Are you one of the roughly 700 patients with psoriasis at PatientsLikeMe? We’ve got some exciting new features just for you.
At the end of 2011, we unveiled the Dermatology Life Quality Index (DLQI), a new 12-question survey that helps you measure how psoriasis affects your day-to-day life. Answer the questions regularly to produce a graph (see above) showing how things are changing over time. That way, you’ll be able to see how various treatments and interventions are impacting your quality of life.
Another new feature is the Body Surface Area (BSA) lab test, which measures the percentage of your skin affected by psoriasis. Not sure how to approximate that? Your palm (including fingers) represents about 1% of your body surface area, so use that as a proxy. How many palms would equal the area of your body affected by psoriasis? If it’s 15 palms, for example, that would be equal to 15% of your body surface area.
Finally, if you have listed psoriasis as your primary condition (and more than 350 of you have), you may have noticed that you have a brand new patient icon or “nugget.” It displays your latest DLQI and BSA scores as well as your age, gender and latest InstantMe status (e.g. “Very good” in the example shown to the left).
So, what do you think of these new features? Have you tried them out? We’d love to hear your thoughts and feedback.
Last November, we shared our takeaways from TEDx Cambridge, a one-day event featuring 30+ speakers and lots of Ideas Worth Spreading (TED’s mission). The theme for this particular gathering was “Thrive.” How can we as individuals – and communities – not just survive but thrive?
One of the speakers to take a crack at that question was PatientsLikeMe Co-Founder and President Ben Heywood, who talked about the story behind PatientsLikeMe. In addition to sharing how it all began with his brother Stephen’s diagnosis with ALS, and what PatientsLikeMe is trying to do (“a revolution of openness”), Ben focused on how we can thrive as a company against big expectations – both external and internal.
Tune in to the video below to find out just that. Congrats to Ben on an inspiring talk – not to mention his standing ovation!
Last week, PatientsLikeMe Co-Founder Jamie Heywood had the honor of speaking at the Personalized Medicine World Conference (PMWC), a two-day event held at the Computer History Museum in Silicon Valley. His presentation was entitled “Patient Driven Convergence of Clinical Discovery and Care.” In recognition of the conference’s venue as well as the role that technology plays in personalized medicine, we decided to share some of the “tweets” that Jamie’s talk generated on Twitter.
Ruby Gadelrab(@DivaBiotech) tweeted: “James Heywood, PatientsLikeMe, starts presentation with very poignant picture of his brother suffering from ALS.”
Ron Ribitzky, MD(@RonRibitzkyMD) tweeted: “James Heywood of PatientsLikeMe at PMWC: Industry develops systems that can impact if people live or die, but not giving it to them.”
Shirley Wu(@shwu) tweeted: “Heywood of PatientsLikeMe: At events like this, I often see tech searching 4 problems, not well-defined problems searching 4 solutions.”
Ribozyme(@ribozyme) tweeted: “JH PatientsLikeMe: If they (were to) add genotype data it would be a huge phenotype-genotype correlation study.”
Daniel Kraft, MD(@daniel_kraft) tweeted: “Talk from @PatientsLikeMe. Reduced ER visits by 18%. ‘Predict the future so we can change it.’”
Are you part of the Twitterverse too? Follow us @PatientsLikeMe today. We’re just 25 people shy of reaching 5,000 followers!
Last June, we shared how our award-winning Clinical Trials tool was a product of “Wow Week,” which takes place every sixth week here at PatientsLikeMe. It’s essentially our version of Google’s “20-percent time,” or a period of unstructured time where our engineers have the freedom to work on their own ideas. We believe it fosters passion, experimentation and risk-taking. In fact, we know it has given how many other site improvements were conceived during “Wow Week” in 2011.
The list is quite long (kudos, engineering team!), so we singled out three “Wow Week” projects that seemed to really resonate with our 128,000+ members.
For women, your menstrual cycle can be intricately tied to your health condition(s), as well as how you feel. Now, with MyCycle, you can monitor your cycle length, view it next to your other health information and predict the next start date. (If you’re a female who has not indicated your gender on your basic information, you’ll need to do so in order to receive access to this feature.)
