Meet Alyshia Alyshia Merchant was always healthy, but as a busy mom, she did experience fatigue from time to time. However, it wasn’t until she was out to dinner in 2012 when the early signs of her condition became more apparent. Her friends pointed out a rash that had spread across her cheeks and nose. […]
From Lupus Diagnosis to Fearless Patient Advocate Read More »
What would someone who has lived with lupus (SLE) for decades tell her younger, newly diagnosed self? PatientsLikeMe member Hetlena (@TheLupusLiar), who was diagnosed with lupus in 1993, recently answered that question for us in the following personal essay reflecting on what she’s learned through the years… “This isn’t the end. There are other things
Stem cell therapy is a popular topic in the MS forum and some members are already tracking and evaluating their experience. How does it work? Are there risks? To find answers to your stem cell therapy questions, we asked our team of in-house health professionals to take a look at the current research What are stem cells?
Stem Cell Treatment For MS Read More »
Alyshia Merchant knows first-hand how lupus can affect you inside and out. After her diagnosis in 2012 and struggles with visible symptoms and self-esteem, she launched an organization called Making Lupus Look Good, which provides wigs and “glam sessions” to people with lupus-related hair loss and other symptoms. The organization currently serves people in Alyshia’s home
Lupus Weight Gain: Q&A with the founder of Making Lupus Look Good Read More »
Lupus can affect your reproductive health in a variety of ways throughout your life and can raise the risks of complications during pregnancy. Thanks to medical advances, the chances of having a safe pregnancy have improved — the key is careful planning. Check out this timeline of gynecological and reproductive health considerations when you have
Age-by-age guide to navigating reproductive health with lupus Read More »
With Father’s Day coming up this weekend, parenting is on our minds. Do you talk about your health with your kids, and how do you go about it? Read on to see where to get pointers as a parent living with cancer, a mental health condition or chronic illness. 5 sites or articles to
Discussing your health condition with kids? 5 handy resources Read More »
Surgery is among the most common treatments for people with lung cancer. Let’s take a closer look at various types of surgery for lung cancer, as well as emerging non-surgical and minimally invasive treatments, like CyberKnife or “SBRT,” cryosurgery and “VATS.” Huh? Read on… we’ll explain. Common types of lung cancer surgery Before we explore
CyberKnife, VATS + other surgical and less invasive treatments for lung cancer Read More »
In case you missed it or you’re not on Instagram, on World Lupus Day (May 10), PatientsLikeMe member Christine took over our Instagram to share her experiences and help raise awareness of lupus (May is Lupus Awareness Month). Christine is a native Californian, a social butterfly, an advocate and a member of our 2018 Team of Advisors (check
Member Christine’s Instagram takeover for World Lupus Day Read More »
The U.S. House of Representatives recently passed legislation that could give terminally ill patients the “right to try” experimental treatments — so what’s the controversy? Catch up on the topic and share your thoughts below. “Right-to-try,” in a nutshell The “right-to-try” bill aims to give terminally ill patients who’ve exhausted all other treatment options quicker
What’s the right-to-try bill + possible pros and cons? Read More »
Vitamin D is nicknamed “the sunshine vitamin” because catching some rays on bare skin triggers your body to produce it naturally. But what if lupus-related sun sensitivity (not to mention the winter weather) restricts your sun exposure? Take a peek at some key info on vitamin D deficiency, plus learn some dietary sources of this
Lupus and vitamin D deficiency – get the lowdown Read More »
