm for a mom and wife.

When I started Topamax, a seizure medication for my epilepsy, it raised my anxiety and I told my neurologist I had to have a depression/anxiety medication. While Topamax increased my anxiety, it also helped to lower my seizures and helped me regain my ability to think. Seizures were robbing my ability for complex thought. I still take Trokendi XR, a form of Topamax. Everyone’s response to these medications is unique, so talk with your doctor about how they affect you, especially if you have suicidal thoughts.

As a mom, I was unable to see how much my depression was impacting my parenting until I was on medication (Cymbalta) and started feeling less anxiety and depression. One month later I was traveling alone and I suddenly realized that I felt zero anxiety on the plane, elevator or city taxi – I felt freedom for the first time, ever!

“I realized my spouse and kids had a less than effective mother than they could have had during some of those years. I do not dwell on this since I cannot turn back the clock. I use this to tell other parents: I did the best that I could during those years – part of the time I did not even realize that I had depression and anxiety.”

Doctors and specialists were reluctant to diagnose me with depression. I was even placed on a depression medication at one time “to help with the migraines.” I was concerned because I did not want to be thought of as “crazy.” If my doctor had been more honest and said she felt I was depressed and I should try this medication, it would have been wiser. A doctor who can say, “sometimes depression also causes physical symptoms” – true fact – helps the patient to understand this and make informed health care decisions. 

“Being a mom when you have many physical and emotional issues is very challenging. I often put my children’s needs first. I got to the point when I knew I had to take care of my needs.”

When I did this, I knew I was doing the best for all of us. I could not take care of them if I was too depressed, too anxious or in too much physical pain. I teach this to other parents, at well.

My son’s anxiety was noticeable even at age 3. He was diagnosed with it formally at age 11, but not placed on medications for depression and anxiety until after his first two suicide attempts at age 15.

Sam’s mental health issues seemed intermingled with his epilepsy. They can be bi-directional, meaning they can occur before or after one another, according to Dr. Andres Kanner, who has studied how they’re related. Depression is the psychiatric disorder that occurs most frequently with epilepsy (affecting 20 to 50% of people with epilepsy, depending on epilepsy type). Learn more here. The suicide risk in people with epilepsy is more complicated. If you or someone you know expresses suicidal thoughts, please seek help through crisis resources like these.

Sam’s health issues taught me that we are so much more than a list of conditions. He taught me how to deal with – as well as how to advocate for – a person trying to cope with these life-and-death conditions. I learned how to speak to him and the importance of including people – a child, teen or adult – in decisions about their care.

I became an advocate at the national and state level so that our representatives could begin to understand what patients and families endure.

I found a program through the Epilepsy Foundation and asked if he wanted to apply to go to Washington D.C. to talk to senators and congressmen. He got in and we went. That began our lifetime odyssey.

People around the world learned about Sam’s life and death because others went on telling his story through the Epilepsy Foundation and the websites we went on. People had watched him grow from a little boy to a 20-year-old man. At 16, Sam used his artwork to help others with depression to find hope and help by creating Preventing Teen Tragedy.

I cope with my grief through continuing to help others. I had a non-profit for six years that worked with the Epilepsy Foundation. I was trained as a grief specialist. I use portions of Sam’s story with my clients at work as a Mobile Crisis family partner. I also talk to others online.

PatientsLikeMe has been a safe place for me to come and share, first while Sam was still alive. Now, having a safe place to come and read and talk has been such a great coping method for me. I cannot always share about my son fully in other places because people become uncomfortable. Sam died of suicide on his fourth attempt. 

“People forget that when a mother talks about her son, it is not about his death, it is about the fact that he lived. I have lost so many of my friends because they do not know what to say so they just stay away from me because they are not comfortable.”

Mental illness is not a weakness. Depression and anxiety are conditions of an organ in our body and should be treated as such. I can come to the website and know that others have answers to help me through the rough times. I do not need to weather this journey alone.

My tips for women and moms living with mental health conditions: 

  • Take care of yourself through a healthy diet. Depression may cause under- or over-eating. Do your best to work on changing how you eat.
  • Exercise, even when you don’t feel like doing it. I am 54 years old, work a 12.5-hour shift four days a week and do not feel like working out a lot of the time. I am adding in yoga, stretches, walking, and whatever else I can to keep moving. This helps all of my conditions.
  • Involve children in eating well and exercise. We used to kayak, play tag, walk and do what we could to stay active. When I felt moody around the kids I would tell them, “OK, it is time to walk the grump.” Before we would reach the end of the road, all of us would be in a better mood.

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