Fuzzy Dates
Engineering Team Credits: Jeffrey Chupp (no longer with the company) and Michael Berkowitz
Are you often fuzzy about your dates? So are most people. In recognition of the fact that photographic memory is a rare trait, you can now specify dates with varying levels of accuracy or “fuzziness” – the year (2008), the year and month (May 2008) or the full date (May 22, 2008). Whatever you can remember is better than no data at all!
For InstantMe (our daily log of how you’re feeling) to be more instant, we needed an app, right? This mobile website/application uses HTML5 to support the tracking of your InstantMe scores on your iPhone or iPad. Learn more about what it can do here. (Note that this feature is now open to all members, regardless of their star level.)
Are we right? Did these new tools and features add more “Wow” to your PatientsLikeMe experience? We’ve love to hear your thoughts in the comments section. And as always, stay tuned to our Release Notes page for the latest technology updates and innovations.
I love the conveniences that come from having my data moved around online (with my permission, of course). For example, TurboTax will pull all my information from my investment bank and the IRS, and then calculate how much I owe. With me doing hardly anything, I’m done in about 20 minutes! Similarly, Mint.com can pull in my bank and credit card transactions to scold me about how much I’m over-spending on Amazon and restaurants.
Sadly, my healthcare data is not nearly as portable or accessible as my financial data. It’s a shame, because there are many talented people in health start-ups who want to build tools to help people make sense of their health data. It’s been 15 years since HIPAA was passed to promote this accessibility and portability of data, but many obstacles have gotten in the way of implementation: debates about data standards, the cost of updating information systems, debates about whether patients should really own their data and more.
This is exactly why the U.S. Department of Veterans Affairs (VA) should be commended. The VA cut through these obstacles and implemented data download for all the veterans using their “My HealtheVet” online health services portal. With the click of a single button, users can now download appointment information, medication histories, lab results and more. To date, nearly a half million veterans have already downloaded their data. What’s more, the VA is encouraging other health providers to follow their lead: they would love to see every health portal have a big, blue button that allows users to download their data with a single click. They are calling this the “Blue Button” initiative.
Blue Button is an ambitious undertaking, and we’re just beginning to understand its potential. However, Blue Button doesn’t necessarily make it easier for a patient to move data to other services. In fact, there are no data formatting standards for Blue Button, a decision meant to motivate providers to participate because they wouldn’t get bogged down in an argument about which standard is best (for example, Continuity of Care Document (CCD) vs. Continuity of Care Record (CCR).) This lack of standardized data output means it will be more work for any third-party services that want to import it.
Moreover, the VA’s implementation of Blue Button for My HealtheVet poses some additional challenges for data portability. The sample data export from My HealtheVet is just a free-text file with very little structure to it. While it is easily read by humans, it is not in a format that can easily be parsed by computer programs, such as XML or comma-separated-value (CSV) files.
To help facilitate the portability of the VA’s Blue Button download data, PatientsLikeMe is releasing an open-source Blue Button parser, which translates the free-text data file into structured data. Our goal is to make it easier for programmers to use this data for their own applications, or even for building tools to translate the data into a more established health data standard like CCD or CCR. Because the parser is open-source, it is not only free, but improvements made by any developers can be contributed back so that others may benefit. We believe sharing is a good thing.
There actually have been a couple prior attempts at parsing the My HealtheVet records to date. One person made a great start at an online tool for parsing My HealtheVet files. Also, Microsoft’s HealthVault service will read Blue Button VA files, but, as far as we can tell, the parser they use for this is not available as open source yet.
The lack of a defined data format “standard” for BlueButton frees us from endless debating over nuances of one standard versus another, but at the cost of data portability. PatientsLikeMe believes Blue Button can be even more powerful if patients have more options for what they can do with that data. By releasing a standard open-source parser, PatientsLikeMe hopes to give providers and other services a way to participate in Blue Button without worrying about the lack of definition.
What does this mean for patients? Hopefully we’re a little bit closer to all having a Mint.com for our health.
Did you make a health-related New Year’s resolution? And are you using technology—such as a smartphone app or website—to achieve your goal? Create a short video about it, and you could win prizes ranging from $250 to $2,000 if your video is selected as one of the best!
“In order to empower individuals to be more active partners in their health, they need access to their information and tools they can use,” said Farzad Mostashari, M.D., Sc.M., national coordinator for health information technology. “We are excited to harness the creativity of ordinary Americans to help promote the positive impact of the myriad health information technology tools and services on health and health care.”
