2015-2016 Team of Advisors

Patients as Partners: Gus and Maria talk partnering with your caregiver

1 Comment / ALS, Conditions / By

The 2015-2016 Team of Advisors recently introduced the Partnership Principles. They’ve been sharing personal stories about these principles in action to kick-off conversations on partnering with all sorts of people — medical students, clinical trial coordinators, and “normals.” Today, Team of Advisors member Gus along with his wife and caregiver, Maria, share about their special relationship and how […]

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Patients as Partners: Member Peggy on the diagnosis journey (Part I)

1 Comment / Conditions, Patient Experiences / By

Last week, Team of Advisors member Jeff kicked off a series of conversations about the Partnership Principles with his thoughts on partnering better with your care team. Today, Peggy (peggyznd) digs deeper into one area where strong relationships are key: getting diagnosed.  Peggy draws from her own experience with kidney cancer and breast cancer to

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Patients as Partners: Member Jeff on teaming up with your doctors

2 Comments / Conditions, Parkinson's Disease / By

This year, the Team of Advisors has been thinking about partnerships in healthcare. They introduced the Partnership Principles, outlining ways to make the most of your relationships with the many people you encounter in your health journey — medical students, clinical trial coordinators, and “normals.” Now, they’re each sharing personal stories about these principles in

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Meet Laura from the PatientsLikeMe Team of Advisors

1 Comment / Conditions, Pulmonary fibrosis / By

  We’d like to introduce you to Laura, another member of your 2015-2016 Team of Advisors. When Laura was diagnosed in 2013, she’d never heard of Idiopathic Pulmonary Fibrosis (IPF). Flash forward three years, and she’s made patient education and advocacy her main focus. Laura has spoken before the FDA, regularly blogs about IPF on various

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Meet Angela from the PatientsLikeMe Team of Advisors

1 Comment / Multiple Sclerosis, Patient Experiences / By

Say hello to Angela, another member of your 2015-2016 Team of Advisors. When she was diagnosed with MS in 2010, Angela was writing a book while balancing a busy schedule as a university lecturer and community volunteer. Angela sat down with us recently to talk about the new challenges of leading the life she wants

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Meet Cyrena from the PatientsLikeMe Team of Advisors

1 Comment / Bipolar disorder, Conditions, Patient Experiences / By

  Say hello to Cyrena, another member of your 2015-2016 Team of Advisors. Cyrena is living with bipolar II and lupus, and currently a PhD candidate in pharmacology. Cyrena describes some days with her conditions as “swimming through a vat of molasses” — which makes managing her intensive student workload along with her health a

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Meet Doug from the PatientsLikeMe Team of Advisors

Depression, Mental Health, Patient Experiences / By

We’d like to introduce you to Doug, another member of your 2015-2016 Team of Advisors. Doug is an actor, teacher and writer living with major depressive disorder (MDD). He’s been tracking his health on PatientsLikeMe since 2008. Doug feels there is a lot of stigma surrounding the term “mental illness,” and shares that one of

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Meet Peggy from the PatientsLikeMe Team of Advisors

1 Comment / Conditions / By

Say hello to Peggy, another member of your 2015-2016 PatientsLikeMe Team of Advisors. A survivor of both kidney cancer and Stage II breast cancer, Peggy believes that most of us are “ill-prepared to be ill,” and that better health education can lead to better outcomes. After years of teaching and volunteering, patient advocacy has come

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