119 posts in the category “Media Coverage”

“We are all connected”: Check out this new video starring the 2018 Team of Advisors

Posted 7 months ago by

Have you had a chance to meet the 13 members selected to join the 2018 Team of Advisors? Get a glimpse of the dynamic group in this new 2-minute video, and keep an eye on the PatientsLikeMe newsfeed and Facebook page for their individual videos and stories.

This group will be collaborating with us in the next year to offer feedback on new research and product development, to advocate on behalf of patients, and provide real-world perspectives to PatientsLikeMe and our partners.

Say hello to the team! From left to right in the screenshot above:

(Back row)

Marcia Holman (@marcia_holman), living with multiple myeloma and breast cancer

Rich Pollock (@rcpollock), living with ALS

Rosie Stambaugh (@ClairHart), living with major depressive disorder and fibromyalgia

LaKeisha Parnell (@Hope4ull2), living with epilepsy

Susan Tomasic (@SusanT318), living with rheumatoid arthritis

Kip Edwards (@Kip_Edwards), living with multiple sclerosis

Paul Tavano (@PaulT), living with ALS

Elizabeth Asdorian, (@e_sf) living with multiple sclerosis

Bernadette Mroz (@yellsea), living with Parkinson’s disease

Alysia Taylor (@stormyND), living with bipolar disorder

(Front row)

Christine Von Raesfeld (@Cvonraesfeld), living with lupus

Jeanette Alston-Watkins (@JeanetteA6872), living with lupus

Melinda Lowery (@MelindaAnn), living with rheumatoid arthritis

This group is available as a resource to the rest of the PatientsLikeMe community and you’ll be hearing more from them throughout the year. Join PatientsLikeMe today to connect with them and 600,000+ other members!

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“It just makes sense to give back”: How PatientsLikeMe employees volunteered their time this year

Posted 8 months ago by

Volunteering is a big part of the culture at PatientsLikeMe. Inspired by PatientsLikeMe members, who have made our online community a place to find support and answers about health, we do our best to give something back to our local community, too. This year, many of our staff members pitched in and gave their time to organizations all over the greater Boston area. Here’s what we’ve been up to this year…

  • 50 PLMers (that’s what we like to call ourselves) volunteered during PatientsLikeMe’s service month in November
  • Those individuals volunteered a total of 260 hours
  • …and supported 18 different organizations in the greater Boston area

Check out some of the places we volunteered our time this year, and see these PLMers in action…

PatientsLikeMe staff members volunteer at Rosie’s Rosie’s Place

Rosie’s Place is a women’s shelter in Boston that was created to service poor and homeless women. They not only provide shelter, but also support 12,000 women a year with a wide range of services including housing and education.

Tori, Katie, Kim and Rebecca volunteer at Community Servings

Community Servings is a not-for-profit food and nutrition program whose mission is to provide services throughout Massachusetts to individuals and families living with critical and chronic illnesses. They provide home-delivered meals and nutrition services that are medically-tailored to the individuals receiving them, based on their condition. Right now, they deliver to 20 cities and towns across Massachusetts, and are beginning a pilot program in Rhode Island.

Jeremy, George, Jenni and Amber volunteer at Healthcare for the Homeless

Boston Healthcare for the Homeless program supports more than 12,000 homeless men, women and children, and provides access to comprehensive healthcare, from preventive dental care to cancer treatment.

Extending our mission from online to offline

Maria Lowe, Co-chair of the PatientsLikeMe Social and Volunteer Committee, helped organize and coordinate these volunteer efforts in 2017. “I think it’s so important to take time to think about how others around us might not have some of the things we take for granted,” she said. “To me, it just makes sense to give back in whatever ways that I can.” In fostering a culture of volunteerism at PatientsLikeMe, Maria says it fits with our core message. “We’re all about putting patients first and we have our “give something, get something” philosophy, so I think giving back to our local community however we can is just a natural extension of that.”

Here’s to another year of building stronger communities, together.

Interested in becoming a part of the PatientsLikeMe community? Join here.

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