16 posts in the category “One for All”

One for All: Walking the Road Ahead with Both Patients and Industry

Posted May 19th, 2011 by

“You’re the patient who’s taking the medication. But industry can act almost like a friend who’s walking with you. And that relationship has never been the case in healthcare. Never.” – David S. Williams III

Last week, we kicked off our latest video series with an interview with President and Co-Founder Ben Heywood about the “long road” we’re all on together to change the way healthcare works for patients like you.

This week, Chief Marketing Officer and Head of Business Development David S. Williams III offers his perspective on how our industry partners can take part in this collaborative journey. Listen in to hear his thoughts on a new type of patient-industry relationship that is now possible thanks to social media.

Curious what other parties will share this “road” with us? Stay tuned for next week’s video interview with another member of the PatientsLikeMe executive team.


It’s Fibromyalgia Awareness Day!

Posted May 12th, 2011 by

National Fibromyalgia and Chronic Pain Association

At the National Fibromyalgia & Chronic Pain Association, this year’s Fibromyalgia Awareness Day is themed CURE FM (Campaign for Understanding, Research & Education of Fibromyalgia), and many of our members are working to do just that.

Beginning as early as January, our fibromyalgia members have worked together to order t-shirts, send letters to TV shows and spread the word about fibromyalgia through their online social networks.

So what’s fibromyalgia really like? The best way to find out is from patients directly. Since we opened our doors to fibromyalgia patients in November 2008, we’ve had 13,826 fibromyalgia patients join our community and share their real-world experiences with this chronic pain disorder, which is characterized by pain or aching in the muscles as well as multiple points of tenderness.

Among other things, patients with fibromyalgia have reported that:

They also share practical tips for living with this debilitating condition in our forum every day. Some of the most popular topics in the fibromyalgia forum room include sleep issues, pain, research, coping and support.

Here are some recent forum comments about the disease’s effects:

  • “Sometimes I wonder who I am. It is like all the pain and problems define me. The pain controls my life.” –Fibromyalgia patient, age 50
  • “Being sick has permeated so much of my life that it comes up in almost every conversation I have.” –Fibromyalgia patient, age 33

To learn more about living with fibromyalgia, you can also explore individual patient profiles to see what people are saying about their symptoms, treatments and quality of life.  Get to know one of our fibromyalgia patients today.

PatientsLikeMe member emorgan