For PatientsLikeMe members, you’re already using technology (meaning, our online health community!) to monitor and improve your health. Here are some sample resolutions involving PatientsLikeMe that might make for a great video submission:
Enter my complete health data at PatientsLikeMe so that I can spot correlations and patterns on my profile charts.
Find out what PatientsLikeMe members with the same condition(s) are doing about a symptom that’s frustrating me.
Chart my daily moods using PatientsLikeMe’s InstantMe survey to see what factors are affecting my mental health.
Add my Lab and Test results at PatientsLikeMe so that I – and others like me – can learn from them.
All video submissions are due on Friday, February 16th, at 5:00 p.m. EST, so start brainstorming. The idea is to inspire, motivate and educate others in a unique way, as all winning videos will be featured at HeathIT.gov. For more details and contest guidelines, visit the contest website.
New to Health 2.0? Join the 125,000+ others at PatientsLikeMe to find information and support from those just like you – and begin monitoring your health with a host of tools and measurements. Cheers to health and technology in 2012!
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features various employees from different departments. Last month, we featured an interview with Research Scientist Mike Massagli, PhD, and today, we share our interview with User Experience Engineer Cris Necochea, who holds the distinction of being the very first PatientsLikeMe employee. Find out what convinced him to join PatientsLikeMe as a fledgling start-up…and why he’s stayed for the long haul.
1. You’re a User Experience Engineer at PatientsLikeMe. Tell us what that involves.
At PatientsLikeMe, we use a methodology called Agile Scrum, where our focus is on the quick turnaround of short, attainable goals, usually in a two-week period. It’s fast-paced and never boring. Our engineering team is made up of around 10 Engineers, a Product Manager, a Designer and two User Experience Engineers, all under the direction of our Director of Engineering, Steve Hammond.
My focus is on translating the visual designs into a usable and accessible user interface. However, at PatientsLikeMe, we all have a lot of shared responsibility for driving the direction we take with the user experience. Given our short cycles of releasing website updates every two weeks, it’s invaluable to have every member of our team focused on what is most important for the patient. We don’t always get it right the first time, but we take the feedback we get from our members to constantly improve the user experience.
2. What kind of projects are you working on right now?
Currently, we’re wrapping up a long project that will allow our members to describe more about their health experience in the context of the information they already share. We have been testing this for a while with patient volunteers, and the feedback we have received is very positive. We believe it will encourage even more sharing, which, in turn, will build the body of medical knowledge. That’s our ultimate goal.
Aside from that, I’m working on some features to improve the accessibility of the website. Based on feedback of a patient who uses assistive technology (AT), we’re trying to cut down the number of steps to access the essential features on our pages.
3. What do you like best about being a part of the PatientsLikeMe team?
Our team environment, like our entire company culture, is highly collaborative and based around lots of direct communication. Our weekly Journal Club presentations with outside speakers are a highlight, but we also have regular company presentations on what we’re working on, as well as informal “brown-bag” presentations on technical subjects and the like. Sharing is a focus even for the employees at PatientsLikeMe. It helps that the people we have are the smartest I have ever worked with, and they are passionate about the company’s mission.
On a more personal note, our team keeps it witty and light-hearted. It’s always fun to be in the office, but even on days when we work remotely, the laughs keep rolling over our team collaboration tools. As an aside, I’d like to point out that PatientsLikeMe is hiring. If you enjoy working with hilarious and talented folks that are trying to help people, maybe you’d like to look at our Careers page.
4. As someone who’s been with the company since the early days, what’s the PatientsLikeMe milestone that you’re most proud of?
That’s a very interesting question. I think being the very first employee at PatientsLikeMe is what I’m most proud of. When I received the call from Co-Founders Jeff Cole and Ben and Jamie Heywood about what they were putting together, I had little hesitation about joining an effort that was aimed at helping improve the lives of patients.
Through that time, we have contributed legitimate scientific discoveries and built a team of people who excel in their fields in the service of a mission that is bigger than any one of us. I couldn’t have predicted that we would succeed when I started here in 2005, but I believed enough in the goals of PatientsLikeMe to make the leap. Seeing what we have accomplished in that time is the most gratifying thing of all.
