February 2018

Why these 5 Olympians with health conditions are #1 in our hearts

Brain Injury, Conditions, Diabetes, Lupus, Patient Experiences, Rare Diseases / By

The 2018 PyeongChang Olympic Games have come to a close. Did you happen to catch any of these 5 Olympians with health conditions (recently highlighted in The Mighty)? Their performances were inspiring — but their perspective on living with illness is what’s really golden. U.S. pairs figure skater Alexa Scimeca-Knierim developed a rare, life-threatening gastrointestinal disorder that caused episodes […]

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What products help people live better with Parkinson’s disease? A room-by-room round-up

Conditions, Parkinson's Disease, Patient Experiences / By

Over the years, PatientsLikeMe members living with Parkinson’s disease have discussed a lot of products and ideas for living better with PD. From kitchen knives and eating utensils to shoe horns and shoelaces, we’ve compiled a list of tools you’ve talked about for (almost) every room in the house and many different aspects of life.

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10+ ways to make your wheelchair work better for you

Conditions, Patient Experiences / By

Wheelchairs aren’t always built with the best patient experience in mind. But many PatientsLikeMe members are sharing about the creative hacks and useful accessories they’ve used to make their wheelchairs better suit their needs. Here are some suggestions — how many have you tried? Making it more comfortable: Egg crate cushions, it’s really important to

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Putting together an MS emergency bag: What’s on your must-have list?

Conditions, Multiple Sclerosis / By

From managing incontinence to temperature changes and sudden muscle weakness, many people living with MS have items they can’t live without. Some PatientsLikeMe members have started carrying an emergency bag with all the essentials to deal with inconvenient MS curveballs. Check out their suggestions: Instant ice packs Mint gum (helps one member “cool down”) Change

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Behind the scenes at PatientsLikeMe! Take a peek at user research (aka usability testing)

Patient Experiences, Research / By

Have you noticed changes on PatientsLikeMe in the past year? (We’re guessing you’ve spotted quite a few.) Did you know that we involve members in testing out various features or updates to the site before rolling them out? We do! Member Barbara’s user research session with Kris Engdahl, principal user researcher (left), and Nicole Barron,

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