A few weeks ago, we launched a new blood glucose feature, which allows members with diabetes to record and monitor the concentration of glucose in their blood on a daily basis. Here’s a look at the resulting profile chart:
In a recent PatientsLikeMe Poll, 88% of responding diabetes patients said they have a goal for control of their blood glucose. Many of you on the site have told us before how important it is for you to monitor your blood glucose to treat your diabetes. With this new tool, you can now easily input your blood glucose levels as often as you’d like—even noting the exact time the test was taken—and see your results over time on your PatientsLikeMe profile.
The glucose chart (pictured above) displays which readings fell outside of the normal range, which is also known as hyperglycemia (when the blood glucose level is too high) or hypoglycemia (when the blood glucose level is too low). We know some of you are already monitoring hyperglycemia and hypoglycemia on your profiles, but we’re glad that you can now record to what extent your blood glucose levels were out of range.
Do you want to get a better picture of what’s going on with your health, spot trends and, ultimately, take control of your diabetes? Join the PatientsLikeMe diabetes community today to monitor your blood glucose levels and other factors relevant to your health. If you’re already a member, visit the new Labs & Tests page to add this new feature (or one of our other new labs) to your profile.
Thanksgiving is a time for remembering all the reasons you have to be grateful. For patients who face numerous health challenges, this can mean reminding yourself of all the things you have gained – not lost – since your diagnosis.
One theme that we’re especially proud to hear our 120,000+ members express is how thankful they are to have found a community of people who truly “get” them at PatientsLikeMe. Our founders envisioned a way to connect patients with others just like them – so they could learn from each other, support each other and help accelerate the pace of medical research – and today, it’s become a reality. Touchingly, it’s also been the start of many important friendships among our members.
Here are some patient stories that moved us this year:
“The people on this site deserve more than a simple thank you from me. The night I found PatientsLikeMe was about eight hours after my neurologists had told me, ‘You have non tremor Parkinson’s disease.’ That night I had some stinking thinking going on. I considered myself a freak. Thanks to this site I now consider myself unique. We are all unique. To my Parkinson’s brothers and sisters, a big THANK YOU for helping me get away from my stinking thinking.” – Patient with Parkinson’s disease
“This is the place where we can wonder what is next, cry about what is now and rant about how unfair it all is to us. Here we are among friends and patients just like us who know have been there or will be going there. It is so much better for me to be on PatientsLikeMe then to just rant to my family and boyfriend. I figure we can all listen to someone’s rant as tomorrow it may be us.” – Patient with ALS
“I called one of our members for the first time. We were on the phone for over three hours! Every connection I’ve made here that has progressed to the phone call stage has been like that. This is the best, most fun, most supportive group of guys and gals that I think I have ever come across. At PatientsLikeMe, we may all come from different walks of life, different locations and yes sometimes different opinions, but here we share such a unique and caring bond. I’m so lucky to have found PatientsLikeMe.” – Patient with fibromyalgia
“I have found that I am better able to deal with my moods now that I am able to relate to others with the same/similar problems. It helps to rant. It helps to talk with people who understand. PatientsLikeMe has helped me to understand myself better too. YAY. I love PatientsLikeMe.” – Patient with bipolar II disorder
“In large part, my success at escaping that life of depravity, depression and addiction is due to the sense of belonging I found at PatientsLikeMe. I was encouraged, and loved and, yes, even put in my place a few times. Even though my path has been neither straight nor smooth I feel that I have my friends on PatientsLikeMe to thank for the sunlight in my life.” – Patient with HIV
No one should have to go through the experience of chronic illness alone. If you’ve already realized you’re not alone in your journey, we give thanks for you…and every patient like you.
PATIENTSLIKEME POLL REVEALS UPCOMING HOLIDAY SEASON MOST DIFFICULT FOR DIABETES PATIENTS CONTROLLING BLOOD GLUCOSE
PatientsLikeMe Introduces Daily Glucose Monitoring Feature in December
CAMBRIDGE, MA - November 22, 2011 - According to a recent PatientsLikeMe® Poll, one out of every two type 2 diabetes patients (50%) and nearly two out of every three type 1 diabetes patients (65%) say having diabetes affects their holidays. More than half of respondents (59%) say the upcoming holiday season, marked by Thanksgiving and Christmas, is most difficult for controlling blood glucose; 25% don’t find the holidays difficult. When asked what strategies they use if their blood glucose rises after increased consumption during the holiday, diabetes patients had mixed responses with three in four type 1 patients (76%) changing their medication dosage, while type 2 patients try alternative things like more exercise (34%) or just avoiding glucose-raising items altogether (34%). Two hundred and twenty-six (226) diabetes patients sharing their health data on PatientsLikeMe.com responded to the poll.
“This week represents the beginning of a challenging season for diabetes patients faced with group meals and gatherings that could impact their health,” says Ben Heywood, President and Co-founder of PatientsLikeMe. “We all have family or friends with diabetes and these poll results give a glimpse into some of the challenges they face and the strategies they use to overcome them.”
Are diabetes patients sensitive about discussing their disease with family and friends at the table during the holidays? An overwhelming 90% say no. However, more than one in three patients (38%) still feel friends and family don’t understand how diabetes affects them during the holidays. With holiday meals and parties so prevalent over the next six weeks, many of the respondents (84%) say they manage with what’s available, while 16% make some adjustment to accommodate for their diabetes (7% host to be in control, 7% eat before going out and 2% bring their own meal).
PatientsLikeMe will introduce a daily blood glucose monitoring feature for its 2,000+ diabetes patients in early December. Patients will be able to report daily glucose levels, as well as continue sharing and learning from HbA1c scores (used to monitor the glucose control of diabetics over time), treatments and dosages (such as Metformin or insulin) and symptoms and severity (including blurry vision,excessive thirst and fatigue). In recognition of Diabetes Awareness Month, PatientsLikeMe recently collaborated with industry and nonprofit partners to launch the CallingAllTypes (www.callingalltypes.com) campaign in an effort to help raise awareness and funds for the disease.
NOTE TO EDITOR: The complete PatientsLikeMe® Poll results can be downloaded here. All poll results must be sourced as originating from PatientsLikeMe®.
PatientsLikeMe® Poll Methodology Between November 14th and November 18th, PatientsLikeMe invited all diabetes members to participate in the PatientsLikeMe® Poll, with 226 members completing the poll. Respondents represent patients with both type 1 diabetes (24%), where patients are usually diagnosed at a young age and need to daily blood glucose monitoring and insulin therapy, and type 2 diabetes (73%), where patients develop the condition gradually over time typically due to environmental factors resulting in increased blood glucose levels. In this poll, more than 200 respondents shared their HbA1c scores, with 49% reporting a score of 7.0 or lower (which represents well-controlled glucose).
About PatientsLikeMe® PatientsLikeMe® (www.patientslikeme.com) is the world’s leading online health data sharing platform. PatientsLikeMe® creates new knowledge by charting the real-world course of disease through the shared experiences of patients. While patients interact to help improve their outcomes, the data they provide helps researchers learn how these diseases act in the real world and accelerate the discovery of new, more effective treatments. [Follow company news on www.twitter.com/PatientsLikeMe and http://blog.patientslikeme.com]
On October 24-25th, PatientsLikeMe attended the 8th Annual Patient Adherence, Communication and Engagement (PACE) Conference in Philadelphia. The event focused on how the healthcare industry can deliver measurable improvements in patient adherence (i.e., taking medications as prescribed by your doctor). Put simply, how can we help patients like you take the correct dosages at the correct times?
Why does this topic merit its own conference? Well, as we learned at PACE, medication non-adherence costs more than $300 billion every year in the US alone. You read that right. And this staggering amount is comprised of more than just hospitalization and emergency room costs. It also includes things like lost employee productivity and the cost for less optimal patient outcomes. Essentially, think of it as $300 billion the US could be saving each year - but currently is spending - in the midst of an economic downturn.
Here are some of the other noteworthy takeaways:
Of that $300 billion, more than $100 billion is concentrated in four cardio-metabolic disorders: diabetes, hypertension, high cholesterol and heart disease.
A key factor in non-adherence is that patients may frequently have an incorrect understanding or an unrealistic expectation from their doctor of what their medications will do for them.
Recently passed US legislation is attempting to change the way doctors are paid. The new law provides financial incentives for health plans to implement quality measures that hold doctors accountable for impacting patient outcomes.
Many new solutions, such as telemedicine and the patient-centered medical home, are being piloted and studied. The goal is to learn how technology can impact patient outcomes via medication adherence services and remote medical care.
To remain relevant to patients, biopharmaceutical companies now recognize that they must incorporate the voice and experience of the patient into their decision-making processes.
Last but not least, our very own Chief Marketing Officer and Head of Business Development David S. Williams III spoke about the work PatientsLikeMe is doing around medication adherence. Specifically, he focused on patient-to-patient interaction as an influential driver of medication adherence and how we can give patients the tools they need to (1) understand how their medication is working for them and (2) hold each other accountable for following their doctors’ instructions.
Do you believe connecting with - and learning from - other patients is critical to adherence? Share your thoughts in the comments section.
In June, we told you about our new partnership with BBK Worldwide, a pioneer in healthcare communications.Now, we’re excited to report that our first outreach project together is kicking off.
In preparation for American Diabetes Month in November, PatientsLikeMe and BBK Worldwide announced today the launch of a new online diabetes health movement entitled “Calling All Types.”This innovative social health initiative encourages people with type 1 and type 2 diabetes to share their real-world experiences and help raise awareness of the disease, which affects 25.8 million children and adults in the US (or 8.3% of the population).
Are you a diabetes patient?Share your thoughts and stories at CallingAllTypes.com.Within seconds, social media outlets including Twitter, Facebook and YouTube will pick up and share your words across the Internet.The goal is to create instantaneous viral awareness that will inform the public, including policy makers and health professionals, about the real toll diabetes takes on individuals and families. (Check out the video below to learn more.)
In addition to rallying supporters at CallingAllTypes.com, the campaign is focusing much of its initial awareness-raising efforts in Atlanta, Georgia, where diabetes prevalence exceeds the national average by a full percentage point.“We are incorporating a “take a community by storm’ approach,” says Bonnie A. Brescia, founding principal of BBK.For each of the first 10,000 visitors to post a comment at CallingAllTypes.com during November, the campaign will donate $1 to the Atlanta chapter of the American Diabetes Association.
So if you’ve got something to say about diabetes, the fastest-growing chronic disease in US history, don’t hold back.Spread the word today at CallingAllTypes.com.Then, if you haven’t already, join the diabetes patients at PatientsLikeMe who are coming together to share experiences, find others like them and take control of their health.
This weekend, MIT is hosting the first H@cking Medicine conference and PatientsLikeMe is proud to be a sponsor. The hacking encouraged here isn’t malicious, rather, it refers to a passionate subculture of computer programmers who believe in sharing, openness, and innovation (among other things). Those are three concepts near and dear to us here at PatientsLikeMe.
The goal of the conference is to inspire new ideas and create new relationships so that everyone will leave invigorated and excited about improving healthcare. According to the H@cking Medicine website, “By using available tools in unconventional ways, we aim to revolutionize delivery of care, empower patients, and design new models of care. Typically, healthcare innovation is painfully slow and, even worse, often increases the cost. We can make a difference by creating cost-effective solutions without waiting for fundamental advances in science.”
To kick off the event on the first day, our own Jamie Heywood (keynote) as well as other leaders in the health care field will inspire audience members with ways to find and learn from the best use of openly shared data. The second day is dedicated to team hacking, and gives coders a practical look at what can be done with the available resources.
Read more about this subculture of hackers on Wikipedia and follow the H@cking Medicine conference updates on their website and Twitter.
In August, we proudly announced that our Research & Development Director, Dr. Paul Wicks, PhD, had been named “Humanitarian of the Year” and a TR35 Honoree by MIT Technology Reviewmagazine.This week, he received both awards at MIT’s annual Emtech event, a two-day conference focused on emerging technologies held at MIT’s Boston campus.
Below are links to a few videos highlights from the event, including the award presentation on Tuesday night. As you’ll hear in the organizer’s introduction, the criteria for TR35 (the best young innovators under the age of 35) is to recognize individuals who are doing transformative work.“They are presenting a concrete solution to a big, almost ideally civilization-scale problem.”MIT Technology Review then names one TR35 recipient as “Humanitarian of the Year” to recognize the use of technology in “progressing the human condition.”
What does Paul have to say about receiving this incredible honor?Jump to the 3:40 mark in the video below to see his onstage interview and award presentation.
At PatientsLikeMe, people with every type of condition are coming together to share their health experiences, find patients like them and learn how to take control of their health. The result is improved care for patients as well as an acceleration of real-world medical research.
Stay tuned to our blog for the latest happenings with our company, our patients and our mission of opening up the healthcare system.
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This weekend, MIT is hosting the first 
